Ange76

Hi,
I have a question that I wanted to see if anyone here might be able to answer.
I had a grand mal seizure in March of this year and have since been diagnosed with epilepsy (no one certain type diagnosed yet but I feel it's closest to photosensitve). My neurologist felt after reviewing a list of complaints I had following the seizure that I may have Fibromyalgia. This was also agreed upon by my epilepsy specialist. I saw a rhuematologist who basically told me I needed a phsychiatrist (I know...big surprise) and have since decided I'm going to have to try to figure things out for myself before trying another doctor. I had been told that Fibromyalgia has been known to be linked to/cause seizures in a rare few! Also, there can be severe light sensitivity with Fibromyalgia. When I get in bright light I get a bad headache, my eyes feel like their swimming around, I'm very dizzy and after a bit I look and sound like I'm drunk (I either slurr my words and/or stutter and it feels like everything just slows down). My neurologist and epilepsy specialist felt this had nothing to do with the seizures OR my meds (I take 360mg of Dilantin per day right now). The extreme light sensitivity coupled with my list of ailments (which include the following: tingling of my scalp on the left side, tightening of my forehead, severe headaches (which sometimes include nausea and can last for days at a time), crampy/achy pain with normally concentrates on my left side (from shoulder to finger tips and hip to toes), severe difficult sleeping (both going TO sleep and staying asleep...sometimes leaving me with 3 hours of sleep per night), hardly ever waking feeling rested at all (even on nights I get in enough hours of sleep), a metallic taste in my mouth from time to time, lower back pain (even from bending over for 3-4 seconds), tightness in my chest and stomach, sometimes severe neck pain, sore spots (outside of wrists, elbow, top of my shoulder and top of feet...mostly concentrated on the left side) and overall trouble thinking (or comprehending), remembering and reading (especially numbers). They felt this had to do with something more along the lines of Fibromyalgia than a drug reaction or epilepsy. The Rhuematologist I saw told me that seizures and light sensitivity (to the degree I have it) are NOT associated with Fibromyalgia at all and she basically felt it was all in my head. I can assure you, what I'm going through is real and I was devastated that she would question it like that, but...I've read enough to know that you will come across doctors who have no clue...she was one of them! I just wanted to see if anyone here had any advice as to whether or not my symptoms do fit Fibro or if there is another path I should try?! I just need a clue as to what direction to take from here!
Thank you for your help!, Ange