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Old 11-20-2008, 11:47 PM   #1
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Please Help With Med Info For Fatigue W/ Fibro

I have been diagnosed with Fibromyalgia and was hoping to get some information about the medications people use and how it helps them. I was on Wellbutrin and Paxil and was doing pretty good but I still had the pain problem so my doc switched me to Cymbalta. I have not had near as much pain but have been very tired. I have only been on it for two weeks and it was raining for the first week so I don't know if it will get better or not but I wanted to hear from some of you on here about your experiences. My mom also has Fibro and she just got Lyrica to try. I've been reading about all the different medications but I can't seem to find enough information about the ones that help with fatigue and pain or the meds you can take together that one helps with fatigue and other helps with pain. I have been so tired and have a 4 yr old to take care of, which I currently can't! Please help anyone. Thanks in advance.

 
Old 11-21-2008, 10:15 AM   #2
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Re: Please Help With Med Info For Fatigue W/ Fibro

Azmom4 - I am sorry that you are having such a horrible time right now. It makes it even harder that you have a 4yo to take care of also... Different meds work for different folks and I am sure you will find that out soon enough. Cymbalta is supposed to decrease pain by 30%, at least that is what I was told by both my psychiatrist and pain management doc. My shrink prescribed it but it did nothing for me. I was taken off of it. I have been on many meds and it is truly a seek and find path you will experience. Besides the fibro, chronic fatigue, gastro issues, I also suffer with migraines, skin issues, hypermobility, asthma, some scoliosis, severe anxiety and BiPolar 1 which is still not under control and am in a severe mixed state which I have been in for over a year. You will find that some meds will work for a while and then poof, they stop working and you will be looking for something else to work.

You have to be your own best advocate... I don't mean to sound cruel but at least you have your mom who is in this with you together. Meaning, she to has this and can understand exactly what you are going through.

Do you mind if I ask what type of doctor is treating your fibro. You can come here to vent or just ask questions. We are all here for you... Just let us know how we can help... Jenn

 
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Old 11-21-2008, 11:59 AM   #3
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Re: Please Help With Med Info For Fatigue W/ Fibro

Quote:
Originally Posted by azmom4 View Post
I have been diagnosed with Fibromyalgia and was hoping to get some information about the medications people use and how it helps them. I was on Wellbutrin and Paxil and was doing pretty good but I still had the pain problem so my doc switched me to Cymbalta.
Two of my friends that do not have fibro took cymbalta and said it made them very tired. They tried it for 6 weeks and had to stop taking it because they were so tired they could barely work. I am on wellbutrin, couldn't tolerate cymbalta due to urinary retention.
Quote:
I have not had near as much pain but have been very tired.
when you lay your little one down for a nap take one too. pace yourself. ask someone to kick in and and do phyical activities with him.
Quote:
I have only been on it for two weeks and it was raining for the first week so I don't know if it will get better or not but I wanted to hear from some of you on here about your experiences. My mom also has Fibro and she just got Lyrica to try. I've been reading about all the different medications but I can't seem to find enough information about the ones that help with fatigue
L-tyrosene 1500 mg. in the morning, sublingual b12 and a b complex, good whole food vitamins
Quote:
and pain
magesium and malic acid helped me alot with the pain. i also have meds that i take as needed for pain listed below.
Quote:
or the meds you can take together that one helps with fatigue and other helps with pain. I have been so tired and have a 4 yr old to take care of, which I currently can't! Please help anyone. Thanks in advance.
Neurontin for when my skin "burns" but makes me kind of spacey
percocet from my pain mgmt doc
flexeril, muscle relaxer that i take at night and helps me sleep too
tramadol (ultram)

I highly recommend the book Fibromyalgia and Chronic Myofascial Pain by Devin Starlanyl. I don't know what i would have done without this book. It saved my sanity. The author was an ER doc and has fibromyalgia. I have read a lot about fibro, and there are many books and websites that contain misinformation and /or leave out the chronic myofascial pain piece altogether.

You will also find lots of valuable information on this board. I hope that you feel better soon. I would ask your doc if you can d/c the cymbalta to see if it is causing the fatigue. Just my opinion. take care and keep posting to let us know how you're doing.

Last edited by mod-anon; 11-21-2008 at 10:18 PM. Reason: fixed quotes to make reading easier

 
Old 11-22-2008, 01:51 AM   #4
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Re: Please Help With Med Info For Fatigue W/ Fibro

Hi,

I feel not as tired when my pain is under control.

I use elavil for depression, soma for inflamation and muscle relaxer, ambien to sleep. I find if I take the 1st 2 a half hour before the ambien that I sleep better.

I also have nerve blocks, ablations and a stimulator to help with the pain and it does work.

I do have morphine and vicodin for when the pain is too great, but I use this rarely as opiates upset my stomach really bad, even with nausea medication. I also have flexeril for when my muscle spasms get too bad and the soma isn't helping.

Cymbalta made me gain 40 pounds and suicidal and Lyrica made me hurt worse.

My thoughts are with you having a little one to take care of. Best of luck.

DeBeachSiren

 
Old 11-22-2008, 11:03 AM   #5
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Re: Please Help With Med Info For Fatigue W/ Fibro

Azmom4 - As you see, even with these posters, their med regimen is totally different and what works for 1, may not work for the other. I will now give you a list of mine so you can see how differently everyone's med list can be. However, remember, that different sufferers sometimes have added illnesses also. It does not however, make one fibromite suffer more than another. As one fibromite sufferer to another, we all have our different lives that make it hard, you being that you have a 4 year old to chase around. Others have added illnessed and whatever else may be going on in their lives that they may have to deal with... Anyways, here is my list

For fibro, Lorcet - Pain killer, Robaxin - Muscle Relaxer, Neurotin - for the burning/tingling feeling, Mobic - anti-inflammatory, Trigger Point Injections every 28 days, sooner if needed, they contain lidocaine and benzodine, I get between 6-10 injections. For the IBS, divirticulosis, gastritis, I take Hyoscyamine Sul, Protonix, Polyethylene Glycol, Miralax and Benefiber, For the asthma I take Advair, for the migraines I take Topamax. For the BiPolar 1 I take Lamictal and Seroquel, for the anxiety I take Xanax and for the energy issues related to the fibro I take Ritalin. I also take fish oil, a multivitamin and an aspirin 81 mg each day due to TIA strokes I suffered 2 1/2 years ago.

Does it keep me out of pain, no? Does it come close, no? It use to keep me at about a 3 or 4... Now I stay at a 6 or 7. I no longer work and filed for SSD in 11/06. I was denied and am now waiting for a hearing with the judge. My therapist filled out a mental health evaluation stating there was no way I could work and so did my pain management doc. Go figure.

I really don't know what to do. But that's enough of that. These are the meds that I am on. Just thought I would let you know.

Please let us know what is going on with you. Jenn

 
Old 11-22-2008, 01:07 PM   #6
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Re: Please Help With Med Info For Fatigue W/ Fibro

You may well be suffering from hypoglycemia which causes extreme fatigue when it is not managed properly. Eating a low-carb diet, eliminating caffeine, no sugar is the best approach for this condition.

Another supplement to try is D-Ribose, which is key to energy production. Information on this supplement is mentioned in Dr. Teitlebaum's book entitled "From Fatigued to Fantastic!" A good read.

Bye!
Kirstee

 
Old 11-22-2008, 01:53 PM   #7
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Re: Please Help With Med Info For Fatigue W/ Fibro

hello, in reply to your message about fatigue and pain with fibro. i've had fairly good outcome with taking Siberian ginseng, a product called Adrena. that helped my fatigue, gave me more energy. sometimes too a good B12 supplement can help. for the pain, i usually take ibuprofen. also keep moving, exercise, even light exercise can help a lot. i know it seems like a lot to think about exercising when you hurt, but it's good to move. also at night, i take 3 magnesium citrate capsules for relaxing my large muscle groups to aid with sleep. these products i mentioned are all natural, except the ibuprofen. i do also take a low dose of anti-depressant, 10mg a day. hope this is helpful. cheers,goodmama

 
Old 11-25-2008, 12:29 PM   #8
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Re: Please Help With Med Info For Fatigue W/ Fibro

I take both Lyrica and Cymbalta. I take my Cymbalta in the am and the Lyrica in the pm, however in the beginning I had to take Cymbalta at night because it made me so tired. These drugs take awhile to adjust to them, so you may just need a little more time.

 
Old 11-25-2008, 12:53 PM   #9
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Re: Please Help With Med Info For Fatigue W/ Fibro

I am also wondering about medication for fatigue and pain. I started Lyrica about a week ago and am now taking 150 mg (one in the morning, one at night). So far it hasn't taken the pain away, but does seem to take the "edge" off, which helps. My problem is I have a horrible time concentrating and/or sitting still during the day at work. I'm an accountant and I sit in a cube and work on the computer all day, so it's a real problem. About a month ago, I realized that Vicodin works wonders; I take two mid-morning and it helps me to focus on my work during the day. The problem is that my doctor won't keep prescribing it to me because a person can become addicted to it and after awhile you have to keep taking more and more to get the same effect. I'm wondering if there is something else out there specifically for fibromyalgia that would help with the fatigue and lack of concentration?

 
Old 11-25-2008, 09:20 PM   #10
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Re: Please Help With Med Info For Fatigue W/ Fibro

Thank you all for your input. I did some research and found that it was alright to take both Cymbalta and Wellbutrin together so I started taking the Wellbutrin again. I have still been tired, but not as bad. I have a double ear infection, or at least that's what the doc said, right now too so it is hard to tell how the meds are doing. I believe I will ask about going back to Wellbutrin and Paxil together if I don't start feeling better soon. My pain doesn't seem to be near as bad as most people with fibro, at least not for now. So I think I could handle the stiffness and pain as long as I can stay awake and active. Although I did suffer from severe pain and stiffness I was able to stay somewhat active like a person without fibro and was able to stretch pretty good each night with the help of weekly visits to my Chiropractor and the Wellbutrin and Paxil. I almost felt like I did before all this started for a while, until I switched to Cymbalta. I was even able to play almost daily with my son. I am going to try to get this ear problem fixed before I try switching meds again though. Thank you all again for your help and I hope the best to you. I will post updates when I can. I have just started this battle so I know I have a lot to learn.

I forgot to mention, my doc is an internist. He is very good, it seems. He tested me for a lot of stuff a few months ago and everything came back normal except my inflammation level was high, which is expected with the fibro. That was when I was first told I had the fibro with the fatigue. He tested me for hypoglycemia as well as diabetes and anything else you can think of that would make you tired. We talked about provigil when i got the tests done but when I went back for the results I forgot to mention it since we talked about the cymbalta.

Last edited by azmom4; 11-25-2008 at 09:23 PM.

 
Old 11-26-2008, 09:14 AM   #11
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Re: Please Help With Med Info For Fatigue W/ Fibro

hi there! i was curious what dosage of cymbalta you take? my sis needed just 30mg and i am at 60mg...which is working fine. i also take a daily muscle relaxer and anti-inflammatory. the only med that i had terrible side effects from was lyrica..falling asleep anywhere and everywhere...plus i had a weight gain of 20 lbs., and it did'nt help my pain at all. it might have been taking it with the other 2 meds that caused the side effects also...but i am better w/out it.
hope you can find the right combo of meds to help your pain...have a happy thanksgiving.....bevann

 
Old 11-27-2008, 12:16 AM   #12
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Re: Please Help With Med Info For Fatigue W/ Fibro

chandra,

I've read in several places how the use of opiates is so under used. I agree and so does my pain specialist. He keeps close tabs on these though, as he should.

There is dependent on a drug and addicted to a drug. Seems funny to me that opiates aren't used enough, yet Xanax is doled out like M&M's. Just a personal thought.

There seems to be dosages having to be increased often with the wonder drugs, NOT, Cymbalta and Lyrica. If you go back through older threads you'll see that there's a pattern here.

I've heard from a few people that Wellbutrin helps them with fatigue and cognitive abilities. I know for me I don't get quite as tired or foggy if I've slept alright. By the end of the day though my mind is like mush, so I don't write out bills, etc. then. Hopefully some others may have suggestions for you.

DeBeachSiren

 
Old 11-28-2008, 07:07 PM   #13
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Re: Please Help With Med Info For Fatigue W/ Fibro

Did your doc say where the inflamation was comimg from.
Barleygreen gives me alot of energy 15 min after i take it.
Bootleg

 
Old 11-29-2008, 05:54 AM   #14
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Re: Please Help With Med Info For Fatigue W/ Fibro

I also have a son who just turned 4. It's very difficult to keep up with him, I can not do it myself. I'm lucky to have both sets of his grandparents close by, and my husband here to help, or I would be lost.

It was a struggle for me to get rest when I slept, The doctors tried different meds and therapy, but nothing worked...

I started with a Neurologist for my migraines... She also diagnosed me with Chronic Fatigue, I now take Amitriptlyine at 7pm, makes me rest MUCH nicer. I also take Lyrica 8am and 7pm. They work nicely together...

Good Luck

 
Old 01-24-2009, 01:01 PM   #15
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Re: Please Help With Med Info For Fatigue W/ Fibro

Quote:
Originally Posted by azmom4 View Post
I have been diagnosed with Fibromyalgia and was hoping to get some information about the medications people use and how it helps them. I was on Wellbutrin and Paxil and was doing pretty good but I still had the pain problem so my doc switched me to Cymbalta. I have not had near as much pain but have been very tired. I have only been on it for two weeks and it was raining for the first week so I don't know if it will get better or not but I wanted to hear from some of you on here about your experiences. My mom also has Fibro and she just got Lyrica to try. I've been reading about all the different medications but I can't seem to find enough information about the ones that help with fatigue and pain or the meds you can take together that one helps with fatigue and other helps with pain. I have been so tired and have a 4 yr old to take care of, which I currently can't! Please help anyone. Thanks in advance.
AZMOM..I have tried the anti depressents for Fibro and they just make me more tired. I 've had Cymbalta, Lexepro, Zoloft and Elavil. Lyrica I won't try because I do not want to gain weight. Milnacipran is another drug that has just been approved for Fibro by the FDA. It has been used in Eupope for years. Anti depressants never did much for my pain. I never understood why doctors give someone with Fibro antidepressents since many of them make you tired and I am was tired enough from my Fibro. Welbutrin is not suppose to make you tired since it works differently than most anti depressents.
I am on Tramadol for pain and have recently started Provigil for fatigue. It works great so far. It's been years since I have had this kind of energy. I was falling asleep in the middle of the day. I had a terrible time concentrating on anything. It also takes the fibro fog right out of your head. Good Luck

 
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