Originally Posted by lori120
Can you tell me how you were treated? Is it possible to have nerve intrapment throughout the entire spine? My pain is from my scalp to toes!
Are you saying that there's hope for me?? Has your treatment helped you?
There is hope for you. You are going to get better. you just need to know how to take care of yourself and how to manage you medical care.
If you got the book, it would be such a help in understanding fms and cmp.
Yes there is hope for you. definitely. Yes my treatment has helped me to the point that i am almost symptom free. I will list the treatments but you need to remember that we are all different. sometimes it doesn't even make sense, just suddenly we get better.
For CMP chronic myofascial pain:
trigger point injections (not tender point) by a pain mgmt doctor. trigger points can entrap nerves and refer pain. and you can have chains of these babies from head to foot; i did.
physical therapy to release trigger points. (at the same time period as injections, lasted for about a year)
chiropractic adjustments because the muscles in my back were knotted and my spine needed adjustments. (I would go have the trp injections and then go to the chiropractor so what he did would stay put. for about 6 months)
tens unit on my neck, shoulders, back and buttocks helped when i took long rides in the car. lasted just a few months.
One thing that really helped with the cmp was socks filled with warm rice from the microwave and draped over my shoulders. Sitting up straight. Not overusing muscles groups. like holding the phone to my ear with my shoulder.
Finally it was the trigger point injections done under xray, they are the size of a pea, she injected each one. that was about a year ago. I am doing so well.
I think for me the cmp hit and then the fms. lots of people have cmp without having fms and vice versa. Just don't ever think it is all the same.
treatment for fms: stopped multi-tasking, driving fast, listening to loud music, doing too much in one day. wearing soft clothes. staying warm, keeping it simple because the least amount of anxiety/stress would throw me into a flare, taking naps, taking vitamins, I can't remember every single thing i did.
Meds for cmp: percocet, ultram, flexeril which also helps me sleep.
Meds for fms: neurontin and ultram for burning skin sensation. (see this is a definite fms symptom, for no reason by brain is receiving/sending pain messages. )
Meds from my psych: xanax then valium, wellbutrin, abilify, lamictal which also helps me sleep. (fms is cns, that means brain and that includes depression. and depression can cause more pain and so can anxiety, so my brain had to be treated too.)
this is not a progressive illness. Some people don't get better and some get worse. but it is not a given that you will get worse. fms is central nervous system. cmp is muscular trigger points.
I just wish that you would order the book because it would help you understand so much better. there are all kinds of misinformation floating around out there.
right now at the onset, i would rest, but don't lay in bed all day. and find a pain mgmt doc that treats fms and cmp. Mine was referred by me from my neurologist. Try not to be anxious. I was freaking out and it just made the fms so much worse.
I could say more but it would be easier on the both of us if you would just get the book.
I really hope that you are feeling better soon. I must admit that i had to quit working 2 weeks after onset. I couldn't move my head or neck. My back was like a weight lifters, all muscular because of the trigger points contracting the muscles. I had trp injections. but i didn't stay with that doc, because he didn't believe in fms. he thought i was crazy. Happens alot with fms. Because it cannot be explained. Well, it can but it is very complicated and some of it is based on theories.
Let us know how you're doing.