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Old 12-26-2008, 06:55 PM   #1
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Join Date: Mar 2008
Location: Austin TX USA
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janielou75 HB Userjanielou75 HB User
Doctors won't listen

I have had fibro for many years and finally got diagnosed as no Drs. seemed to believe me as I am sure many of you have experienced.
No one will give me anything for pain I don't know why.
There are drug addicts all over this town who don't need pain meds but they get them.
For over a year I have been telling two different Drs. about my bladder pain.
All they do is give me a test to see if I have a bladder infection but I know I don't, they are wasting everyone's time and sure enough I don't and they want me to take detrol and things like that.
I don't have a bladder control problem, just pain.
I did some reading and it could be intersticial cystitus something common among us fibro sufferers.
My friend said that next time the pain is really bad to go into the Dr. all hunched over and screaming in pain so maybe they will help then.
Has anyone else gone through this ?

 
Old 12-27-2008, 05:49 AM   #2
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Join Date: Sep 2005
Location: Pennsylvania
Posts: 840
Hope4All HB UserHope4All HB User
Re: Doctors won't listen

Quote:
Originally Posted by janielou75 View Post
I have had fibro for many years and finally got diagnosed as no Drs. seemed to believe me as I am sure many of you have experienced.
No one will give me anything for pain I don't know why.
There are drug addicts all over this town who don't need pain meds but they get them.
For over a year I have been telling two different Drs. about my bladder pain.
All they do is give me a test to see if I have a bladder infection but I know I don't, they are wasting everyone's time and sure enough I don't and they want me to take detrol and things like that.
I don't have a bladder control problem, just pain.
I did some reading and it could be intersticial cystitus something common among us fibro sufferers.
My friend said that next time the pain is really bad to go into the Dr. all hunched over and screaming in pain so maybe they will help then.
Has anyone else gone through this ?
Yes I have gone thru this. My regular PCP is awesome but he doesn't prescribe any pain meds to anyone So I had to go to a pain management...he allowed me to have 2 vicoden a day but when I told him I needed 3 a day (at that time I was in a horrible flare and 2 pills only gave me 4-6 hrs of semi relief) he then said we need to get you off these things! I wasn't addicted.....heck on a pain scale my pain was a 5 with the vicodin in me UGGH!

When I became pregnant I weaned off within 4 days and luckily I found out very early 4 weeks I was pregnant

I gave birth 4 weeks ago and I know I will have to look for another Dr and it terrifies me. So Im going to hold out as long as I can, I know why the good Drs are afraid to hand them out BUT we shouldn't have to suffer. I don't mind being monitored, tested or anything else to show im not abusing......but just don't tell me no!

 
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Old 12-27-2008, 03:47 PM   #3
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diva425 HB User
Re: Doctors won't listen

I haven't had the bladder problem, but I understand where you're coming from about docs and pain meds. I have found going to a pain doctor (phyziatrist) will lend to a more compassionate audience that will give pain meds. The only problem is that while they will dole out the medication in cases they feel are worthy, their ONLY concern is treating the pain...not what is actually causing the pain. They have no interest in getting to the bottom of the situation and making it better. They only want to treat the pain and have you come back again and again for treatment. That is not what I'm looking for in the long run, but when I am running out of pain meds (which I only take as needed) I usually go there first.

 
Old 12-31-2008, 03:25 AM   #4
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Join Date: Jul 2008
Location: DE , United States
Posts: 382
DeBeachSiren HB User
Re: Doctors won't listen

Hi,

Yes I had that problem with the bladder, I didn't have an infection, I had a tumor in my bladder. Yes it was cancer, but I've been okay for about 13 or so years now. So check it out. Also since I cut out most of the wheat/gluton/sugar thing I don't have the bladder spasms. I also don't take baths very often, I shower. Swimming pools cause me spasms, not sure if it's the cold water or the chlorine in it. I know some people get this, but unless I really do get an infection I don't have this problem anymore. There's lots you can do for this. Check out what trigger points refer pain to the bladder. No scented soaps, fabric softner, toilet paper or bleach that goes on anything close to your who-ha. Iron the crotch of your panties, some yeasts and bacterias live through the washer (even in hot water) and dryer. And wear no undies when possible. I drink cranberry juice a lot. In the femine hygiene section at the store there should be an over the counter medicine that turns your urine orange, Ozo or something like that. It helps bladder spasms and the feeling of having to pee. As a matter of fact this is one of the first things that I got before I was diagnosed with fibro/myofascial disease. So don't take it for granted that it's something you have to deal with. I did that and got cancer for dismissing it to just another symptom of fibro.

You might have to go to several doctors until you find one that works for you. I have had the same doctor and pain specialist for 17 years. They are wonderful, work with me as a team and we have the best treatments that work for me, plus I get injections in trigger point, nerve blocks and ablations that help for months or years and is worth a few days of uncomfortable just to not have to take medications. It's a pain in the butt, but please keep looking, there are good doctors out there. Go to your appt.'s armed with information, be assertive and don't let them talk down to you or intimidate you. You hire them just like you do a plumber, etc.......you get a bad plumber you fire him and get another one........same thing.

Devin Starlanyl MD, has fibro/myofascial diseases, she has great books. I suggest you buy the one with both things in the title. It tells you everything you can think of and more. You can copy things from her books too. Also write down a list of questions you want to ask the doctor. Start keeping a journal. Just keep it to symptoms, what you did to help, what you were given for the problem, what you ate and the date and time of a doctor appt and what happened while its still fresh in your mind. You'd be surprised how many patterns you'll see after a few weeks.

We're here for you and will help you with things to try to get you through til you find a good doctor. Hang in there sweetie.

DeBeachSiren

 
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