Re: Doctors won't listen
Yes I had that problem with the bladder, I didn't have an infection, I had a tumor in my bladder. Yes it was cancer, but I've been okay for about 13 or so years now. So check it out. Also since I cut out most of the wheat/gluton/sugar thing I don't have the bladder spasms. I also don't take baths very often, I shower. Swimming pools cause me spasms, not sure if it's the cold water or the chlorine in it. I know some people get this, but unless I really do get an infection I don't have this problem anymore. There's lots you can do for this. Check out what trigger points refer pain to the bladder. No scented soaps, fabric softner, toilet paper or bleach that goes on anything close to your who-ha. Iron the crotch of your panties, some yeasts and bacterias live through the washer (even in hot water) and dryer. And wear no undies when possible. I drink cranberry juice a lot. In the femine hygiene section at the store there should be an over the counter medicine that turns your urine orange, Ozo or something like that. It helps bladder spasms and the feeling of having to pee. As a matter of fact this is one of the first things that I got before I was diagnosed with fibro/myofascial disease. So don't take it for granted that it's something you have to deal with. I did that and got cancer for dismissing it to just another symptom of fibro.
You might have to go to several doctors until you find one that works for you. I have had the same doctor and pain specialist for 17 years. They are wonderful, work with me as a team and we have the best treatments that work for me, plus I get injections in trigger point, nerve blocks and ablations that help for months or years and is worth a few days of uncomfortable just to not have to take medications. It's a pain in the butt, but please keep looking, there are good doctors out there. Go to your appt.'s armed with information, be assertive and don't let them talk down to you or intimidate you. You hire them just like you do a plumber, etc.......you get a bad plumber you fire him and get another one........same thing.
Devin Starlanyl MD, has fibro/myofascial diseases, she has great books. I suggest you buy the one with both things in the title. It tells you everything you can think of and more. You can copy things from her books too. Also write down a list of questions you want to ask the doctor. Start keeping a journal. Just keep it to symptoms, what you did to help, what you were given for the problem, what you ate and the date and time of a doctor appt and what happened while its still fresh in your mind. You'd be surprised how many patterns you'll see after a few weeks.
We're here for you and will help you with things to try to get you through til you find a good doctor. Hang in there sweetie.