I am back, pls offer your feedback - Fibromyalgia Message Board

k2626 · 02-10-2009, 12:09 AM

Hi guys, I am back again. As many of you know I have had symptoms since June and no dx after thousands of dollars on tests-labs, MRI, EMG, full body bone scan, ultra sounds...

One week in June I started to get stabbing body pains, mainly in random toes, fingers, spine, ankle...though months before that I would get it in my eyes but I thought it was from revitalash. A few days after it all started I began to get what felt like a buzzing on my left foot on and off and extreme joint cracking all over-hundreds of times per day. Well months after I started to get muscle twitching all over, horizontal beaus lines developed on all nail, I would get random numbness in odd parts of my right hand. Also, I get some muscle cramps and now nerve pains.

I do not have the tender points. I have been tested for EVERYTHING. All I keep coming back to is fibro, or maybe lupus which may have not shown in my blood. I now have been getting stabbing pains in my left ribcage area as of today.

The worst when this was all hitting at once and I was getting THOUSANDS of muscle twitches per day...that all lasted one month. I now seem to have some good days, or a good week and then the pains start up again or the cracking etc... I guess these are flairs.

Any thoughts appreciated.....

Just not sure if one can have fibro without the tender points. My pains are either stabbing, shooting or burning nerve pains. Also, it is widespread ....

bluelakelady · 02-10-2009, 08:05 AM

hi,
symptomatically you fit. my personal opinion is tender points are overrated. if the doctor is even slightly off you will not respond. i have a feeling the use of tenderpoints is perhaps a possible aspect of fibro not the foundation for diagnosis. sometimes mine hurt and sometimes they don't.
have you discussed this with your doctor? i don't remember if you mentioned that when you were here before. up at the top of the fibro page there is a post from tkgoodspirit and it has a list of symptoms. if you have not already done so, may i suggest printing it out, filling it out and returning with it to your doctor.
when the twitches happen try not to fight it. it only makes them worse. i relax and do some deep breathing and tell myself to just trip out on what my body is doing. i will never stop being amazed at what our bodies can do while we simply watch.
peace,
blue

BelleoftheSouth · 02-10-2009, 08:54 AM

Hello. Have you been to a Neurologist? I had to go due to the electrical shocks in arms and hands when I sneezed just to make sure I didn't have problems in the upper neck and to rule out MS.

Good Luck and let us know how you're doing should you go.

Be Well.

Belle~

k2626 · 02-10-2009, 10:07 AM

Hi there, thanks...

Yes, I went to 3 different neuros, I had an MRI of head and full spine as well as an EMG--nothing found.

I also just get random pains in my stomach/rib area, chest, and eyes. Oh also odd pains in my teeth, like a sharp pain!

kirstee · 02-10-2009, 01:17 PM

When I had a really bad spill from my horse, I broke my collar bone and separated my shoulder. I was really messed up from that accident. Symptoms started showing up that seemed like my nervous symptom was irritated. I could scratch an itch on my neck, and my whole body would react with pain. It was really werid. Eventually this symptom died down, but I was left with the basic symptoms of FMS in its wake. I don't know if this helps you or not, but what bluelake says makes sense to me. Have you had any accidents or injuries? This is a common trigger of FMS.

Bye!
Kirstee