chilyrabit

Hi! I'm Kim. I'm a 37 yr old wife and mom. I live in W PA. I found this site over this past weekend when I had a health issue that I needed info on. I’ve been reading many of the threads and responses; trying to get a feel for the people from the site! I am very glad that I found this site..only wish I would have found it sooner!!

I was diagnosed with FMS 3 years ago after suffering for 12 years and being told I was crazy and I’m sure you all know how those stories go LOL. I also have migraines, shingles, vertigo (rarely), bulging discs in neck and only 1 kidney.

Recently, my neurologist had to take me off of one of my meds because it was causing kidney stones and w/ the 1 kidney…not good. Unfortunately, it just so happened that that pill was part of a nice little “cocktail” of meds that I took/take daily that had me feeling better than I have felt for years. I was still in pain, but it was manageable. It was livable. I was mostly happy, more good days than bad, didn’t look miserable all of the time, etc…

So, now I feel like I am back to square 1. The dr. put me on something else, and it is working a little bit but I am hallucinating, having horrid dreams. I also have been twitching a lot more than before. I shake a lot more than before. So, I go to dr. on Mon. to see what he says. It is so depressing to make progress and then have the ladder kicked out from under you. I wasn’t missing any work. I was going to take a class at the community college at night. Now, I’m back to missing work, etc…

I’ve had 4 things happen to me, 2 happen all the time and 2 have only happened once. I am curious if anyone else has experienced any of this? I have a sensation like pain in the skin of my arms and hands. Does anybody else experience that? I don't like to have my skin touched by anyone including me. I also have times when I lose consciousness for just a few seconds at a time. I can be doing anything, including driving when this happens. It is very scary. My neurologist thinks it is related to my migraines. Then, this past Sunday, my legs turned to rubber and I fell down. There was absolutely nothing I could do but try to use my hands to brace myself. Does anyone know what causes that? That was truly a horrible feeling. I hope it never happens again. I had one other really strange thing happen to me. One day, I lost both my vision and my hearing for about 3 minutes. I could still talk and function in all other ways. My husband took me and sat me down. When I could hear and see again, I was completely freaked out. Again, the doctor said it is related to the migraines.

I, like many of you am having a very rough time right now. This winter has not been good for me. I hate the cold and don't want to go out unless I absolutely have to. I think the pain is actually painful. Once you get too cold…you’re “toast”. Bad analogy, I know.

Does anyone else ever wonder or try to remember what it was like before the pain started? Can anyone remember? It is so sad, I can’t remember being a normal person. How do you forget yourself like that? Well, thanks for “listening”. Up until now, I really didn’t have anyone who understands to “talk” to. I think this site will be very beneficial.