Lonely,depressed due to chronic pain - Fibromyalgia Message Board

starflyer · 02-12-2009, 10:41 AM

i have been feeling very alone and depressed because of all the pain that I'm in. All I want to do anymore is sleep the whole day. I talked to my Dr. the last time I saw him and I asked him about Provogil to help me stay awake during that day. I'm just waiting to se if my insurance will cover it. If it does'nt I don't know what I'll do. I take 1400 miligrams of morphine a day plus oxycodone and sometimes all it does is just takes the edge off. I'm confused, if I sit up to long I get like a burning pain between my shoulder blades. And if I stand my lower back hurts real bad, so what am I supposed to do? I used to be very active, I'd walk everywhere, I still try but it's almost impossible. It gets harder every year. I try to take things one day at a time but it's very depressing. I maybe leave my apt. twice a month, once to see the Dr. and the other to go grocery shopping. I have gotten afraid to leave the sanctuary of my room. Someone please give me some advice, cause I'm tired of hurting

Rita27 · 02-12-2009, 12:48 PM

Hi Starflyer, I am so sorry. I know exactly how you feel about the pain. My pain is really bad at night (see my post) so I am kind of the opposite, I am actually AFRAID to go to sleep. None of the meds help me much and often the side effects are a problem.

I also isolate. I used to be extremely active, I exercised 5 days a week and walked my dog. In the past two years I have cut back so much that I virtually only walk around my house and yard. On good days I go to a pool and sauna at the gym I used to work out in, but I go only to relax. It hurts me to even stretch. I rarely leave my house, only if my husband takes me out or for doctor appointments or picking up prescriptions.

I do know what this is like. I'm sorry I don't have better advice. I often feel like my life is over at 52. It is depressing. Do you have anyone who visits you? I look forward to my son coming home and my sister calls me regularly. A pet is very comforting too.

rosebuddy · 02-12-2009, 05:11 PM

Maybe counseling would help. It did me. Also the pain meds are depressing your central nervous system. Do you take an anti depressant? I bought mandalas and colored them, it is very healing and relaxing. Do little things like bring home fresh flowers. Draw or just color with crayons and chalk. Put together puzzles. Maybe there is a support group that you could join. and then have lunch after. Is there a way, even a small way to help someone else it will make you feel so good. Maybe sponsor a child from an under developed country. It will get you out of yourself and get your mind off of your pain. And make sure that you are receiving the best treatments. Maybe there is a treatment like trigger point injections or phsycal therapy that would help. I am just trying to help. I hope you feel better soon.

chilyrabit · 02-12-2009, 07:25 PM

Of course you don't have to answer if you don't want to but what does your doctor say about the severe pain in between your shoulder blades? I'm curious because before I was dx'd with FM, and right after I had my son, I had a severe, sharp, stabbing pain in my right shoulder blade when I tried to sit up. I went for something like 6 weeks of PT along with deep tissue massage. It took a really long time, but it did get better. I still have pain there, but it is not debilitating like some of the other pain that I have. Do you get nerve blocks? I have bulging discs in my neck and also severe lower back pain which hurts if I stand to long, sit to long or pretty much any time it wants too! My neurologist gives me nerve block injections every 2 mo both in my neck and shoulders and my low back. I didn't think they were helping so I skipped them once........what a mistake. Now, I wouldn't miss them for anything. I saw that someone else already suggested an antidepressant. There is no shame there. We do what we have to. I once saw a REM doc and although I wasn't completely impressed with her personality; she said the worse thing a FM patient can do is to isolate themselves. Too bad you live so far away; we could do lunch! LOL I hope that you find something that works for you soon. Have a better weekend!

niecsey · 02-13-2009, 01:39 AM

Hi just to let you know as the others... we all undertsand most of us arnt as active or social as we used to be. My rooms my sanctuary too and l only go out when l really have too... docs, grocery shopping etc sometimes lm too sore to even do those! Good luck hun x