Ever feel like just screaming? - Fibromyalgia Message Board

4kids4me · 02-17-2009, 03:29 PM

I was recently diagnosed with FM. I'm mad. They put me on 300 mg gabapentin 2x daily, Robaxin 500 mg 2x daily, Ibuprofen 600 every 6 hrs, Elavil 10 mg at bedtime, Mxalt 10 mg for migraines, and Vicodin 500 mg as needed. I noticed a little tiny bit of improvement the second or third day I was taking all of these meds, and that's it. I guess I was hoping that there would be more improvement quickly. I go back to the doctor to get my meds adjusted on Thursday because the Robaxin and Elavil are not doing a danged thing and I'm so extremely frustrated. I'm so sick of being in pain and my nerves are fried. I've got 4 kids and a husband and I know I'm being a little hard on them. I JUST WANT TO SCREAM!!!! I know it won't do any good, but I don't know what will. Anybody have any ideas about what to discuss with my doctor besides just telling him "hey mr. doctor man, I know you're the doctor here, but these meds are doing what they're supposed to". I mean seriously, what the heck. I like him, he's a good doctor, but I'm just frustrated beyond belief. What do I do now?

chilyrabit · 02-17-2009, 05:21 PM

Oh yeah, I feel like screaming quite often lately. I wish I could tell you something like.........ask your doc to give you this med and you will be feeling great in a week. That's not the case though.

I was dx'd 3 yrs ago. I've actually had the symptoms for ~15 yrs. I have tried and failed about 10 different meds. I had found a med that I was doing really well on. It made my pain manageable, my mood livable (for those around me) etc... That med was dc'd ~2 wks ago. It was causing kidney stones and I only have 1 kidney. Now I'm back to square one--or at least I feel like I am.

Unfortunately, it is a process. We are all different and each medicine works different in our individual bodies. I was on Topomax and that is what worked so well for me. Then he put me on Zonegran. It didn't work at all. I just came home from the pharmacy before I got on the computer. This time, I am trying Tegretol. I guess time will tell. I didn't write this to be depressing. It is just reality. I have found this board to very helpful. It is nice to talk with others who deal with the same problems everyday of our lives.

I hope that your doc is able to help you and soon. Remember, if you're not getting anywhere w/ your doc; you can always change docs. I know it's not fun but sometimes it's a necessity.

Best Wishes.

4kids4me · 02-17-2009, 09:17 PM

No, I don't think that what you've said is trying to be depressing. I know where you're coming from. I guess I'm just feeling a bit of anxiety about the whole pain thing. I just want an end, and there is none, and I'm having some trouble getting my mind to wrap around it. I'm newly diagnosed, so I've still got a lot to learn and a lot of time to try new things. My doctor is a really great guy, and I like him. I don't want to change doctors, and I'm sure he'll be really understanding. I'm just really frustrated with the whole situation. I think I just need to really think about things and come to the understanding that this is a lifetime problem. It's hard, and I'm still pretty emotional about everything. Thank you for responding. It's really nice to know that I'm not alone, especially when I really feel so alone.

fastbreak08 · 02-17-2009, 10:10 PM

It's a process of finding the right medication or combination of medications. I can be a very rollor coaster type of process, but with a good doctor and lots of support around you, you'll find the right medications.

HopeLaughs · 02-18-2009, 07:52 AM

I'm sorry that you're on this roller coaster! I'm newly diagnosed as well, it's a tough hit, no doubt. I think it's important that we have support, and I know I don't really get that at home, so I'm coming here for it. It's kind of like networking. We can bounce ideas around, share new information, and sympathize. So, scream away, we're listening!