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Old 02-17-2009, 06:47 PM   #1
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Lizardwoman85 HB User
Unhappy Things getting worse, and a few questions

Hi everyone,

First, I must be in the early stages of Fibro? Because I read it is not progressive.....but I swear the last few months I've been getting worse and worse and am quickly losing more abilities to do things I used to be able to do. I am just finding I am having more pain, more frequently.

I mean before I would wake up maybe once a night, change my position and would be fine the rest of the night. Now I am waking up constantly and just feel like every part of my body that touches the bed is excrutiating. I also am noticing more moments where the pain hits like in a wave and a few times has knocked me off my feet leaving me grabbing for nearby objects. It is strange and rather frustrating since I haven't noticed a trigger yet.

I also was wondering does anyone else ever get these weird "twinges" where like it is just a small spot that feels like someone is shoving a hot knife into my body. It is such a sharp pain it takes my breath away and is very random and I get them all over and different times.

Currently I am on Pristiq, Cyclobenzaprine, Meloxicam, and Darvocet as needed (lately I've been having to take it more often :/). I also take 1000u Vitamin D, a multivitamin, Flaxseed Oil, and some other meds for other health issues.

But anyway, was just wondering about those things and also just need to talk about it a bit.

Thanks again friends,
Liz

 
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Old 02-17-2009, 09:14 PM   #2
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Rita27 HB User
Re: Things getting worse, and a few questions

Hi Liz, I am at the point where I never have a good day. I used to get to the gym 3 times a week, now I don't go at all. Just too much pain and my back and knees. There's nothing I can do without pain, not even swimming.

I can't sleep without a sleeping pill, I'm too heavy and I'm just so depressed. I have no pain meds, just anti-inflammatories and muscle relaxers. The doctors don't seem to take me seriously.

It is so depressing, I know. I try to go on with everyday things, but you're right, there are more and more things I just cannot do--like walk my dog which I used to love. You're not alone....

 
Old 02-18-2009, 01:30 PM   #3
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shabbychic HB User
Re: Things getting worse, and a few questions

hi
i dont know why people say fibro isnt progressive
mine has became so much worse and i also have tmj ad i.b.s among other health issues
you can get fare ups of fibro,which can last for days to get over.
hope iv helped a bit...fibro fog playing up haha

 
Old 02-18-2009, 05:46 PM   #4
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julie10 HB User
Re: Things getting worse, and a few questions

Hey Liz:

I'm not sure why anyone thinks this disease is not progressive, either. My husband just said to me last night that he thinks I'm definitely worse than I was 4-5 months ago. (I was working then, but since October, I have not been able to even go to work.)

I too have gained weight, and unable to too much of anything. I hardly go out anymore: I cannot afford to slip and fall on the ice, the cold is just too much to deal with, and I no sooner get someplace and I just want to be home again. I pray that another change of seasons in the spring will help to make me feel better.

As far as the twinges go, I experience the same thing. I clench my teeth so much these days! I read someplace someone describing them as beestings - I think that's fairly accurate. I have described it as feeling like someone is sticking me with a needle. I've joked with my husband that I really need to find that voodoo doll that someone is sticking with needles! It happens randomly, mostly for me in the evenings.

don't know if that's helpful or not...

 
Old 02-18-2009, 06:15 PM   #5
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Lizardwoman85 HB User
Re: Things getting worse, and a few questions

Quote:
Originally Posted by Rita27 View Post
Hi Liz, I am at the point where I never have a good day. I used to get to the gym 3 times a week, now I don't go at all. Just too much pain and my back and knees. There's nothing I can do without pain, not even swimming.

I can't sleep without a sleeping pill, I'm too heavy and I'm just so depressed. I have no pain meds, just anti-inflammatories and muscle relaxers. The doctors don't seem to take me seriously.

It is so depressing, I know. I try to go on with everyday things, but you're right, there are more and more things I just cannot do--like walk my dog which I used to love. You're not alone....
Hi Rita,

I'm sorry to hear you're struggling so much. I am still trying to get some exercise in (bought a used elliptical), but am finding it just...isn't happening. I try to force through it, but I think it's only making things worse when I push myself so hard. I was just hoping to lose some weight before things get worse, but I don't think I got to it in time :/

I only have the Darvocet from previous conditions. I tried getting something stronger, but my doctor too doesn't seem to think I need them. Although I'm about out of them :/.

Thank you for letting me know I'm not alone. It's nice to be reminded sometimes that there are other people out there who understand exactly what I'm going through.

Thanks for your support,
Liz

 
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