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Old 02-26-2009, 11:56 PM   #1
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Fibromyalgia and Estrogen

Hi, i have had excess estrogen for a while now and have been doing quite a bit of reading into it. What intrigued me was a listing i found for mild, moderate and severe estrogen dominance. I have majority of the moderate symptoms, but noticed that fibromyalgia was listed in the "severe" symptoms listing. So i was wondering whether sufferers here have had their estrogen levels tests and whether anybody has an estrogen/progesterone imabalance?

In addition to the excess estrogen, i've got an autoimmune thyroid condition called Hashimoto's, digestive issues and malabsorption, adrenal fatigue. Funnily enough, the moderate excess estrogen symptoms list thyroid and adrenal fatigue. In my case my thyroid and adrenal hormones are all out and so are my other hormones of estrogen, progesterone and tostesterone. I'm not on any birth control and i'm told fixing my thyroid and adrenal hormones can go a certain way in helping my estrogen levels lower. I'm also on herbs from a naturopath to help with my cycles and hopefully lower my estrogen.

Just thought i'd share this as there seem to be a lot of people with fibromyalgia. Some doctors also use this term with patients and tell them they need to learn "pain management", but if the issue is related to something else, then isn't it an idea to fix that something else so that you can get rid of the fibromyalgia?

 
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Old 02-27-2009, 08:11 AM   #2
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Re: Fibromyalgia and Estrogen

hi audrey,
facinating. thank you. i am on the other end of the spectrum. no estrogen anywhere. my thyroid is kept slightly hyperactive with drugs. adrenals are fine.
i had no idea one could have too much estrogen. makes sense tho.
getting your thyroid and estrogen/testosterone levels balanced will help alot.
due to other health issues taking estrogen is out.
it is a pleasure to meet you. i don't think we have spoken before.
peace,
bluelakelady

 
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Old 02-27-2009, 12:41 PM   #3
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Re: Fibromyalgia and Estrogen

yes..thatnks for that input. I am on HRT , I wonder if there is any effect with the Fibro and the HRT?
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Old 02-28-2009, 12:08 PM   #4
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Re: Fibromyalgia and Estrogen

Funny, my doctor just suggested taking some estrogen/progesterone as a way to HELP the fibro. I have never been on HRT, and I am way past menopause. I'm considering it.

 
Old 02-28-2009, 10:09 PM   #5
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Re: Fibromyalgia and Estrogen

I take HRT and if I didn't along with Fibro, I'd be locked up. I started my HRT a few years before I was actually diagnosed with Fibro-I was diagnosed last Sept although I know I had it for years before a DR would take all my symptoms into account and finally send me to Rheumy specalist. I started HRT in 2005 when I began to feel like my head was not centered, it felt like it was sitting on my right shoulder. I could not focus and I could not work like that so I went on HRT. I can't even imagine if my head still felt like it was on my shoulder along with the meno/fibro brain fog add in all the muscle/joint every aches OH & the fatigue and pure exhaustion! I would be an awful mess. So in that sense HRT helped pull me together somewhat, but I don't think it worked as a med for fibro. I take Gabapentin for fibro, along with lots of advil, sometimes T3's, somtimes Celebrex. I live in Canada and they are very cautious about prescribing anything that might really help ease all the symptoms of fibro. As an adult I wish I would be able to make a decision on what I feel might help me and I could be monitored-but NO that will never happen so instead I have to take all these gut eating meds that really don't help a whole lot. I take Gabapentin 300 about 4 times a day and I do think that helps the most of all. I was not able to take Lyrica it made my head feel so strange and I felt so off balance and hense I became anxious on top of it so took an anxiety tab and stopped the Lyrica. I have such a hard time dealing with the pain of my upper back,neck, up my head, sides of my neck, fierce headaches, across my chest, down my arms and across my lower back & my hips oh & my butt, can't forget that. Sometimes I just collapse on my bed with total silence as I am so sensitive to noise, I like to watch TV but the volume has to be really low-music is suppose to be soothing-but it just tenses me up and I feel frustrated and have to turn it off-right off. I just lie there in my quiet room & stare at the ceiling and wonder-why do I have to hurt so bad & get so freaking tired??? I vacumned the other day and was almost in tears trying to do it, and cleaning the tub-I could almost fall in as I moan in pain from my back! I have never hurt my back but it's soft tissue and muscle pain.

Back to the topic of HRT it may help with brain fog although the other day I made a tupperware container full of hard boiled eggs for a quick snack- my brain fog I had put them in the cupboard instead of the fridge, I wanted an egg & they weren't in the fridge, well I was going nuts trying to figure out what I could have done with them. I called my husband on his cell while he was at work and asked him why he took all the hard boiled eggs to work! My sweet husband already thinks I am a tad loopy so this didn't help. While making dinner I went into the pot and pan cupboard and low and behold a container of rotten eggs! ha! I was laughing so hard - what a goof ball.

Last edited by ebrena; 02-28-2009 at 10:26 PM. Reason: misspellings

 
Old 03-01-2009, 12:32 AM   #6
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Re: Fibromyalgia and Estrogen

Hi ladies, i'm glad this topic was of interest. Ever since my Hashimoto's diagnosis, plus all the other things found along the way, i've felt like helping as many people as possible. There are way too many people wandering around in the dark, knowing some thing is wrong, yet doctors refuse to do further tests or report you as being "fine" and your tests "within range". So after going through the doctor roller coaster and it finally taking 8 years to get diagnosed, i said i'd help out anybody i could as i don't want others going through the same thing as myself.

I have a friend who has gone through menopause and has all kinds of odd symptoms. Doctors have been no help to her either and basically they tell her it's all in her head. One did say it's possibly fibromyalgia, but told her they'd send her to "pain management" classes. So after reading the estrogen symptoms listing i thought i'd mention it on the relevant sections of the board. I know that menopause means lowered estrogen or insufficient estrogen, but i do believe that if the ratio of estrogen to progesterone is still out of balance, with the estrogen being more dominant, then issues can arise. Normally people and doctors assume that menopause means everybody should be treated identically and will need estra estrogen.

ebrena - i just wanted to mention that brain fog can be due to various issues. My brain fog was as a result of poor adrenal function, producing insufficient cortisol. Once i went on medication it all went away. I did some pretty odd stuff myself, which i'd never done before. I thought i was going crazy. I even had a minor car accident at one point as i'd hellucinate that the light's had turned green and all the traffic had begun moving, when in fact the light was still red and no cars were moving!! Luckily it was only a small ding and the man i hit in the rear was nice about it.

Lack of sleep or disrupted sleep can cause brain fog. My dad lacked B12, his doctor told him his B12 was fine. I put my dad on some B12 supplements and his exhaustion, moodiness, loss of interest in life all went away.

Often it's not just one thing which is wrong, but a lot of little things will be interlinked and often they are merely symptoms of the actual illness/disease you suffer from. In my case i solely focused on my anemia, yet it was linked to digestive issues which are linked to high estrogen and thyroid issues. At the end of the day it's like putting a jigsaw puzzle together.

I'm glad the HRT is helping those who are on it. Is HRT safe? i recall years ago how it was supposedly unsafe?

Last edited by Audrey-B; 03-01-2009 at 12:37 AM.

 
Old 03-01-2009, 06:51 PM   #7
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Re: Fibromyalgia and Estrogen

Hi again Audrey I too have so many endrocrine issues and you are right they probably all link together. I also have Hashimotos Thyroid was diagnosed in 1990-after many visits to my Endrocrine specialist we finally got everything ticking like clock work. I had a very difficult time with my thyroid because I had a male Dr who obviously had no clue about thyroid and women. Every time I got sick and went to see him he would up my synthroid until I was taking 250mcg. This in turn caused my pituatory gland to shutdown. I took on a whole different appearance, didn't even look like mysef, I looked like I had Cushings syndrome my face got so puffy and fat and red, I gained so much weight-thick padding between my shoulder blades I looked so round-shouldered. I was extremely tired & weak. The female Dr I had gone to see to have my synthroid medication refilled refused until I saw a specialist and then things got better. I am also anemic but just found that out and was put on Pallifer iron about 2 months ago and I am beginning to feel so much better already. Around the same time I was diagnosed with thyroid I was also found to be diabetic-so another tired thing. I was so tired from all these things. So through the years of discovery I lost a lot of time where I felt well. On top of it depression, you bet I was depressed!

HRT safe? I had done research prior to going on it. I don't smoke which is a concern- smoking and HRT. The study they had done when it came out that it was dangerous was done on older women in there mid 60's and older and some of them had pre-existing heart condition's. I would hope I will not need them in my 60's. I tried the organic way with herbs but it did nothing but upset my stomach. So you do what you have to do, all meds have huge lists of side effects so I took in the negatives and the positives and made the decision to take HRT.

It is a very interesting discussion as we are all different and have so many other issues and take different meds and react to them differently. Thanks for the topic.

Last edited by ebrena; 03-01-2009 at 06:54 PM.

 
Old 03-02-2009, 05:24 PM   #8
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Re: Fibromyalgia and Estrogen

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Originally Posted by ebrena View Post
Hi again Audrey I too have so many endrocrine issues and you are right they probably all link together. I also have Hashimotos Thyroid was diagnosed in 1990-after many visits to my Endrocrine specialist we finally got everything ticking like clock work. I had a very difficult time with my thyroid because I had a male Dr who obviously had no clue about thyroid and women. Every time I got sick and went to see him he would up my synthroid until I was taking 250mcg. This in turn caused my pituatory gland to shutdown. I took on a whole different appearance, didn't even look like mysef, I looked like I had Cushings syndrome my face got so puffy and fat and red, I gained so much weight-thick padding between my shoulder blades I looked so round-shouldered. I was extremely tired & weak. The female Dr I had gone to see to have my synthroid medication refilled refused until I saw a specialist and then things got better. I am also anemic but just found that out and was put on Pallifer iron about 2 months ago and I am beginning to feel so much better already. Around the same time I was diagnosed with thyroid I was also found to be diabetic-so another tired thing. I was so tired from all these things. So through the years of discovery I lost a lot of time where I felt well. On top of it depression, you bet I was depressed!

HRT safe? I had done research prior to going on it. I don't smoke which is a concern- smoking and HRT. The study they had done when it came out that it was dangerous was done on older women in there mid 60's and older and some of them had pre-existing heart condition's. I would hope I will not need them in my 60's. I tried the organic way with herbs but it did nothing but upset my stomach. So you do what you have to do, all meds have huge lists of side effects so I took in the negatives and the positives and made the decision to take HRT.

It is a very interesting discussion as we are all different and have so many other issues and take different meds and react to them differently. Thanks for the topic.
Iron deficiency (you do not have to be anemic) and thyriod esp hashimotos seem to go hand in hand.........
Have you also had your vitD levels done and tested for celiac they are also related too as is low B12 levels......

How are you going on the HRT? Mysister who has thyriod problems B12 def vit D def and a host of other things went into perimenopause early and suffered terribley she had it ..It helped her heaps she is off it now..

cheers

Last edited by robinegg; 03-02-2009 at 05:25 PM.

 
Old 03-02-2009, 11:58 PM   #9
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Re: Fibromyalgia and Estrogen

Hi Rainbow-I do give myself B12 shots pretty regularly, I can tell when I need a recharge of B12-my legs feel heavy and ache and I feel spacey. I also take Vit D-I have never asked about my D level but because of depression I read it helps- I take it with my calcium. I take a pretty high dose of D-2000mg it's the sunshine vitamin they say. I started perimenopause about 42 and actually went into menopause at 50.; The Hrt is good for me. My biggest complaint is I have such a bad short term memory it drives be batty. Sometimes my thought processes are so spacey I can't concentrate-so whatever that is. It became noticeable just over the past few months. I spend so much time in anxiety trying to find things I can't remember what I did with a minute before. I started taking Ginko Bibola and I really think it does help, but it could be mind over matter-who knows anymore-ha! I guess go with the flow and hope it all comes back to what it was.

 
Old 03-03-2009, 07:13 AM   #10
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Re: Fibromyalgia and Estrogen

Ebrene......Hi, my name is Lyn, I live in Michigan, originally from Canada and moved here approx. 18 years ago. I don't have much time now as I am going to my neurologist this morning. I also have chronic pain, fibromyalgia, chronic fatigue syndrome, Epstein Barr Virus, CMV, etc. etc. I am in the process of going to a Pain Management Clinic and have just had the "nerves burnt in my neck and shoulders" under radio frequency and my neck feels like I have a bad sunburn and up the back of my head. This time (as I have had it done before) it isn't helping my pain. I have been through failed neck surgery years ago and have titanium pins and plates and donor bones in my cervical spine. I am trying to read everything possible on the internet as my doctors have put me on so much medication and nothing is working. I was just reading about HRT as I know from years ago when the docs checked I was very very low on estrogen and progesterone and I guess testosterone. I have asked many times before if I could take anything for it and they gave me "vaginal cream" which I don't want to take like that. What kind of HRT therapy are you on. Is it in pill form or cream. Even if I could just rub cream on my arm it would be a lot better. Of course someone on here said that it helps for Fibromyalgia and so I wanted to know what you were taking.

Take care and I will send a longer post next time.

Lyn in Michigan

 
Old 03-03-2009, 07:04 PM   #11
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Re: Fibromyalgia and Estrogen

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Originally Posted by ANGELINMICHIGAN View Post
Ebrene......Hi, my name is Lyn, I live in Michigan, originally from Canada and moved here approx. 18 years ago. I don't have much time now as I am going to my neurologist this morning. I also have chronic pain, fibromyalgia, chronic fatigue syndrome, Epstein Barr Virus, CMV, etc. etc. I am in the process of going to a Pain Management Clinic and have just had the "nerves burnt in my neck and shoulders" under radio frequency and my neck feels like I have a bad sunburn and up the back of my head. This time (as I have had it done before) it isn't helping my pain. I have been through failed neck surgery years ago and have titanium pins and plates and donor bones in my cervical spine. I am trying to read everything possible on the internet as my doctors have put me on so much medication and nothing is working. I was just reading about HRT as I know from years ago when the docs checked I was very very low on estrogen and progesterone and I guess testosterone. I have asked many times before if I could take anything for it and they gave me "vaginal cream" which I don't want to take like that. What kind of HRT therapy are you on. Is it in pill form or cream. Even if I could just rub cream on my arm it would be a lot better. Of course someone on here said that it helps for Fibromyalgia and so I wanted to know what you were taking.

Take care and I will send a longer post next time.

Lyn in Michigan
Hi Lyn, poor woman you have been through it all. you are very brave to go through all that. I am on the lowest combination of HRT which is 0.623 estrogen and 2.5mg progest.

Lately I have been wondering if I am on enough replacement with the way my brain freezes up. It is embarrassing you have known a person for years and run into them at the grocery store-because you can't remember their name no matter what & I don't want to embarrass them by not remembering them.

I wouldn't even have to tell them as I have a face that expresses everything-happy, sad, worried & "I forget who you are"! Sorry! Before this took place I was putting stuff in a spot where I could find it fast when I needed it,ha! Now I have so many hidden treasures I pretty well tear the house apart to find it.

I did try some progest cream before I went on HRT but it didn't do anything at all. Good luck to us all in finding an antidote that will work,

 
Old 03-04-2009, 10:24 AM   #12
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Re: Fibromyalgia and Estrogen

Hi Ebrena,

Are you on pills for the estrogen? I was on a patch that I changed 2x a day. It was 0.1 mg. Thats a very low does. Now they changed med to a Spray tha I used every morning. I spray once on my arm every morning. Just started it today...see if it helps with the fog
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Old 03-04-2009, 02:12 PM   #13
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Re: Fibromyalgia and Estrogen

Hi Ebrena - as you have the Hashimoto's and all the other issues which a lot of people have as a side symptom to their thyroid issues, has your thyroid doctor ever tested your adrenal glands to see how much cortisol they are producing? If not, then they ought to as adrenals go hand in hand with the thyroid.

I used to have awful brain/head issues. It was like my brain would stop and i'd have to think rather than simply do something automatically. I'd also feel like i was hit by a bus. I became forgetful. It was awful, like i just wanted to crawl under the desk at work and forget about the world at one point. Once i began supplementing with cortisol i felt so much better. I now don't have to take the cortisol anymore as my Vit D has gotten up very high and that will help with the cortisol as will getting the thyroid T4 and T3 on target.

I wasn't aware how many problems out of balance hormones and lack of certain vitamins (which doctors don't even test for routinely) could cause.

I also learnt how having balanced hormones can help our digestion and our immune system. It's no wonder then that we all lack nutrients and get run down so easily. the problem is that nobody tells you all this unless you find a decent doctor and you learn as you go by talking to others and doing your own research into your health problems.

 
Old 03-04-2009, 04:51 PM   #14
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Re: Fibromyalgia and Estrogen

Hi Audrey, is the cortisal by prescription or is it a supplement? I haven;t seen my actual thyroid DR for years now but my GP when he takes blood tests says it is good. I do take vitamin D along with other supplements. It's 3:30 pm I did some housework and now I am on my bed again for an hour or so. Then I get up and do some more and back to my bed. Partly to rest my head and also my body aches from doing housework. What a boring life but I don't have the mental or physical energy to do much more. I scrubbed my tub and I practically laying on my side as my lower back and hips are so deeply achy. Whaaaaaaaaaaaaaaaaaaaaaaaaa

 
Old 03-04-2009, 08:14 PM   #15
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Re: Fibromyalgia and Estrogen

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Hi Ebrena,

Are you on pills for the estrogen? I was on a patch that I changed 2x a day. It was 0.1 mg. Thats a very low does. Now they changed med to a Spray tha I used every morning. I spray once on my arm every morning. Just started it today...see if it helps with the fog
Hi djl I am on low dose estrogen 0.625 and progestersone 2.5. I haven't had a hysterectomy so I can't take estrogen alone. I have never been worried about it and go for all my regular checkups and paps, mamograms etc. I remember my mother was on a really high dose for years, before they realized menopause could be treated with low dose HRT. She smoked too and took HRT, that's a no-no now but I'm sure it's still done.

 
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