Trying to figure out why I have FMS & CFIDS - Fibromyalgia Message Board

neveragain444 · 04-18-2009, 02:00 PM

I'm driving myself crazy trying to think of all the reasons behind why I have FMS/CFIDS and I take this questionaire test for different causes of chronic fatigue syndrome and checked off most every symptom of hypothyroidism, the other problems in this book didn't seem to really pertain to me, except sleep disordered breathing, which I already know there's a problem there, but it's not the reason behind all of this fatigue. The Fibromyalgia can't even be a reason behind the fatigue because the fatigue occurred years before the muscular pain did.

My thyroid tests have always been in normal range but I still keep in consideration how it is supposed to be genentically cursed to me and how I have almost every symptom. So I am trying an over-the-counter suppliment for it, Liqui-Kelp, daily Iodine, and want to see if it makes any difference. I also bought this suppliment for my liver, but I wanted to try the stuff for the thyroids first, I am in question though, how long I should give the thyroid suppliment to work before I try the other one. If one or the other helps, I want to know which one it is working.

There is the possibility I have a problem with my liver, so that is why I chose to try natural suppliments for it. Your liver can cause both chronic fatigue syndrome & fibromyalgia. I don't know what other organs may be capable of causing both of these problems but I know which one's I have problems with, which one's I may have problems with, and which one's I most likely don't, so that helps narrow it down, at least.

I don't care. I will try a suppliment for each and every organ in my body if I have to until I find out what the snot is the malfunction in my body causing these problems.

neveragain444 · 04-19-2009, 07:32 AM

I went ahead and took the liver support pills, the thyroid suppliment did not phase me, but this other stuff gave me an energy boost I haven't felt for a long time.

That stuff is awesome!

bluelakelady · 04-19-2009, 07:34 AM

hi,
give the thyroid suppliments at least 3 months.
sometimes there is no why behind what is. it just is. the day i quit asking where the why was i felt energized. i had not realized how much energy was being expended in worry and stress.
stress and worry are fibros favorite meal. using your emotions, fibro will eat you alive. relaxation and breathing deep and slow may help. it sure helps me. i take no meds for fibro. i exercise and diet and drink buckets of water. i keep it organic and simple.
peace,
bluelakelady

janewhite1 · 04-19-2009, 08:00 AM

"Why" is a loaded question. I used to ask why all the time, I eventually realized it was only making me unhappy.

Instead, I say, "It happened because it happened. What can I do to feel better?"

Be careful of supplements, especially be careful of taking a whole bunch. Vitamins and minerals are probably safe, at least as long as you don't overdose on the fat-soluble vitamins such as A, D, E. Your iodine supplement is probably safe and might help. (just don't take more than recommended, as very high iodine intake can also mess with your thyroid.)

Herb-based supplements, though... Some herbs are just like prescription drugs, only the content of supplements is not externally regulated, tested and verified. Pretty much any dietary supplement is legal until the FDA has proof that it's dangerous, which basically means it's allowed until people start dying. With drugs, the manufacturer theoretically has to prove the benefits outweigh the risks, at least in certain circumstances.

neveragain444 · 04-20-2009, 06:31 AM

What? Herbs won't really kill you, will they?

I am only taking one suppliment right now & it's somewhat energizing to me. It doesn't have any vitamins, just milk thistle, Dandelion, & such.

LOL. I cannot stop wondering why this happened to me. It's almost obsessive compulsive at this point. A diagnosis of CFIDS/Fibromyalgia does not explain jack snot to me...... I want to know the actual cause because without that, I cannot EVER get better, and there is no way I am going to sit back and say hey disease, go ahead and distruct my life another 12 years.

can't do it. stressful to my FMS or not.