Just been told i have fibro....
I was diagnosed a few weeks ago with Fibro. Iv been in limboland for years, trying to get a diagnosis. All the usual, MS and so on. My GP just brushed the idea off, when I mentioned to her that someone suggested Fibro. We all have aches and pains from time to time she said. I was then reffered to a an Orthapedics guy as I was experiencing pain in my chest. He did an xray and that was found to be clear, great news. However he asked if this was the only pain I was having. I did not want to appear like a hypochondriac and stated this, but said I was having pain in alot of areas around my body. He asked me where in particular. I said my back was the worst, along with neck pain, knee pain, wrist pain etc etc. He did a full examination and asked more questions. I said i was suffering from headaches, like cluster headaches, I was on medication for depression, I couldn't sleep properly due to the pain and night sweats. If I did manage to get to sleep I would then wake up still extremly tired and feel like I have been hit by a bus. I explained I get dizzy and the tiredness is not normal. In fact its a joke. I could sleep for England and still feel I need more.
I explained that I get what I call brain fog, my memory or at least short term memory is shot. If I do get any bursts of energy, and decide to do the garden or paint my hall, I get what appears to be payback for it.
I explained Im on Cyclizine for nausea and and gastro meds aswell.
After all this he said he wanted to assure me that my chest xray was fine and nothing to worry about. However there is a condition called Costiochondritis which can cause terrible pain in the chest. I said to him that when the pain hits its like having a heart attack, and is the scariest pain iv ever had.
He then went on to say I have Fibromyalgia and suggested I use a tens machine to help with pain as well as anti inflammatories. I have also just been told I have Trigeminal neuralgia, thats pretty painfull to.
I am glad to know whats wrong, but the pain has really kicked up a gear today and its pretty bad. I would give anything to be pain free for just a day.
I didnt realise this Fibro could be quite so bad. Im not sure why I get the chest pain or why iv got Trigeminal Neuralgia. Does anyone else get this, or am I alone with these ones?
I feel like a 90 year old and whilst im totally grateful to be alive, I should like some quality to it whilst im still around.
Anyway, sorry for moaning, would be helpfull to no if anyone else gets the same symptoms as me. Any tips for morning stiffness would help too.