Is there anyone here who's weakness is worst
in upper body (neck, shoulders, arms + hands)?
i walk with a cane (due to lack of coordination, leg weakness, pain, fatigue, spasms, sudden sharp pains in misc areas, etc.) but am having harder time getting around as my arms/hands can barely handle the cane anymore + more pain in upper body from using cane.
i know much of this is due to the degenerative disk disease + herniated disk in my neck (for which no surgeon will help me w/ due to my coagulation disorder that makes me too high risk 4 surgery ..arg...).
FMS most likely is causing this hightened pain perception than with normal ppl... but the weakness
has become very worrisome!
I was forced to use the motor cart in the store 4 the first time last week & i felt so defeated. I was happy to finally be able to see the whole store for the first time (usually i cannot shop longer than 15 min or so b4 i am ready to collapse), ....but, at age 42, i feel like a very old woman already & terrified how will i be 10 yrs from now. i'm getting worse every year + I am scared.
Also, more worrying symptoms: difficulty swallowing, painful larynx (its painful to talk, and
painful to sit at computer to type!) I rarely ever answer the phone anymore & often avoid friends or situations in which i might be forced to speak b/c it just hurts too much. Feel like i'm losing all ways of communication.
) (it's taking me so long just to type this!) Has anyone else got pain in their larynx (on top of everywhere else)?
Additionally: Wierd twitching comes + goes in random parts of body (sometimes lasting hours), vision changes, major loss of weight which i cannot regain 4 my life ....and ofcourse this bloody pain is RELENTLESS.
i've been suffering without any relief for over 7 yrs
now + i just dont know how much more i can take. I have tried evey suggested medicine, but find no relief in any of them. HOWEVER:
everyone says "But you look good!"
I appreciate their intentions, but to be completely honest, I would like to snap every one of their necks
. i am sick of being told how "well" i might look on the outside and politely thanking them while using all my very-limited energies
to contain the increasing violence i feel towards them.
(LOL! cant help but laugh at myself.... Sometimes its so bad, its funny.
sorry bout the rant.
cant type anymore.
thnx for any feedback, suggestions, ...and mostly: just 4 "listening."
wishing most pain-free days to u all!