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Old 01-27-2010, 01:47 PM   #1
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Hello from Ireland new member

Hello
I have been diagnosised with Fibromyalgia for about 1 year now, give or take a few months.
However I have had the symptoms for 3.5 year since the birth of my 2nd child.
May I join this forum please.
Thanks.

 
Old 01-27-2010, 03:39 PM   #2
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Re: Hello from Ireland new member

You just joined!!! Welcome Click 11.....I too have been diagnosed just over a year - this forum is fantastic - lots of great sharing and support - the stickies at the top of this page will give you lots of great info - I spent days gong through all the pages (still not done them all) gleaning loads of useful info - I'm just over the water from you in rainy England...
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Old 01-27-2010, 04:12 PM   #3
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Re: Hello from Ireland new member

Hello,
Thank you for the message. How do you get through your days with all the aches and pains?
Im still looking over all the info on here, its a great site.
Click11

Quote:
Originally Posted by thesweetlife View Post
You just joined!!! Welcome Click 11.....I too have been diagnosed just over a year - this forum is fantastic - lots of great sharing and support - the stickies at the top of this page will give you lots of great info - I spent days gong through all the pages (still not done them all) gleaning loads of useful info - I'm just over the water from you in rainy England...

 
Old 01-27-2010, 04:21 PM   #4
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Re: Hello from Ireland new member

I take vitamins/supplements/exercise/warm wraps etc - i've posted a full list somewhere on the board, I'll have a hunt for it tomorrow and cut and paste it into this post for you - I'm not in so much pain if I can stay out of draughts and extreme cold - a challenge in the UK to say the least!
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Old 01-27-2010, 05:14 PM   #5
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Re: Hello from Ireland new member

Hello From Ireland and Welcome here.

Much helpful information here with how we all manage our Fibromyalgia symptoms. Hope you can post some of your helpful ways and we can share
ours too.


Be Well
BeHappy2

 
Old 01-28-2010, 06:59 AM   #6
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Re: Hello from Ireland new member

Hi Click11 and welcome...

~Belle~

 
Old 01-28-2010, 07:12 AM   #7
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Re: Hello from Ireland new member

Welcome Click11!! Hope you find this site helpful. Lots of great info and people on here!
Cat

 
Old 01-28-2010, 07:58 AM   #8
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Re: Hello from Ireland new member

HI Click

Well here's the list of things that help me - be warned it's long!!...
VITAMINS:-
Vitamin D
Vitamin B Complex
Multi Vitamin
Magensium
Glucosamine Sulphate
Ginkgo Biloba
Fish Oil

I've recently seen a nutritionalist who has also recommended
Vitamin C 1000mgs day and night in winter (half that in summer)
Ultramuscleaze
Multigeneics ( a good multi vitamin and mineral)

With these I'll able to drop the magnesium, the multi vitamin I'm currently taking and vitamin B complex
I also take a probiotic twice a day, aloe vera concentrate once a day and to help me sleep at night Nytol Herbal which contains hops, valerian and passion flower

There is a good sticky at the top of this page with great info on re vitamins

OTHER THINGS I DO:-
I use a light box daily
Exercise ususally daily: pilates/low impact step/low impact aerobics/aquaerobics/swim/walk
Daily stretches
weekly massage with sports therapist
Monthly hot stone massage
Use my massage bed as and when
Trigger point release with physio
Hot tub as and when
Hot showers
Heated neck wraps
Heated pads (sitting on one now!)
Heated car seat
Wear hats/gloves/scarves when cold
Wear layers when cold
Avoid air conditioning/draughts
Sit at laptop for no more than 30 mins and then stretch
Keep changing positions on sofa/chairs
2 to 3 litres of alkaline water daily
Avoid processed foods
Avoid sugary things (very difficult for me)
Lots of fruit and veg
Positive Self Talk
Get others to help eg carrying shopping
Visioning
Meditation (just started)
Read lots on FMS
Holiday in warm climates as often as I can!!!

And that's it - and I wonder why i don't have any time in the week, I have a family - husband and 2 children who are growing up fast a 21 year old at uni and a 16 year old plus lots of friends - I run my own business but have had to reduce to 3 days a week - which is a challenge. I need the time to do the above and if I don't do the above I flair which then means I'm in sooo much pain I can hardly walk and need to rest....I'm also doing evening class once a week to learn italian as a key component of my strategy is to move to italy to the warmth - off to look at 4 plots of land in 2 weeks. So a full life which I manage as best as I can doing my list above.....many of the things on this list are things I've picked up from this forum and from reading - very little if any from medical professionals - keep an open mind is my philosophy as just one small thing that you do differently could be the key for reducing/minimising the pain - here endeth the lesson for today!!!
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Old 01-29-2010, 02:18 AM   #9
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Re: Hello from Ireland new member

Hi Click,

Welcome, I'm also from Ireland! I have been on these boards for quite a few years now and I don't know how I would have survived without them.

Like so many of us you may find that doctors will only help so much and it's up to you, with the help of others here, to get yourself through the tough times.

Do you have any of the non-physical things that go with FM, like anxiety?
I find I can at this stage manage the pain fairly well but the anxiety just gets to me,Ahhh!

Best wishes to you, you have found one of the best places for support on this board, people are great here,so caring.
Hopeful

 
Old 01-30-2010, 09:21 AM   #10
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Re: Hello from Ireland new member

Quote:
Originally Posted by HopefulDoll View Post
Hi Click,

Welcome, I'm also from Ireland! I have been on these boards for quite a few years now and I don't know how I would have survived without them.

Like so many of us you may find that doctors will only help so much and it's up to you, with the help of others here, to get yourself through the tough times.

Do you have any of the non-physical things that go with FM, like anxiety?
I find I can at this stage manage the pain fairly well but the anxiety just gets to me,Ahhh!

Best wishes to you, you have found one of the best places for support on this board, people are great here,so caring.
Hopeful
Hello,
Thanks for the reply. Where in Ireland are you from? Im in the southeast.
I dont have non Physical things that happen too often, just really fed up with things when I have a flare up. I attended a pain management course for FM about 8 months ago and was thought how to deal with your emotions and anxiety etc quite well. Ive just started on some new drug and have 3 months to see if they work..if they dont my Rheum doctor said there is no point in ever coming back to see him again. Its the end the line. Ive only seen him 4 times ever since last october. I was seeing another Rheum doctor before that for a year but he moved to Dublin, so I got tranfered to the new doctor. The first doctor was so unless and very very rude. He had a terrible bedside manner. If I hear the words "there is no magic cure" one more time from a Rheum doctor Ill scream.
So the next step in to see a pain managment specialist, who's waiting list is a year. That doesnt do me much good!
I also have a few other things going on I have a underactive thyroid for 9 year now, its under control with Drugs. Has anyone heard the connection between your thyroid and FM?
I also have been diagnosised with Osteoarthritis through a MRI about 3 years ago. Also Ive suffered badly with lower back pain for nearly 22 years.. since i was a teenager. Over the year the problems have worsened.Now I have back pain everyday and flare ups/muscle spasms at least twice a month to the point I get stuck and cant move at all.
Also I have SPD/Pelvic pain and hip pain since my 2nd pregnancy 3.5 years ago.
So with everything going on the Rheum doctor doesnt know what to treat, so has decided if this latest treatment doesnt work. He wont treat anything!!
Im feeling very annoyed by the wholething.
thanks for reading,
Click

 
Old 01-30-2010, 12:20 PM   #11
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Re: Hello from Ireland new member

Isn't it very difficult to find doctors who actually care and have a good bedside manner?

There are so many symptoms with FM, every day there's something causing a problem. Thyroid issues seem to be quite a frequent one, I have nodules on mine, I'm told my levels are in 'normal range' but we all know 'normal' can be different for people, but try telling the docs that. Also, digestive problems, I have a hiatus hernia and acid reflux. Like you, click, I suffer a lot with pelvic pain.

Things got worse for me after I had my 3rd child so childbirth just doesn't seem to help.

FM is so frustrating because nobody has an answer. By the way, I'm also in south-east.
Hopeful

 
Old 01-30-2010, 12:27 PM   #12
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Re: Hello from Ireland new member

Welcome Click11. Im newly diagnosed right before Christmas.

 
Old 01-30-2010, 12:51 PM   #13
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Re: Hello from Ireland new member

Quote:
Originally Posted by HopefulDoll View Post
Isn't it very difficult to find doctors who actually care and have a good bedside manner?

There are so many symptoms with FM, every day there's something causing a problem. Thyroid issues seem to be quite a frequent one, I have nodules on mine, I'm told my levels are in 'normal range' but we all know 'normal' can be different for people, but try telling the docs that. Also, digestive problems, I have a hiatus hernia and acid reflux. Like you, click, I suffer a lot with pelvic pain.

Things got worse for me after I had my 3rd child so childbirth just doesn't seem to help.

FM is so frustrating because nobody has an answer. By the way, I'm also in south-east.
Hopeful
Hello,
Yes I really cant believe how hard it is too fine a nice caring doctor, well auctually there really isnt any choice. At the pain managment course they covered your relationship with your doctor. We were told to not to annoy them with more than a few questions, and they think they are gods. The best thing to do is to treat them like gods. I couldnt believe my ears.
I also have the acid reflux, what is a hiatus hernia? What does nodules mean? Is it painful?
Like you my range for my thyroid is normal, but I dont feel normal. My doctor just poo poo my questions when I ask about it.
How do you manage with having 3 children?
Where is the southeast do you live?
Take care
Click

 
Old 01-30-2010, 12:53 PM   #14
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Re: Hello from Ireland new member

Quote:
Originally Posted by mom477 View Post
Welcome Click11. Im newly diagnosed right before Christmas.
Hello, Just saw your post now.
Thank you for the welcome.
How are you doing now since Christmas?
Click

 
Old 02-01-2010, 11:41 AM   #15
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Re: Hello from Ireland new member

Quote:
Originally Posted by click11 View Post
Hello,
Yes I really cant believe how hard it is too fine a nice caring doctor, well auctually there really isnt any choice. At the pain managment course they covered your relationship with your doctor. We were told to not to annoy them with more than a few questions, and they think they are gods. The best thing to do is to treat them like gods. I couldnt believe my ears.
I also have the acid reflux, what is a hiatus hernia? What does nodules mean? Is it painful?
Like you my range for my thyroid is normal, but I dont feel normal. My doctor just poo poo my questions when I ask about it.
How do you manage with having 3 children?
Where is the southeast do you live?
Take care
Click
Hi Click,

I used to treat the doctors like they were different, better than me, but not anymore. They are only human like the rest of us but have been idolised for too long.They may have studied their subject for years but many other people have studied long and hard for their particular careers too. I now say what I feel I need to say. I'm lucky to have a great GP, but any of the 'specialists' I've seen have been so full of their own importance!

A hiatus hernia is when the stomach pushes through the diaphragm.It can be very painful but the PPI's help the acid.

The nodules (growths) on my thyroid aren't painful, I did have difficulty swallowing for a while which I have to say was worse than anything else because I was afraid to eat out anywhere, but thankfully that has improved. Have to have bloods and ultrasound done every 6 months to check levels and that nodules haven't grown.

I haven't been able to work full time since all this FM etc. started a few years ago and I wish I could go out more with the kids but one good thing that has changed since all of this is the fact that I'm not a people pleaser anymore.Would you believe that an Irish Rheumy wrote a great book about people with FM being people pleasers and he feels this is one of our main problems. Great book!

Hope you're feeling a bit better having found these healthboards. Like most of us you'll probably find yourself on almost all the boards here as we have so many symptoms I'm in KK, where are you?

Take care of yourself,
Hopeful

 
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