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Old 03-10-2010, 07:07 PM   #1
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could I have Fibromyalgia?

I have been sick for 3 years. Extreme fatigue, weight loss, shortness of breath, heart palpitations, IBS, constipation, dizziness, brain fog, tremors, hormone imbalances (low cortisol, testosterone,etc). I cannot tolerate the ehat, and get cold very easily.

I battled with this for a long time. 6 days ago, I developed a new symptom. I now have very deep aching all over my body. My joints ache in the knees, legs, hands, feet, writs, ankles, back, neck, etc. I get tingling and a burning sensation all over my body. The aching is very deep. It is the most horrible pain I have ever had.

whats your opinion? Do you guys have pain this severe?

Last edited by DIAL; 03-10-2010 at 07:46 PM.

 
Old 03-10-2010, 07:50 PM   #2
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Re: could I have Fibromyalgia?

That is a whole lot of symptoms that need to be diagnosed by a doctor. First you need to rule out other medical conditions ... All your symptoms could be related to your thyroid or your age or any number of things. From all that you describe doesn't sound like Fibromyalgia. good luck.

 
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Old 03-11-2010, 11:36 PM   #3
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Re: could I have Fibromyalgia?

Quote:
Originally Posted by AnnD View Post
That is a whole lot of symptoms that need to be diagnosed by a doctor. First you need to rule out other medical conditions ... All your symptoms could be related to your thyroid or your age or any number of things. From all that you describe doesn't sound like Fibromyalgia. good luck.
I haven't come to this diagnosis lightly. I have been going through testing for 3 years with no answers.

Here my symptoms
My Symptoms over the past 3 years

• Chronic Prostatitis
• Walking pneumonia
• Extreme fatigue and weakness
• Dizziness
• Brain fog
• Shortness of breath/become winded very easily
• Rapid weight loss, lost 30 pounds in 3 months. Went from 170 lbs to 140
• Loss of muscle mass
• Short term memory loss, poor recall (forgetfulness)
• Aches and pains
• Cold hands and feet
• Irritable bowel syndrome
• Constipation
• Indigestion
• Hyper sensitivity to chemicals and medications
• Cannot no longer tolerate the heat in the summer, very intolerant of hot weather
• Food allergies, very sensitive to dairy. Never had this problem before
• Hypoglycemic crashes, sugars dropping rapidly 115-70 in 2 minutes. This causes shakiness, feeling heavy and sick
• Tremors
• Heart palpitations
• Ringing in ears
• Sensitivity to cold temperature
• Numbness in hands
• Headaches
• Irritability
• Malaise/lethargic
• Apathy
• Deep body aches, joint aches, burning, and tingling


Now look at the symptoms associated with Fibromyagia

Pain - Fibromyalgia pain has no boundaries. People describe the pain as deep muscular aching, throbbing, shooting, stabbing, or intense burning. Quite often, the pain and stiffness are worse in the morning, and muscle groups that are used repetitively may hurt more.12 In addition, the severity of regional pains (particularly those in the head, neck, shoulders and lower back) are a strong predictor of a person's overall pain rating.13 The muscles in these painful areas can feel tight, knotted and rope-like. Pressing on the firm, knotted region hurts and often causes the pain to shoot to other muscles when a myofascial trigger point is present.

Fatigue - This symptom can be one of the most incapacitating for people with fibromyalgia. Patients may feel as though their arms and legs are weighted down by concrete blocks and their bodies may be so drained of energy that every task is an effort.7

Memory and Concentration - Difficulty concentrating and retaining new information may seriously interfere with everyday mental tasks.14 This symptom is referred to as "fibro fog" and may hinder job opportunities. In particular, fibromyalgia patients have serious difficulty retaining new information if they are distracted.15

Sleep Disorders - Patients report trouble falling asleep and more importantly staying asleep, but the unrefreshing quality is what makes the disorder much worse than insomnia. Repeat arousals prevent patients from reaching deep, restorative sleep.16 As a result, the night is spent in "quasi-sleep" and patients wake up feeling as though they have been run over by a Mack truck. An overnight sleep study will likely show repeat arousals with bursts of awake-like brain activity occurring throughout the night, but a specific sleep disorder may not be identified.17

Exercise Difficulties - Moderate intensity exercise activates a powerful pain-relieving system in healthy people, but it makes the pain of fibromyalgia worse.18 This is why initiating an exercise program may make you achy and tired. However, if you do not exercise on a regular basis, the performance of normal daily living activities will start to cause more pain. Rather than give in to the increased pain sensitivity related to exercise, patients are advised to do mild exercise in short intervals (such as five minutes at a time) to keep the muscles fit while not over-taxing them. A study in Sweden revealed that half of the fibromyalgia patients found it impossible or difficult to climb stairs and a majority of patients could not run. Just standing for five minutes was extremely taxing to one-fourth of the patients.19

Irritable Bowel Syndrome - Constipation, diarrhea, frequent abdominal pain and bloating, abdominal gas, and nausea represent symptoms commonly found in roughly 40 to 70 percent of fibromyalgia patients.20

Chronic Headaches - Recurrent migraine or tension headaches are experienced by 50 to 70 percent of fibromyalgia patients. Most headaches are rated as severe, occur at least two times per week, and often have a migraine component.21 Referred pain from myofascial trigger points in the shoulder, neck, and head muscles are suspected to be responsible for most tension-type headache and also play a role in migraines.22

Jaw Pain - Temporomandibular joint dysfunction causes tremendous jaw-related face and head pain and affects one-quarter of fibromyalgia patients. Typically, the problems are related to the muscles and ligaments surrounding the jaw joint and not necessarily the joint itself.23

Other Common Symptoms - Non-cardiac chest pain, acid reflux, irregular heart beat or palpitations, shortness of breath, numbness and tingling sensations, the feeling of swollen extremities, chemical sensitivities, nasal congestion, premenstrual syndrome and painful periods, irritable bladder, interstitial cystitis, vulvodynia (vulvar pain), difficulty focusing eyes, dry or burning eyes and mouth, dizziness or feeling faint, profuse sweating, muscle weakness and balance issues can occur.24,25,26 Fibromyalgia patients are often sensitive to odors, loud noises, bright lights, some foods, and often the medications that they are prescribed

 
Old 03-12-2010, 03:59 AM   #4
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Red face Re: could I have Fibromyalgia?

Hi, have you been to a reumetolagist, they are the ones that have to diagnoise you, and it is only by ruling everything else out first to be sure you do not have underlying medical issue. To me it does seem like you could be dealing with fibro. But, you must rule out everything else. I did not even know I had so much pain in the pressure points untill the reumy checked them. Hang in there, I hope you get a diagnioses soon. Kay

 
Old 03-12-2010, 05:46 AM   #5
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Re: could I have Fibromyalgia?

Quote:
Originally Posted by wondering kay View Post
Hi, have you been to a reumetolagist, they are the ones that have to diagnoise you, and it is only by ruling everything else out first to be sure you do not have underlying medical issue. To me it does seem like you could be dealing with fibro. But, you must rule out everything else. I did not even know I had so much pain in the pressure points untill the reumy checked them. Hang in there, I hope you get a diagnioses soon. Kay
Thanks Kay. Im trying. this is the worst pain I have ever endured. I can find a rum doc any sooner then the 28th of April. That's a long time to wait in pain. I'll try to find one sooner.

 
Old 03-12-2010, 06:03 AM   #6
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Re: could I have Fibromyalgia?

Dial, sounds an awful lot like fibro, some similarities with lupus. I'm sorry you are feeling so absolutely horrible. I think you are hanging out in the right place here. On past blood tests, how does your calcium look -- is it borderline high? Have you had a major injury -- car accident, fall -- or a major stress season? Pain specialists can also determine whether you have FM--can you get to one of those faster than the rhuemy. FMers, by some research, tend to gain 60 lbs over the course of their condition. Weight loss, though, can happen when pain is so great you get nauseous. 30 lbs is a lot to lose; I've been in line for the 60 lbs weight gain mostly, but I did lose that much one time when I was dealing with intercostal neuralgia. Back then I couldn't even eat crackers; usually when I go through a bout of months-long nauseousness, all I can eat are carbs like crackers; hence, the weight gain. To answer your question, you have a lot of the FM/myofascial pain symptoms and some lupus ones from what limited study I've done on that stuff. The low testosterone is also a biggie--it can cause serious sleep problems, which in turn can cause other serious junk. Best wishes to you, and sorry you are going thru this mess.

Last edited by baserockermom; 03-12-2010 at 06:58 AM.

 
Old 03-12-2010, 02:48 PM   #7
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Re: could I have Fibromyalgia?

I am a police officer, was TASERED in training right before I got sick 3 years ago. It threw my back out and was 50,000 volts. Then, last year, I was in a bad car accident that meesed up my back even more.

A doc beleives I have a Mycoplasma infection that may be causing my problems.< edited > Reasearchers have found a corrrelation between autoimmune diseases like lupus, and chronic syndromes like Fibro and CFS. They have found that Mycoplamas can be the root cause of fibromyalgia. I recommend you guys really research it. It is new cutting edge research right now, and the man behind it is extremely well known and reputable. He has published over 550 peer reviewed journals.

They also discovered a new virus called XMRV last year. Look this up as well. XMRV virus has been found to be a co-infection with CFS patients.

I have suspected I may have Lymes, but not have reallly looked into this yet.

I am seeing some pain specialists as well at the moment.
thanks.
Seriously, research what I just posted, you will be amazed at whats out there if you look. < edited >

you guys may find some real answers as well. You can order a test that is re-embusrable by insurance for MYCO from VIP labs.

I appreciate the help. my life has become a complete nightmare now. I wish it wern't so, but theres nothing I can do at the moment.

Last edited by hb-mod; 04-08-2010 at 04:13 AM. Reason: Please do not suggest internet searches, per Posting Policy. Thanks!

 
Old 03-12-2010, 03:20 PM   #8
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Re: could I have Fibromyalgia?

Dial, I'll look into that research. Thanks for the tips. And sir, I wouldn't doubt for a second that you're dealing with the same set of junk. The taser incident and the wreck -- it's uncanny how many of us can trace back to some huge trauma. Thanks again for the info.

 
Old 03-12-2010, 03:57 PM   #9
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Re: could I have Fibromyalgia?

< edited > you will find a wealth of info on firbomyalgia and how it ties in with Mycoplasma. Mycoplasma has no cell walls, and it can hide from your own immune system by invading your cells. You may never know you have it. Like Lymes, its hard to find, hard to track, and hard to kill. < edited >

Last edited by hb-mod; 04-08-2010 at 04:14 AM. Reason: Please do not suggest internet searches, per Posting Policy. Thanks!

 
Old 08-09-2010, 12:24 AM   #10
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Re: could I have Fibromyalgia?

If you are sincerely asking for my opinion then the symptoms you describe are just like mine and my diagnosis was a Parathyroid tumor. Almost all doctors do not think to look for this because they are wrongly taught that it is a rare disease. The fact is, it is "rarely" diagnosed correctly. Unfortunately the NIH guidelines tell drs that a calcium level in the 10 range is okay, they disregard many have a low Vit D level and they don't have a clue about a correct PTH (parathyroid hormone) level.

Thanks so much for listening and I wish you the best of luck.

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Old 10-21-2010, 09:08 PM   #11
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Re: could I have Fibromyalgia?

Yes, it does sound like Fibromyalgia. I was xrayed head to toe and poked and prodded. Also there are 21 trigger points and I had most of them. The brain fog days I might as well stay in bed as I forget everything and its futile to get much acomplished. I gave a little info to a few people here which might help you. Good luck.

 
Old 10-22-2010, 08:20 AM   #12
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Re: could I have Fibromyalgia?

You do have a lot of symptoms of fibro, but there are a lot that are not. It may be you have fibro or something else or you may have fibro AND something else. The only thing you can do is keep pressuring the doctors.

First step is to get your pain under control .. Next step answer the non fibro symptoms. Hopefully you get the answers you want / need to hear. My prayers are with you. As a male, I know from personal experience of how difficult it is to be recognized as a fibro sufferer.

Also, you may want to have your testosterone tested. Chronic pain can affect how much is produced. I'm 28 and am having to be on testosterone supplements.

My prayers are with you and your family.
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Old 10-23-2010, 07:53 AM   #13
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Re: could I have Fibromyalgia?

Hi, I got fibro from a serious back injury. Now my back is fine but the fibro is a nightmare.

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Old 10-23-2010, 10:29 AM   #14
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Re: could I have Fibromyalgia?

I have all the symptoms that you describe. It's a nightmare. Here is how I got myself about 50% better. Hyaluronic Acid (bought at the health food store). Oxycontin, theraputic dose vitamine B, magnesium oxide and I slowly worked my way up to doing 20-30 minutes daily on the treadmill. I also had to diet off the 40 pounds I put on when I first got this illness. I do slow gently stretches off and on during the day when I remember. When I have a bad brain fog day I try to limit my errands etc. Baclofen or flexaril also help.
I can't believe so many people are describing my symptoms. I also have chronic fatigue and I find now that getting lots of rest helps. On a good day I over do it and that is bad as it then takes several days to recover from that.
Try to be strong and work thru the pain. I have had this for 9 years. The first year I could hardly walk. We have worked so hard that our bodies seemed to develop this in protest. Lots of stress also helps this illness move in. Good luck to you and hang in there for the better days ahead.

 
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