I don't post too much, but I read alot of comments and take in all the information. I would like to know how to accept the diagnosis of Fibro. I have had it for three years and despite trying almost every kind of med, I am really feeling no better. My doctor is okay, but I believe he writes me new scripts just to appease me. I know this sounds ignorant, but does Fibro ever go away, or do we have it to some extent or another forever?? I am 43 and I feel like I am 93. I am married, have one child (age 11) and only work part-time (3 days/wk) and I feel like I am at the end of my rope. I am concerned about my future both physically and financially. I keep waiting for the day I will wake up and feel good and it never happens. There are days where I feel like taking my whole bottle of pills to make it all go away, but I won't do that because of my family and my faith.
I would love to know how you all cope.
Thanks for listening...
No it doesn't go away, but you can minimize your symptoms by diet changes and exercise. I have given up wheat, sugar and caffeine (including chocolate) and all were addictions for me. After only a few days none of them has tempted me in the least. They make me nauseous to think about them. My digestive system works far better. I walk every day at least a bit and up to a half hour; I hyper stretch all my major muscles daily. I'm 56, have had fibro nearly all my life and I work full time. Yes I have pain all the time, but I have joy too, and self confidence. I couldn't have that if I let this condition control me. Take back your life Pam.
Hi Pam I just want you to know that I know exactly how you feel. I was diagnosed 20 years ago and up until now I have had some what I call good days over the years when things seemed to be going right in my life but they didn't last long. I was told by numberous docs and specialists that I would have it for the rest of my life so it was up to me to make the best of it. In the beginning I was used like a guinea pig to the point that up until recently I was only taking tylenol that you buy over the counter. I have other syndromes that they say are common in fibro sufferers, such as IBS, TMJ, and have arthritis in my neck and knees. I hope for you that you have good support from your family and friends because that will make some difference. I have recently applied for disability for which I was denied even though my doctor stated I will never be gainfully employed and I do not have a spouse to help support me. So if you have that be thankful. Keep your chin up for you and your family, I know it is hard at times cause I too feel I would be better off not living through this hell, especially knowing it will never go away, but I also know the more depressed I get the worse the pain is. Try to control it before it controls you
Hi Pam - I think that is really an interesting question - like Christine I "manage" fibro better now I know what it is through gentle exercise/stretching/heat/ensuring I have balance in my life/vitamins etc etc. My fibro was triggered by a car accident caused by someone else and I'm currently involved in claiming compensation (3 years on and little progress) I have been examined by an independant consultant rheumotolgist who has stated that he thinks I "might" recover by the end of this year though he did qualify that statement by then saying that was an optimistic view - the reason why he states that I might recover is because of my positive attitude and the exercise/stretching etc that I do.....I sure hope he's right - though can I tell any major difference from 18 months ago when I learnt how to manage the condition better? - NO. What I do know is that as I learn new things that will help me I can make small incremental steps - whether this will "heal" me I don't know - time will tell on that one!
I feel just like you do and I'm in my 20s.. I guess the fact that I already kinda knew I had fibro, helped a little. Also, I was so tired of feeling like an insane person who's just seeking for attention or whatever that I was begggging for some kind of answer or diagnosis.. So in a way I'm glad I got diagnosed. Yeah it's basically a chronic condition, but I'm still hoping that they'll come up with a medicine that actually works without a million side effects.. The term fibromyalgia hasn't been around that long anyway.
Thanks "sweetlife" for your encouraging words....would you mind telling me what vitamins you take. I know everyone's body is different, but I read so much about various vitamins that are good for fibro, I don't know where to start.