At long last I have now been referred to a specialist and have a appointment on Thursday with a Rheumologist, can anybody tell me what to expect please? Will he examine me etc?
Also when I saw my doctor last week he said it could be ME or Fibro - I seem to have good and bad days, more bad days than good! and seem to have varying symptoms, the main ones being
Extreme lack of energy after carrying out normal tasks, like housework etc. Recently everything seems a real effort, I struggle to hang the washing out, look after the kids etc.
Pains in my muscles which seem to come and go during the day, worse at night when I am trying to get to sleep. Some days it feels like I ache from head to toe on and off.
Sore feet when I get up in the morning and last thing at night.
Cold like symptoms - stuffy nose, sore ears/throat/eyes (more first thing in the morning and at night)
Trouble getting to sleep even though I'm exhausted. Last night I was in bed at 7 pm and still awake at 1 pm - sneezing, sore eyes, sore legs, sore ears.
For the last 8 years I have suffered from panic attacks, and for the last year have had flu like symptoms which have slowly progressed to the above symptoms. One blood test revealled I had low iron, but even now my levels are up I still suffer as above.
I am getting so fed up as prior to this I was always on the go, working full time, getting up at 7 am and working till 9 pm. Now I'm useless after 7 pm!
welcome to the boards lisa,
what to expect? good question. each one is different. some examine you, some don't. some ask questions and listen, some don't. some order blood work, some don't. actually it's a bit of a crap game. roll the dice and see what you get. i went thru a few docs to find one who listens, examines and listens again and again and again.
i hope the person you see is a caring person who does it all.
My first rheumy appt lasted about 90 minutes. We talked - alot. He asked me a ton of questions. Then he did a tender point exam. After the exam, the first thing he told me was I had fibromyalgia. He ordered a Vitamin D test, as many of us are very deficient. (I was, and still take a 50,000 IU by script, and 1000 IU daily.) We talked some more about treatment.
I was relieved to have a diagnosis, and felt it was a thorough exam.
When we moved, I had to seek out a new rheumy. He treated my first appointment with him like it was my first rheumy appt ever, and he too dx'd me with fibro, told me some stories about exercise, gave me a script for a sleeping pill, and handed me a brochure on fibro. (Which I had long ago seen and read and thrown away.) He did not take the time with me that the first doc did. He did not offer any ongoing treatment, nor did he suggest any follow-up for the script he gave me.
I have decided to not go back to him, but will work with my GP, who is a very compassionate doctor, and works with me on managing my symptoms.
I have also decided to begin exploring alternative medicine, and not relying solely on traditional medicine, which doesn't have the answers anyway.
I hope that helps you some! Good luck with your appointment.