Hi all, Newbie here. I have had Fibromyalgia for about 17 years. For last 3 years I have been developing increased pain in feet (tarsals and metatarsals) along with increased heat in feet at night in bed. I am 6 ft tall and skinny so have always had cold feet before. Alpha Lipoic acid seemed to help for last couple years but getting much worse, particularly the pain. Two different GP's and a rheumatologist have not had any idea what to make of these new symptoms. For years I was able to cope on Tramadol and occasional vicodin but no really struggling to function at all. Anyone else have experience with these symptoms? I am wondering if its part of the fibro or something else. The pain is deep and severe. I would appreciate any input or responses.
welcome to the boards. question if i may? have you had your lower spine checked, ie, mri, ct scan? the reason i ask is i am also a dancer and i started having the same weird problems and then they spread. turned out i have one disc that has narrowed and is putting pressure on the nerves that serve my feet. not one to rush off to surgery i am currently going to weekly massage therapy and find it is helping.
i can dance again and that makes me happy. very happy.
My feet are my biggest problem. They hurt sooo much I can hardly stand on them. They ache, burn, throb, and crack with every step. When I go to bed at night I can't even cover them with a light sheet. It burns too much, also I can't wear shoes only sandals. Just this morning i was researching different foot problems with these symptoms and there are a bunch(I don't have diabetes) I plan to go to a podiatrist as soon as I can. I'll keep you posted and please do the same. This is unbearable!
Alright! I'm not a weirdo!!! I've been dealing w/ hot feet since I was a kid. Mom took me to the Dr. all the time bought all kinds of foot creams, sprays and such. Worst thing you can do is to put a cream or spray on them because it just aggravates them. Guess yall have found that out.
I have remote control tower fan in the bedroom that blows on my feet (out from under the covers) at night. I can't wear enclosed shoes when the temp is above 50 degrees and in the winter I don't do socks unless its under 20 degrees out.
Yeah my feet hurt all the time too. I wear crocs sandals because they feel like I'm walking on marshmallows.
I was diagnosed w/ fibro in 2000 but know that I've had it since I was in my late teens just from the weird stuff that I had gone on.
I'm on lyrica 100 (can't take anymore than that cuz I get extremity swelling) and topamax 175 and that really helps w/ nerve pain and also all over body pain, you should check that out. One thing though side effect is weight loss.
Get checked for Rheuamatold ARthritis too, just in case, foot pain like you're walking on rocks all the time is an early symptom.
Thank you Bluelakelady, Elle45, and no34evr,
Its good to know that I am not the only one who is experiencing this stuff. Its been weird to have the doctors not have any ideas about it. I know that my blood sugar is fine, I don't have Plantar Facialis, but I am concerned about rheumatoid arthritis and will get that checked out (though I think it was ruled out a few years ago). I am now on gluten free diet and taking Testosterone (patch) and sythroid. I am feeling a little less pain in feet but just as hot. The fan is a good idea. I will let you know how things develop.
hey, with the RA, sometimes it doesn't always show up on the bloodwork. I keep getting tested for it, I KNOW its gonna eventually show up.
THere's this other thing out there for hot feet and I'm not sure I can even spell it right, ethromyalgia. or EMS. I know there's a yahoo group for it. EMS can affect more than your feet it can do hands, ears, face. Some folks get blisters as well. I thought I had that but I don't think so.
I went to the foot Dr. yesterday and no real answers yet, however I do have some arthritis and bursitis. He gave me a cortisone shot in the right foot to decrease the inflammation. No change yet but it could take a day or two. He also said that even though I did not test positive for diabetes the burning, aching feet and hands can start years before the test results are positive. Also could be caused by a problem in the lumbar spine. I think it will be a while before I get some real answers and cures, but I feel like I'm finally on the right track. I go back to him in two weeks after he gets all my records from other Doc's.
Hey Dancesforfun, my feet used to burn so bad, all the time, and especially when I went to bed. I used to put ice on them during the day and then at night I would get up and run cold water on them, it was a real pain. Since I was put on Lyrica and Cymbalta, I have not had the problem nearly as much, and I say nearly as much because I had to back off the Lyrica, down to only 75mg a day, as it was causing swelling, but it is still working for the burning, as well as the cymbalta. I have fibromyalgia, so ask your doc about TAKING THE TWO MEDS TOGETHER.. Good luck.