Re: HELP - What should I expect from Rheumatologists
The rheumatologist will probably try to more thoroughly rule out conditions other than FM and confirm your diagnosis. He will also want to try any typical fibro treatments that haven't been tried already.
He will most likely NOT want to start prescribing serious narcotics. That's what the PM doctor is for. Also, as long as you are getting them from pain management, you aren't allowed to get them anywhere else.
Have you tried non-drug methods? Possibly massage? It sounds like you might be too sensitive for deep tissue massage, but there are techniques aimed at calming down the nerves that use only very light touch.
If you have muscle knots in particular areas that just never seem to go away, there's a treatment called trigger point injections. I get 'em a couple times a year, and they keep the walnut-sized knots out of my back.
A few people who suffered from food allergies or nutrient deficiencies (such as Vitamin D) had a drastic improvement after a change in diet, but for most of us, a healthy diet will help a little. Eat a variety of vegetables, whole grains, not too many white starches or sweets. There is some evidence that foods high in Omega-6 fatty acids, such as most beef, can increase pain and inflammation, and foods high in Omega-3, such as fish, can decrease it.
Also, you may need to exercise just a little. Maybe a Pilates warm-up routine, or ten minutes of stretching a day.
Ask me more about any of these that sound interesting (or of course, there's lots of info out there, I don't really know any SECRETS.)