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Old 02-12-2011, 10:54 AM   #1
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myofacial pain syndrome question and the flares of fibro



I have chronic myofacial pain syndrome had it for 2 yrs now. I use a cream which is topical which helps alot, when i went to my dr last thursday to review my meds like i have to do every 3 months i mentioned i would like a repeat of this cream but as it was first prescribed for my frozen shoulder (which still is not completely better but alot more movement in it) she asked is it for the shoulder i said i tend to just use exercise for the shoulder now but use the cream for the lumps of the mps, she gave me a brief exam when i said where they were but you feel them better with oil or cream and laying down but as they were in the breast area she thought it was not mps and said i would have to come back for another appointment for a proper exam i dont know if this was cause she had run out of time or that she was a junior but it was so frustrating, so i rearranged another one but had to cancel as i have been ill this week due to the change of meds i have done.
Anyone who has mps or knows about it is it possible to have mps in the breast tissue and under the armpit, also using some oil i tried to release some of the other lumps that were causing me pain and there are about 50 of them on the stomach area just under the rib lining and down to my groin area all different sizes and more in the inner thighs about the same amount as the stomach less on the other thigh and more on my shoulder both and around my elbow too there are now so many i cant count them all is this normal with mps??
i have a mps therapist coming to my home on wed to start treatment as it scared me how much my body seems to be deteriating i have some money a kind old man left me in his will after he died i used to care for him before i got sick so will have to use some of this for treatment and see if it works its so frustrating that alternate therapist like this are not available on the nhs as it is in the uk and they just want to give you drugs!!

I am also so confused about this disorder there is no rhyme or reason to it i have been bad since before christmas alot better then 2 yrs ago when i was bedridden for 4 mths and there has not been anything that i have done different except the meds but before christmas i was picking the kids up from school going out a few times in the week a few light chores and shopping on my scooter at the weekend with the family but since then i can hardly pick the kids up from school no housework really except some landry and washing up and been housebound all this week and only been out once since the kids went back to school and not being able to make anyhting at weekends either not even church, i see sometimes what amkes it worst pushing myself or stress or like this week a drug change but mostly i do nothing different why i will be suddenly alot worst and cant move for fatiuged or pain or often both!! everyone says exercise eat this take that push yourself but it has no difference i agree eating a good diet is good reducing stress is a must medication and vits and minerals can help exercise is important i can only strecth at the moment but i am determined to do this a few times a day and hopefully build up to exercise when the flare lifts i have to rest in bed balanced with reduce stress ( hard with 3 girls lol) and stretching and increasing it when i can but there is no fast rule to this disorder and though i try to build up like after my bedridden stint for 4 mths you get up to a certain point then a big flare comes its like climbing a mountain you go up then down then up and when that happens one after the other for mths you end up house bound again and having the energy to stay forcused is so hard i think if i was rich i would have a therapist personal physiotherapist hydrotherapry all the time i would build a hot tub etc etc but i am not so any treatment i start like this new mps treatment i cant do for long and some i just cant start at all.
sorry that was a vent i guess lol there are just so many expert-friends family etc that think they know best my poor husband has sciatica and that comes and goes and his work friends look at him odd not understanding how he is bad one day and not the next. I have felt better after a week of feeling awful and i feel half humane i feel like i can take on the world when i feel like this but i have learnt not to push because there is always a crush so though i felt ok i went shopping but in the wheelchair so i am still feeling fine now but how long i dont know so its hard to make plans half term is coming up and i have to say to my friends keep this day free but be warned i will council if i am bad and it can be right up to a few hrs before so i dont tell my kids now as they get crushed and complain all the way through half term how they do nothing when they were younger it was cuddle on the sofa and read books or sit on floor and play blocks but now its go shopping or cinema or a play centre all driving and sitting in places i cant and i cant shop for long even on a good day there are only so many dvd we can watch and wii games we can play and even them take energy the wii not dvd lol anyway i have gone on too long lol any ideas for a chilled out half term would be good.

 
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Old 02-12-2011, 02:15 PM   #2
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Re: myofacial pain syndrome question and the flares of fibro

It's a rough ride and no mistake. Getting a myofascial specialist is a good idea, though of course it does cost money. I'm in the US with private insurance, and they will pay for surgery or injections or narcotics, but not the manual therapies that really work.

I also have so many trigger points I can't count all of them, from my cheeks to my ankles! Still, the massages help a lot. I also use a tennis ball and foam roller to do self-release, and I find that a Pilates warmup routine is a great way to deal with a really stiff morning.

If the GP wants to investigate the lumps, let her. Most likely she'll learn a thing or two about MPS.

 
Old 02-14-2011, 07:04 AM   #3
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Re: myofacial pain syndrome question and the flares of fibro

I have MPS and Fibro. I have fibrocystic breasts which could account for the lumps in your breasts and armpits. Just make sure they are properly evaluated to make sure that is what it is.

My best to you and let us know how the MPS therapist goes for you,
Pam

 
Old 02-14-2011, 08:02 AM   #4
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Re: myofacial pain syndrome question and the flares of fibro

Thanks jane your prob right i will let the dr look also best to check it out and like you said she might learn a thing or too as they look at you blank when you explain it, it frustrates me no end how these alternate therapies work but drs wont prescribe them i often wonder if its to do with the deals they have with the drug companies as if people got the therapies rather then the drugs there would be less drugs brought and prescribed not good for the drug companies they say there is no prof they are effective but i dont think they have compared drug use to alternate therapy has there?

pam

what is the difference between having mps in your breast and fibrocystic breast? does the fc hurt like the mps cause some hurt some dont? i will let the dr investigate i am feeling abit better this week so will make an appointment.

 
Old 02-14-2011, 08:08 AM   #5
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Re: myofacial pain syndrome question and the flares of fibro

Yes, the fibrocystic breasts do hurt. It was years ago that I really had a problem with it, before a Fibro diagnosis. Just a note, caffeine make it worse.

 
Old 02-14-2011, 08:16 AM   #6
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Re: myofacial pain syndrome question and the flares of fibro

ok thanks for the advise, is it treated the same as mps with massage treatment which i can do myself? do you do mps release on your own? i have tried but it makes it so much worst and it doesnt go it just stops hurting for abit when i stop massaging it but the lump stays and when i massage it again it just hurts so much, i have so many like jane and just cant count them there are so many.

 
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