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Old 02-15-2011, 10:02 AM   #1
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Positive ANA,High Sed Rate...Now what do i do?


I have a Positive ANA
High Sedative rate..sorry a divorce lost papers..
tested for lupus -Negative
Rheumatoid arthritis was also- Negative
diagnosed in 04 Fibromyalgia and chronic fatigue
Lyme-nagitive
Epstein Barr- positive but Dr said not active (most likely)..
Brain MRI-negative for MS
But Dr wants spinal, haven't had one due to Seattle MS hub said even if Spinal comes back Negative doesn't mean i don't have MS.

I guess my Question is...so this is it ?and now what? just learn how to learn to live this way the best i can? was on major pain meds ,antidepressants for over 4 years, nothing helped and i became withdrawn and my whole life was upside down ,,lost everything.
Now for over 2 years Ive been off all meds and don't see a Dr for this anymore. But is there anything else i can do to help myself?..sorry just rambling it looks like, just lost here and wanted to know if theres anyone else out there...wanting to know..what now?

Hugs Monalisa

 
Old 02-15-2011, 10:33 AM   #2
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Re: Positive ANA,High Sed Rate...Now what do i do?

Positive ANA and high sed rate point towards autoimmune issues, however, they can take years to get a diagnosis. I have been in the process of being tested for Sjogren's Syndrome and Lupus even though my blood tests have come back negative my doctor still thinks strongly that I have both of these and that it will eventually show up in blood tests. She also treats my symptoms not my lab results which is helpful. Do you have a rheumatologist that you can talk to about this? They can be helpful, even though I got rid of my first one because she didn't listen to anything I said. Hope everything works out for you.

 
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Old 02-15-2011, 10:51 AM   #3
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Re: Positive ANA,High Sed Rate...Now what do i do?

Mona, all of this is so frustrating isn't it!?!?!?! One thing that you can do yourself is exercise, try to get enough test, and eat healthy. I figure the healthier I am, the better I can deal with my fibro...or anything else that comes my way. Also, supplements such as magnesium malate and a good multi vitamin are helpful (other I take include calcium, coQ10, lipoic acid, D3, Vit C, and omega 3 fatty acids). Hot baths also help my pain during a bad flare. prayers and hugs, Diane

 
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Old 02-15-2011, 01:45 PM   #4
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Re: Positive ANA,High Sed Rate...Now what do i do?

brooklyngirl,
yes ive been tested for all that yrs ago and those all came up negative. but i do understand about tests changing after awhile..hhmm i wonder if i should open that Pandora box again?... been away from drs for over 2 yrs now,.. did every possible test know...but im sooo very tired of just (in the DRs) eyes a fibromite with really no hope and no cure..

 
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Old 02-15-2011, 06:52 PM   #5
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Re: Positive ANA,High Sed Rate...Now what do i do?

I understand about not wanting to go back into the world of diagnosis hunting. I walked away from that several years ago, I'm just not interested in further tests for these symptoms, because the tests are stressful and interfere with my coping mechanisms.

However, if I had a lead that I hadn't exhausted yet, I would definitely want to follow up on it. If I get something that doesn't seem fibro related, I seek medical attention. The ANA really does sound like you have an auto-immune issue going on. I would find a good rheumatologist and pursue it.

 
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Old 02-16-2011, 04:24 AM   #6
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Re: Positive ANA,High Sed Rate...Now what do i do?

I hate going to the doctor's all the time too. I love my primary because she actually listens and discusses things with me and when I questioned the fibro diagnosis that my first rheumatologist gave me my primary agreed that she thought more was going on and referred me to another rheumatologist. Finding a good doctor is important and can take years, but when you do find the right doc it makes going much easier. I get blood taken so often that I am starting to feel like a voodoo doll with one one area for the pin!

 
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Old 02-16-2011, 09:36 AM   #7
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Re: Positive ANA,High Sed Rate...Now what do i do?

auto-immune? like lupus?...I need to look it up..thx..

 
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