greetings dear fibro sisters and brothers,
after searching i have found a new rheumy in san francisco. i am so happy. worth the research online!! every hour of it. giggle.
this means i am firing my old doc. odious man! what fun it will be to write that letter! i do love firing doctors! giggle. gotta see my internist for a referral and we're good to go in april. actually a call will suffice. do that when i get off here. duh!? find the easy path and take it.
never, never keep a doctor who does not listen or has the audacity to say your health is not his problem. yes, he said that, and yes i reamed him on that. he did back down and do as he was told.
if there is no trust there is no bond. i refuse to see a doctor who is rude and have held on to the creep for over a decade. never really needed him much till now.
actually had a retired doc call me and refer me to this new doc. nice man. fun stories. lovely chat.
so, i have a new doc for my daughter jessica and i and it's in san fran where we can play after! clam chowder and fresh crab. i may start eating meat again, well fish. giggle. oh and giradelli chocolate factory. heaven!!
this was the only stress going on in my life and it is resolved. with the downward spiral of my immune system i must have a doctor i feel confident in and who actually has ears on the sides of his head that work!
just had to share my joy, my relief, and of course pat myself on the back for not taking junk from someone just because they have a degree i do not posess.
now i can relax, chill out, get my blood test results and move ahead in finding ways to best care for my body.
taking my sore little proactive fanny for a nice walk and breath in the beauty.
The following user gives a hug of support to bluelakelady: BeHappy2 (03-15-2011)
Hope your new rheumatologist is better than the last! I too had a bad rheumy and only gave her six months then I told my primary I wanted a referral to a new one and she agreed. I finally got in and he did a lip biop and found that I have Sjogren's Syndrome and he also had a dermatologist do a skin biop and found that I also have SLE. The first rehumy told me I had fibro and that was it. I am so glad I listened to myself and kept searching, not that I wanted to have these things but I knew I had more going on than she was telling me. Good luck!
The Following 2 Users Say Thank You to brooklyngirl For This Useful Post: bluelakelady (03-17-2011)
Oh so so so happy for you my love!!! You are your own best advocate and you know that..YAY for San Fran...I am down with the fresh crab...so down..the chocolate factory too...oh I am so with you in spirit...I knew you would find your doc..karma it is....love you tons!! xoxoxo
The Following User Says Thank You to tooolgrl For This Useful Post: bluelakelady (03-17-2011)
finding a doctor within 3 hours was not easy. downside of living way out in the country. worth it tho. giggle. so far i am impressed with the office staff. always a good start. from what the doc on the phone told me david the new doc has a great personality, is caring, fun and easy to talk to.
there is nothing to be done about my fanny. it's arthritis so injections are the option i choose for that.
i do require someone to monitor my ana and titer counts, assist me in understanding the changes i am going thru. i am not willing to take the drugs offered for what is going on in my body. doc on the phone says new guy will be cool with that.
anything is better than whackjob, my nickname for the soon to be gone rheumy. having no doctor is better than having him. i already made that decision. if this new guy is not what i seek i am going to let nature take her course and be cool. i know what to expect given what is going on within and the story my blood tells.
again thanks for the support. you are all just the best!!! giggle.
ps. it helps that he is in one of my favorite cities here in cali. giggle. i can smell the wharf now. giggle. it is almost a 3 hour drive but daughter will be driving not me! i forgot how to city drive, giggle, and i learned in the city of lost angels! country mouse at heart.
you know how i always have to find the upside to every experience? well i have one for this too. because that doctor chose to be unethical about the whole plaquinil and cancer thing, it got me thinking.
about when i do leave this planet. i have a special needs child, my only birth child. he is in his 30's now, but i know he would not know what to do when the time comes. so, i got on the net, found a cremation service that does all the follow up paperwork and plants a tree in my name to ofset the pollution of my cremation and bought it! problem solved. stress gone.
also did my advance directive and it goes to the state today for registration. stress gone! so, my upside is i never have to worry about what my family will do when that time does come for me. and it does for us all.
now i can rest easy, that final compost run is paid for and all he has to do is pick up the box. they will get the death cert for him, do the obit, put a site online so people can find where i went, everything. i told him what i did and he said, thank you momma. thank you so much.
giggle. great upside to a rather distasteful experience. now i can honestly say there is no stress in my life. nada!!
giggles, hugs and peace,
ps. and yes it was kinda weird to do all this. surreal for sure! but oh, i feel great now!
i am deeply honored you find aspects of my reality helpful in your life. gives it all balance. you got me to giggle, girl. me, one hell of a woman? never thought about myself that way. giggle. just doing life as best i can and sharing what i see. thank you for the giggles and the blushes.
life is beautiful.
The following user gives a hug of support to bluelakelady: tooolgrl (03-17-2011)
thank you cat.
see? another upside to being me in this body. sharing with friends who are on the same journey. that makes it all worth it! if one person finds their peace and i had a tiny bit to do with that, well then, life is perfection and i have served my purpose well!
hugs and giggles to everyone this beautiful day.
The Following User Says Thank You to bluelakelady For This Useful Post: catkaru (03-18-2011)
I didn't know you were a vegetarian? My daughter has been on the diet since September. I didn't think she'd stick to it so didn't make it easy on her at first... But she'd wanted to do it for 2 years. It was hard to get used to at first but pretty natural now. Anyhow, I took her to a dietician awhile back. She offered her ideas on Vegetarian diets... Tried talking her into eating fish but she won't do it...
leave the fish out. not safe, the oceans are so polluted. good for her! as long as she gets protien from nuts, beans and veggies. give it a try yourself. giggle. you may be surprised how you feel. i sure was! giggle.
good news from the blood work. whackman, soon to be gone lied thru his teeth to me. i do NOT have lupus!!! got the results yesterday. so only fibro and all her buds, and the sjogrens. my doc changed my sleep med. you won't believe what i am taking, giggle. tramadol. yes, tramadol. we shall see. i did sleep like a baby last night, a bit hung over tho this morning. better now. will be watching for depressive behavior. if i seem to be different in a few days or weeks you all better speak up, cause i don't want to change me, nor have drugs change me in negative ways.
so, i am eating my words, for now, and being a good girl. i love being wrong and i hope i am this time.
peace, love, giggles, and joy,
ps. correction, i am taking trazadone. space cadet?!?! keep an eye on me please and let me know if you see changes. constipated. oh fun! this may not work out!
Last edited by bluelakelady; 03-19-2011 at 09:06 AM.
Reason: clarify new drug cause i don't know what i am doing? giggle
The following user gives a hug of support to bluelakelady: caribear (03-19-2011)
catharsis! i feel great. the following letter will go in the mail monday. giggle!
There is no harmony between what I require from you and what you have to offer. Our visits are stressful for me. You said to reduce my stress and I am taking your advise. Our visits are the only stressor in my life. This said, I am moving on to another doctor and wish to thank you for your time. Your services are no longer required.
Please send me the appropriate forms to have my records sent on to Dr. David Curtiss in San Francisco.
there ya have it. giggle. dang i feel good! maybe it's the second cup of coffee? giggle. nope, it's the letter!!!
giggles and peace,
The following user gives a hug of support to bluelakelady: caribear (03-19-2011)
Blue it is perfect. I would like to see his face when he reads it. So glad there is no lupus. That is a positive going for you. I tried trazadone, it took hours to help me fall asleep no matter how early I took it. Once asleep I did sleep well. However not going to sleep until after midnight was not a good option for me. I hope it helps you, if ambien is no longer an option for you. By the way, I believe trazadone is an anti D. Not sure though, check it out.
it is glojer, that's why i want you all to keep an eye on me and let me know if i start sounding weird or nutty or angry or depressing. giggle.
i doubt he will think anything if and when he reads it. honesty, i don't care what he thinks. i like short and sweet and to the point.
so far i go to sleep easily and stay that way. yesterday i was a bit constipated and hung over feeling. better today. heck i woke at 1 with the runs! been up pretty much since then. it will be a day to nap, alot!! giggle.
thank you all for your hugs and input. life is good, peace is better!