Thanks for the feeback Jane. It has been a week more than 4 months now, and no improvement at all. My red count was down, which is why they gave me the transfusion. D3 was down before surgery, to 17 (35 is normal) and even with strong supplementation, it is still the same as of 2 months ago. I had lower leg swelling after surgery, that prevented me from being able to wear anything but slippers for about 2 months. When I finally did my own research and saw a specialist in secondary lymphedema, and then went to PT to get my legs and feet wrapped a few time, it cleared up 90%+ of the swelling issues, but the pain persisted.
I am looking to see if I get feedback where people say that they contracted EBS, or Worse Fibro, or Lyme, or something of that nature that I have not really thought about until now. And if so, what they were able to do or try to do about it.
Thanks again for the feedback though.
Originally Posted by janewhite1
Sometimes people do experience certain odd symptoms after transfusion. Even with matched types, there is some evidence that transfusion can cause problems. And of course it could be related to the surgery, immobility afterwards and moving in different ways to deal with your new body.
If it's related to the surgery or transfusion, it should gradually improve.