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Old 05-12-2011, 04:22 PM   #1
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Vicious cycle of pain....

Hello, all. WOW I am being eaten alive by pain. Ugh. I am very distressed about it right now and I am sure that is not helping. I cannot get enough relief. Not enough pain meds. Not enough sleep. I am chasing my tail here and am very frustrated. I moved my appointment with my NP up from June 20 to June 6th. I am going to try Lyrica. I am tired of beating around the bush with this!!! I am tired of feeling like I am being put thru a meat grinder. And I am tired of jumping through hoops to get meds. This is really starting to wear me out!! Round and round the circle of pain I go. I really wish some of these doctors could understand what it is like to go thru this day after day after day. I quit going to my chiro because all he did was fuss at me for taking lortab. I tried to explain what my life is like. He would not listen. Geez, guys. I am sorry for my complaining...needed to get some of this off my chest. Love yall, Di

 
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Old 05-12-2011, 04:24 PM   #2
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Re: Vicious cycle of pain....

FMS is such a cruel thing on so many levels. I feel for you as you suffer through this time. My thoughts are with you and gentle, sweet hugs & prayers are sent your way.

Kirstee

 
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Old 05-12-2011, 04:57 PM   #3
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Re: Vicious cycle of pain....

thank you, kirstee. I came up with this:


~~DIVINE PAIN~~

round and round
the circle never ends
tears and pain
where do I begin?
where does it end?
an entity
breathing hot flames
fire abounds
that I cannot tame
never different, never the same.
an eternity,
a day and a night
of restless flight
that I cannot fight.
oh, bitter companion
a living entity
shadow of mine
a fragment of time
my pain divine.

 
Old 05-12-2011, 05:50 PM   #4
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Re: Vicious cycle of pain....

Your poem puts it in a perspective many of us understand. It stinks you are so uncomfortable. It's like pulling teeth to get any pain killers here too.

I wish you success with the Lyrica. I tried it along with the Cymbalta but it was a short affair with lyrica. We didn't get along to well which was to bad because it was helping the pain.

Stay as comfortable as you can until your appointment.

 
Old 05-12-2011, 07:36 PM   #5
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Re: Vicious cycle of pain....

You did a wonderful job on your poem! I'm impressed! Makes so much sense!

I was on Cymbolta which worked great for Anxiety & pain... Went off of it thinking it was causing my weight gain but didn't realize how much it helped with the pain! Don't ever want to go through the withdraws again, nightmare...
Which I could help you... I'm on Tramadol which doesn't do a whole lot... The muscle relaxers I take at night for sleep help allot with the pain the following day. Didn't realize how much it helped until I switched to Melatonin... Was back on my muscle relaxers fast! Hot baths are wonderful! Getting rest helps allot also... If we can get it...

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Old 05-13-2011, 07:02 AM   #6
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Re: Vicious cycle of pain....

hi bio,
i was thinking and i remember one time i was in the same cycle you are now in. i chose to detox. quit everything except otc sleep aids. it was not easy and yes i hurt a great deal worse during detox. what i discovered for my body was that the pain meds were making the pain worse not better.
i have been off all the magic pills for 8 years and doing much better than i was. much less pain. still have the fatigue but hey, that's better than hurting. giggle.
i hope you are able to take lyrica. i did try it for 2 days several years ago. your body will tell you if it is not for you. my doctor asked me to please try it, so i did. he has not offered me any other drugs since then. works for me!
sending you healing energy on spring breezes,
peace and love,
blue

 
Old 05-13-2011, 04:52 PM   #7
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Re: Vicious cycle of pain....

blue, so I will really know in a couple of days if lyrica is for me?? I at least wanna give it a chance if I am going to have to try it.

 
Old 05-13-2011, 10:17 PM   #8
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Re: Vicious cycle of pain....

I feel your pain Fibro is one nasty beast. Take it one day at a time that's what I try to do. Get some rest.

 
Old 05-14-2011, 06:47 AM   #9
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Re: Vicious cycle of pain....

hey bio,
no little girlfriend, what i am saying is if it is NOT for you, your body will tell you within a couple of days. i have no idea how long it takes to help since i was only on it 2 days. there are some here who can take it and do. maybe they will know how long before you feel the helpful affects.
got my fingers and toes crossed for you. giggle. hard to walk and type.
peace,
blue

 
Old 05-14-2011, 07:08 AM   #10
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Re: Vicious cycle of pain....

When I tried Lyrica I got some pain relief in just a few days. It was the first time in years my ribs did not hurt. But..yep, there is always that darned but..after about 3 days I got horrid headaches that only got worse the longer I took it and I decided the trade off was not worth it for me and stopped after 2 weeks. Just be prepared for the potential of weight gain .

 
Old 05-14-2011, 08:04 AM   #11
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Re: Vicious cycle of pain....

Diane have you taken neurontin? It is like a cousin to lyrica or something like that. I am on neurontin because I cannot get lyrica due to no insurance or something like that. I do well with the neurontin and the percs. Also I am on flexeril, which I take when I have really back spasms. Always during the afternoon and evening. I am flaring right now because of the week I have had and I intend to take the afternoon off and lay down and read and rest..I can totally understand your frustration. I am so happy I only have one provider. I would want to stab myself in the eye if I had to deal with what you go through. Don't let these providers bully you around either, they are working for you. Not against you. I would give the lyrica a go, if it helps great. And if it makes you sick you will know fast. I got through two days of savella, then boom. I got right off of it. If it makes your body feel badly to the point where you think it isn't worth it get off of it. I need the neurontin I take, I have a leg that is just agony at night in bed. The pain is well over a 10, more like a 50. And the only thing helps is upping my nightly neurontin dose by 100mg. I had been doing that and it got better so I cut out the extra 100. Guess what? Leg pain is back, so back up the dose. I am so hoping you get to a place where you have the right mix of meds and docs. Lord knows its been a while for you....sorry I blabbed on and on. Just know I care and send good karma your way...xoxoxo
peace and love
Sandra

 
Old 05-14-2011, 03:05 PM   #12
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Re: Vicious cycle of pain....

Hi There I have been on Lyrica since 2007. I started taking it after knee surgery when my Orthopedic dx'd me with RSD. Thank God I do not have RSD. I was dx'd soon there after with Fibro after reading up on the RSD and figuring it was the Fibro and went to a Rhuemy. Yes the Lyrica tore me up for the first 4 weeks. At that time luckely I was still on disability for the knee surgery so did not have to function as a fulltime worker. I experienced many different side effects including in the very beginning fatigue and lots of it. Since then my pain has gone down considerably except when I am in a bad flare...then of course, nothing works! I stopped using for a time when money was tight and never realized how much it was doing for me until a couple weeks later and the monster jumped out of hell. Needless to say I went back on it. I am also on Savella since about 5 months ago and doing much better then I have felt in many many years. My cocktail of meds for the Fibro consists of 2x50mg Savella, 2 x 150 mg Lyrica and 6 x 50mg Tromadol and a low dose muscle relaxer at night to help me sleep daily among other scripts for other problems. I work fulltime and have managed to cut my "BED FLARES" down quite a bit the last few months. I danced with my Hubby at a wedding last week. My Rhuemy promised me I would again one day, (I met my husband country dancing). It took a lot of bad times, bad feelings, pain, aggitation, sleeping long hours (oh the joy in that) but I managed to cut the pain level down and the Bad Bed Flares down.

Weight gain...I don't care! I am 5'9" and holding the last 5 years at 185. I hide it very well. It's not the best fat either being mostly belly but hey so what I have 11 grandchildren and I am tired most of the time because of working fulltime and can't do what I used to do but, oh well. We all try different ways to feel better and live better. I found mine for now and I know it will change again one day. I know you will find yours too. Tread through the mud and you will find a great shell of the body you once had even it's just a little thing like dancing!!!

Low pain all,
Cat
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Old 05-15-2011, 01:42 PM   #13
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Re: Vicious cycle of pain....

Hello Bio,
I know what you mean about the cycle of pain. I'm in the same boat. The only thing that helps me is Vicodin but I try not to take it unless I absolutely can't stand the pain anymore. Crazy huh? It's a constant roller coaster for me with the pain but I don't want to take anything stronger for fear of tolerance and dependency. I try to exercise, eat right, lower my stress levels, get massage to hellp.

I take Savella, 50 mg a day but I'm at a subtherapeutic level and need to bump up to 50 mg twice a day. I hate taking meds but know I have to if I want to feel half way decent. Cymbalta worked for me in the past but I started losing my hair so weaned off of it. Lyrica did nothing and Neurontin didn't do alot either. Clonazapam helps me at night to sleep and eases the pain.

I would suggest getting a pain management physician to manage your pain. Take care.

 
Old 05-16-2011, 07:08 AM   #14
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Re: Vicious cycle of pain....

I have been on Lyrica since 2007 and it was a god send as I was on a disability from work and I was able to return to work. Cymbalta was added a little later and they control my pain, which is mostly nerve pain pretty well. I use hydrocodone when I have break thru pain. I take Benadryl to help me sleep in addition to my night time Lyrica dose.

I also suggest a pain management specialist. They will work with you to try to find things that work. I have a wonderful NP at my pain clinic; she listens to me and lets me have input into my treatment.

 
Old 05-16-2011, 07:17 AM   #15
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Re: Vicious cycle of pain....

Hi, all!! I am at a pain clinic, LOL!! Right now, they are not managing my pain very well hehe!! What really frustrates me is that I asked for a couple of extra days off to start the Lyrica in case it makes me sleepy at first and my manager threw a fit because she had already made the next 2 mos schedules. I told her to pick whatever days that would work out for her and everything. I told her well, I guess I will have to wait another 2 mos then. So she finally said ok, maybe I could have a fri and a mon off along with a weekend I am already off. Good grief!! Do you know how many times I have called in sick due to the fibro in the last year?? ONCE. That's it! I went into work Sat with a stomach virus (it did not hit me 'til about an hour or two after I went in) and I hurled all day and worked anyway. OVER IT! Sorry....rant!! eheheh Love to all, Di

 
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