It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Fibromyalgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-16-2011, 11:59 AM   #16
Member
(female)
 
bunny23's Avatar
 
Join Date: Jul 2011
Location: Chicago, Illinois USA
Posts: 60
bunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

A massage therapist?
I have never had the same issue.

You can Google spa's and call around, make sure they are experienced. Chiropractors also have massage therapists. There is also the American Massage Therapy Association

 
The Following User Says Thank You to bunny23 For This Useful Post:
TessaAnne (08-16-2011)
Old 08-18-2011, 08:11 PM   #17
Junior Member
(female)
 
Join Date: Jun 2011
Location: Vancouver, BC, Canada
Posts: 11
Gingerell HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

It's crazy to see all the conditions and diseases out there and how so many of us suffer chronic pain and all the joys that accompany it.

I am in a horrible flare up right now, probably the worst one yet. The dr. has put me back on prednisone for a weekly trial so that we can see if it helps the pain. He really thinks I have polymyalgia rheumatica however, he tested me with prednisone last year and it didn't help. Also, my sed rates are normal and x-rays came back fine (last checked in early /10).

The rheumatologist says soft tissue rheumatism not fibro or anything else lol. I still think I have fibro as the science is always changing on that and from what I've read, the pressure points are not as conclusive as once thought.

All I know is that I've only known pain like this once before and that was with a bad tooth infection. This flare up is by far one of the worst experiences yet. No amount of pain pills will touch it and I can't walk, sit or stand for any length of time. Sheer agony. I've spent that past two days bawling to the point of hyperventilating.

I had a whole 3 hours sleep last night and not much more the night before... even with my prescrip sleeping pills.

I am really so scared and feel hopeless. What if this never goes away? I'm only in my 40s? How can people live like this? I keep trying to be positive and think how lucky I am compared to some but that is easier said than done.

Thanks for all your replies and for letting me vent ... I'm starting to feel like a broken record with my family and friends.

 
The following 2 users give hugs of support to: Gingerell
caribear (08-19-2011), catkaru (08-22-2011)
Sponsors Lightbulb
   
Old 08-18-2011, 11:24 PM   #18
Member
(female)
 
bunny23's Avatar
 
Join Date: Jul 2011
Location: Chicago, Illinois USA
Posts: 60
bunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB Userbunny23 HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

Gingerell-
I hope you get some relief soon! I know what that feels like.. my spinal cord pain started to feel like a terrible toothache, actually that's what I used to describe it as.

Stay in touch and you are in my prayers

 
The following user gives a hug of support to bunny23:
Gingerell (08-18-2011)
The Following User Says Thank You to bunny23 For This Useful Post:
Gingerell (08-18-2011)
Old 08-19-2011, 11:10 AM   #19
Senior Member
(female)
 
Join Date: Jan 2011
Location: Ohio, United States
Posts: 217
caribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB Usercaribear HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

Just a note about finding a legitimate massage therapist -

Go to the American Massage Therapist Association (AMTA) website and look for the link to FAMT (Find A Massage Therapist) it will list any AMTA-certified therapist in your search area. You can also look them up by specialty, I believe. There are some really good therapists out there, you just have to find them.
__________________

 
Old 08-19-2011, 01:36 PM   #20
Senior Member
(female)
 
Join Date: Sep 2004
Posts: 115
tutti-fruti HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

sometimes I read stories in this board that surprise me! Gingerell, I understood that you have normal SED and CRP rates right ? and your x-rays came back fine, no inflammation there either. So there is no sign of inflammation whatsoever in your body, right? How can your doctor diagnose you with polymyalgia rheumatica then ??? and treat you with cortisone ?

 
Old 08-19-2011, 02:11 PM   #21
Junior Member
(female)
 
Join Date: Jun 2011
Location: Vancouver, BC, Canada
Posts: 11
Gingerell HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

Hey Tutti Frutti,

Yep you read it correctly. I know, right???? He tried me on prednisone last year and it didn't work. He said that maybe I do have it and this time it will work. Seriously, I think he's grasping at straws because he doesn't know what to do with me anymore. At least it is only a five day trial and I go back to see him next week.

He's put me on a waiting list with a Neurologist at a Pain Management Clinic but that place is so busy it could be a year before I get in. I've been on so many meds and really nothing has helped except opiates.

I woke up this morning and my pain levels were back to normal, just the regular pain. I never thought I'd be so happy to say I was in pain... I was almost giddy lol.

 
Old 08-19-2011, 02:13 PM   #22
Junior Member
(female)
 
Join Date: Jun 2011
Location: Vancouver, BC, Canada
Posts: 11
Gingerell HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

I also wanted to say thank you all for your words of wisdom and support. Some of you have asked me some questions and I will come back as soon as I can to answer. Need to get a few things done and rest before another flare hits me

Happy Friday to you all!!

 
Old 05-22-2012, 11:23 AM   #23
Newbie
(female)
 
Join Date: May 2012
Location: Ontario, Canada
Posts: 1
melly641 HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

Quote:
Originally Posted by Gingerell View Post
It's crazy to see all the conditions and diseases out there and how so many of us suffer chronic pain and all the joys that accompany it.

I am in a horrible flare up right now, probably the worst one yet. The dr. has put me back on prednisone for a weekly trial so that we can see if it helps the pain. He really thinks I have polymyalgia rheumatica however, he tested me with prednisone last year and it didn't help. Also, my sed rates are normal and x-rays came back fine (last checked in early /10).

The rheumatologist says soft tissue rheumatism not fibro or anything else lol. I still think I have fibro as the science is always changing on that and from what I've read, the pressure points are not as conclusive as once thought.

All I know is that I've only known pain like this once before and that was with a bad tooth infection. This flare up is by far one of the worst experiences yet. No amount of pain pills will touch it and I can't walk, sit or stand for any length of time. Sheer agony. I've spent that past two days bawling to the point of hyperventilating.

I had a whole 3 hours sleep last night and not much more the night before... even with my prescrip sleeping pills.

I am really so scared and feel hopeless. What if this never goes away? I'm only in my 40s? How can people live like this? I keep trying to be positive and think how lucky I am compared to some but that is easier said than done.

Thanks for all your replies and for letting me vent ... I'm starting to feel like a broken record with my family and friends.
Hello Gingerell ;
I am new to this board but I know how you feel. I have been diagnosed with fibromyalgia for 4 1/2 years but have had symptoms for over 20. I was taking cymbalta for 1 1/2 years but had to come off because of side effects. While I was on it I complained to my family doctor that I was having other pain that was different from my fibro pain. He did lots of blood work which did not show anything so he sent me to a new rheumatologist. She says I have Soft Tissue Rheumatism along with the fibro. Now that I am off the cymbalta the pain is terrible, my feet .ankles , legs, hands and wrists are the worst. This on top of the fibro is almost unbearable.I take 2 tylenol3 and a muscle relaxer for pain but this only dimms it.She says I need physio right away.I just wanted to let you know that there is a difference between the two. Thanks Mel

 
Old 05-23-2012, 01:30 PM   #24
Newbie
(female)
 
Join Date: May 2012
Location: st peters mo
Posts: 7
trobinson HB User
Re: Fibromyalgia or generalized soft tissue rheumatism?

Hi. I'm new here too. I'm still learning about Fibromyalgia. I know the pain I feel is at an insane level and I'm sure yours is too. You're right..this sucks. I've seen so many doctors and specialists that gave up without a diagnosis. It's frustrating. Sometimes I think that they have no idea and just start guessing or thinking I'm crazy. Hang in there, it HAS to get better!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Brain Scans Document Fibromyalgia Pain mark a Fibromyalgia 2 10-01-2011 06:27 AM
New to Fibromyalgia: Pain in arms. 25y/o Male. FMS caused by EBV/mono? i am a guy Fibromyalgia 16 07-12-2011 07:22 PM
Is this really Fibromyalgia? paperbgprinces Fibromyalgia 9 05-07-2011 08:22 PM
Fibromyalgia, Is it real?????GRRRRR dolejaly Fibromyalgia 6 04-30-2009 11:29 AM
soft tissue rheumatism noddy47 Fibromyalgia 2 09-05-2008 03:48 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin




TOP THANKED CONTRIBUTORS



bluelakelady (372), WoodsWalker (132), thefarm (111), Glojer (103), tooolgrl (94), biogirl71 (88), janewhite1 (85), kirstee (60), monalisa24 (55), tmrots (41)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 07:45 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!