Hello my wonderful friends. How is everyone today?? Well, this is really the first chance I have gotten to sit and spend some time here. I worked thru the weekend and I am EXHAUSTED. Weekends always mess with me. In my department, we work all weekdays for 4 weeks and then we work 2 weekends in a row. I normally go in at 8am, but on the weekends I have to be there around 5:30 am. Then, I am doing the job of 2-3 people (there is normally only one of us on Sat and Sun). Its a KILLER. Anyway, I went to my gyn thurs about that pain in my side. She thinks it is my endometriosis flaring, which could eventually end in surgery. I had laproscopic surgery 20 yrs ago for it and it has been bothering me on and off since. But this is the worst. Right now, she is going to suppress my periods with BC. The pain is way worse while I am having my periods. It hurts really bad in between too. I do NOT wanna end up back in the ER. I am flaring horribly right, too. My fibro pain is the worst it has ever been. Let me tell you, it is reaching new levels to be sure. To top it all off, I am running low on my pain meds. I put in for a refill but it looks like the pharmacy is going to make me wait the entire 30 days (Fri, I think), which is entirely their right to do. What is really strange is that they are very inconsistent in enforcing it. Sometimes they will fill my meds a few days early. Weird. On the script, it appears to say that I can have it filled twice a month, but I am not sure. And I do not wanna ask or cause any problems because I do not want to be labeled a drug seeker. (Which I probably already am anyway, LOL). The endo pain plus the fibro pain is almost more that I can truly handle.
Oh, here is something funny. For those of you that read about my visit to the ER, well I got a survey about it in the mail. BAHAHAHAHAHAHAH Can't wait to fill that one out!! OLOLOLOL xoxox love you guys, Di
Im sorry things are really bad..
i had a full hysterectomy in 03 but still have one overy ..spelling? sorry. they found out only after they yanked stuff that i had endometriosis...i still have pain once a month on the side that that Ov was removed. my hubby massages that side and also on that side on my back..its makes that pain go away. just thought id let you know.
feel better.........hugs ..Monalisa
The Following User Says Thank You to monalisa24 For This Useful Post: biogirl71 (06-20-2011)
Hi, Mona! Thanks for the support. I am forty and cannot imagine trying to get preggers now (I have no children) although I really do regret it. It was just never the "right" time. I met the love of my life (my hubby) when I was 31 and both of us were in school. My hubby has his student teaching this next semester and then he is finished. Before I came down with this fibro, I was gonna stop birth control when he got a full time job and see what happened. Can't really do that now. Anyway, I wonder if I shouldnjust get all my stuff yanked out eventually if I end up having to have surgery. Wonder what it is with fibro and endo???
The following user gives a hug of support to biogirl71: monalisa24 (06-21-2011)
Hello my darling loves..Kids are waaaayyyyyyy overrated..trust me on that one..lolol..I wouldn't give mine up for the world..but, getting pregnant at 19 was not what I would want for my girls. I love my Jake more than words could ever say, and if not for him I wouldn't have my beautiful grandson, but it is a tough road to hoe..I had my tubes tied in 1989, had four pregnancies after, only one made it through, my lovely Laura. So sometimes there is a higher power working. Sorry you are feeling so crappy Di. I too am going through a really bad flare. My lower back feels like someone poured hot glass in it. I saw my NP yesterday, we are keeping all meds as is. Which is fine. However she told me to start fish oil and to keep on the prenatal vitamins for the B's..My weight just keeps going up and I am at a loss as to how. But she told me to make sure I eat protein three times a day. And NOT to just rely on yogurt..I just need to get back to work. I am at such a stagnant place its disgusting. I am turning into a creepy old cat lady..lol..I know I should be exercising, but I just have so much pain just walking and I am tired of just taking more pills for that. If I get this job and get on insurance believe me you are going to see this girl get some stuffs straightened out. Starting with the whole GI system. Upper and lower. Not even going into details...then can work on the body..I hope things get better for ya Di, and oh yeah, eff those emergency rooms. Been there...you tell them in that survey everything they should hear. I did when I got mine. The only good thing they did for me was wipe out my bill and now I have 100% free care there..Endometriosis is not a fun thing is it Di?? Lucky I have never had to deal with that. I hope you start to get some relief. And I am sure your boss is just as delightful as ever??? ML24, what a lucky gal you are to have such a sweet hubby!!! Where do you find these nice ones??? I am looking in all the wrong places...teehee. I am actually happy being single, but if the perfect man for me was to come along...hope you girls have a spectacular day, summer is here...wonderful thing is summertime. I have to suck it all up because winter is so long..love you ladies bunches x a million
peace and love and happy ovaries
The following user gives a hug of support to tooolgrl: monalisa24 (06-21-2011)
i cannot praise hysterectomy highly enough. i had one at 29. best thing i ever did for my body. also had endo. it took the doc 5 hours in surgery to get it all out. it had grown everywhere, even by my spine. he told me he had to get every speck of it or it would grow again.
girlfriend, there is a whole world of young people you can adopt at any age. adoption of the heart. much easier than birthing and when they mess up you know you did not teach them that, and you can say so! giggle. i have heart adopted 7 kids and 15 grandkids. love them just like they are my own, cause they are! i just got out of the hard part!
birth control will help some. i remember it did with me. tho at the end i was going for testosterone shots to stop the bleeding.
have fun filling out your survey. giggle.
peace and hugs,
Sandra, I am PRAYING for your job!! Thank goodness for insurance. What is sad is that I am still struggling with it. I had to sell my Wii last week in order to get my cymbalta (copay=$40 and is gonna go up to $75 with my new insurance) but I guess without the insurance, I would be selling alot more than a wii....LOLOL
Blue, hubby and I have discussed adoption. No problem with that!! My health must improve first, I can barely function right now. Oh, I did fill out my survey!!! Heehehehhehe. I am wondering something, though, I put may name and phone number on it (which is optional) but do you think since I work for the same health system, that was a mistake?? I haven't sent it yet.
WW, life is nothing but FUN!! ehehe.
all of you....thank you so much for the words of support. love ya so much!!
none of my kids are legally adopted. just in my heart and theirs. some i got as kids, others as young adults. my oldest is 89, a son. raised one from age 9, i was with her dad for 16 years.
i cannot imagine doing it now. i have one daughter i found when she moved in across the street for a year. there are no rules in my world of love. giggle. besides, young adults are less work and more fun. giggle.
hard call on putting your name down. i did and the admistrator of the hospital called me so i was glad i did. got the e.r. doc fired. me being me, i would put my name there and hope they do call me.
@WoodsWalker..if you want a hysterectomy, and you need a dr to say you need it for Ins reasons..trust me you can find a dr out there that will find a reason..i found a dr from a friends friend on finding my dr back in 03..they didn't find the endo till after surgery,,, good luck!
27 years ago the only way to diagnose endo was hysterectomy. mine was based on symptoms and when he got in there, there was a good reason to be there. i resisted for 6years. after, i wondered why i waited so long. i never had another migraine either!
@ Blue..i went for other reasons down there at first..she had me do a ultra sound for that and also to see if i had endo, cause i also said i hurt on one side,,it came back clear for endo but she said once she was in there shed look at both ov.
my left one was healthy but my right one was black and bad, so she took it. i still cramp on that side like its still there but like i said, now im thinking its like a Phantom pain ..our bodies remb ive heard and i really feel at least mine does..
my hubby rubs my back and side and it goes away, so im hoping its not re grown endo....yes i wish i would of had a hysterectomy 10 yrs before..oh my gosh what a blessing they are , i think if when your done having kids or don't plan on having kids i think we should all have a right to get one!!!!
no more mood swings and swelling ohh boy we don't need that! love it!...highly recommend!
Monalisa, I was scheduled for a hyster many years ago. Wayyyy back when I was about 22 I had an abscess that was the size of a large grapefruit on my right ovary and tube plus it was leaking bacteria thru-out my body. I had the abscess,right ovary and tube removed and all the bacteria vacuumed out . Lucky me, my OB was a fertility specialist and because I was so young he left everything just in case I wanted to have another baby that of course he would have to perform invitro because my left side was blocked. Fast forward about 8 years and I sought out the hyster. It was all scheduled. By then we had horrible HMO insurance and I had to change OBs because the good dr did not participate. Anyhow, everything was scheduled and 2 weeks before the surgery I was told I needed a Special scan with dye injected into me. Of course I asked why and the idiot Dr says he needs to locate where my kidneys and kidney tubes are so he doesn't damage them, they are buried in scar tissue... ummmmmm Is this not something I should have been told BEFORE I scheduled the surgery........That was the last day I ever saw that quack. So here I sit today loaded with scar tissue and a uterus that is laying on its side like an old dog.
The following user gives a hug of support to WoodsWalker: monalisa24 (06-22-2011)
Hi All, I was dx with ENDO when I was 19. I had scope surgery to remove most of the lesions (sp). I have 3 beautiful children and 3 beautiful grandchildren but paid dearly. I had 8 miscarriages due to the ENDO. I had to beg my OB to do the hysto he said he wanted me to wait until I was 33. after my last daughter was born I had my tubes tied. The ENDO pain was so severe that I decided to go back on the BC pills at 3 a day but before that did a prego test. Yup...prego but it was a tubal so had to have it removed. I did finally get my hysto at 33! I found that a heating pad on the abdomen works pretty good when just sitting around. Hope all goes well for all who are seeking this surgery. So far so good with the scar tissue thing. Had one endoscope surgery a few years back (15) and they removed what the patholagist said was a sutture....funny could it have been from my right tube that was not cut and tied right? I believe so! before the tubal prego I had the dye scan done and that tube was wide open...Oh well I'm at work and start at 8:30 so have to go. Not to mention I am rambling here!
Low pain all,
PS...what is it with Endo and FMS? I wonder too!
Dx'd with Fibro 2007
Anxiety Disorder since 1986
Depression - Now
The following user gives a hug of support to catkaru: monalisa24 (06-22-2011)