Jane - I think that's a really good point you make - that those who get better visit the boards less or not at all. I've "only" had fibro for 4.5 years so difficult to know if it's getting progressive as I've learnt to "manage" it soooo much better than before I was diagnosed 3 years ago. Mine was initially pain/poor sleep/fibro fog etc - more recently I've been diagnosed IBS but very mild in comparison to a lot of people and I think it's difficult to know whether I might have developed that anyway as I know lots of people who don't have fibro but have IBS.
Here the weather has been awful - plus our heating broke for 5 days when the temperature outside was - 10!! Not much fun and made me worse than I've been in a while - I think it's a combination of fibro and in my lower back the fibro is hitting a nerve so walking/sitting/sleeping all tough but gradually getting better. I was delivering a workshop for a client for 3 days - the participants were fab thank goodness so lots of positivity around which help[ed me rally myself - thought I was going to have to call the hotel staff to get me out of bed at one point in the morning though as I was stranded and couldn't move without feeling like I was being electrocuted!! Vile.......
However I'm off to sunnier weather next week and coming over the ocean to see most of you guys.............flying to Miami on Tuesday followed by a 10 day caibean cruise with a couple of days in Fort Lauderdale/Miami either side.........even if I have to stand all the way on the plane because I can't sit down I'll be there .........the thought of sunshine - I can almost feel and see it now..........
So - to go back to the OP question whether fibro is progressive I think for some it is and for others not - I don't think mine is - and as some of you know I'm moving to Italy soon (all being well in the next 12 months) mild climate which for me is my number 1 - which then means I can exercise more/eat better/get more natural vitamin D into me - so am going for that being my cure - watch this space
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Love and Light
thesweetlife
Last edited by thesweetlife; 02-10-2012 at 11:13 PM.
Sweetlife, I will keep a watch to hear the good word from you that Italy is the answer for you.
Jane I feel you are right about learning ways to control your symptoms and sticking with them can help. It's the 'sticking with' that is my problem.....giggle.....I let too much life get in my way. Eventually I figure a few things out and get back on track. I also think getting the right med protocol is important. I feel I have done that mostly, but there are a couple little things that I have figured out lately and I need to work on them.
We can't do anything about the weather and the barometer really does a job on me, but again I think if you keep an eye on it you can get ahead of it and take necessary measures.
I think this has been a great discussion and helpful too!
I am much better than when I was diagnosed in 2004. I only have pain flairs if I really over do it. I had severe fibro fog then and fibro pain. I could feel cold fronts coming in, fatigue, achey muscles, flulike pain, you know the drill. I don't have any of these symptoms now. So no, I don't think it is progressive.
I do have chronic myofascial pain and have been getting injections and physical therapy since 2004. When I hurt, I go and my pain mgmt dr. gives me injections in muscles that are knotted and won't release. If I didn't receive that care, I would be bedridden. Maybe my fibromyalgia symptoms went away because my pain from CMP has been treated as needed. I really don't know. I hope you feel better soon.
according to the paperwork my doctor filled out for me she said it was slowly progressive but hopeful it will improve drastically. i do feel a bit better than i did in the beginning but i know when i have a good im always afraid of whats to come. sometimes i cant get out the bed for 2-3 days at a time maybe twice a month but this is still better than those headaches that were debilitating.i havent had those headaches in about 10 months and are now trying to come back.now i cant remember what meds stopped the headaches but i cant take another pain med or i'll really be a zombie.
My doctor explained to me that fibromyalgia is not considered a progressive disease because it does not go on to do damage to actual body parts so to speak. However, the symptoms and effects can progress. I have become far worse than I was a year ago and can no longer work at this time. It seemed like just a year ago I had so much more of a life than I do now. What paperwork were you referring to that your doctor had to fill out?
Last edited by lilacs22; 03-29-2012 at 09:42 PM.
Reason: corrected spelling
You know, you're probly right. I know i tend to visit here when im at my worst... Its like i need to be part of this board more & see how others are doing. To be able to help best i can & enjoy everyones support & understanding...
Lilacs22, your doctor makes sense...
The company doing everything for me sent all my doctors questionairs which are then sent to SS. It's basically a testimonial to back me up...
I believe it is progressive, evolving. Since Jan of this year I have gone worse. I just don't feel "right". I used to be able to do a certain amount of things in a day regardless of pain, exhaustion levels. Now it takes all of my strentgh to take a shower or get dressed or take care of my 4 children. Life is a daily battle for me now and it is very frustrating.
The following user gives a hug of support to mom477: ms anxiety (04-13-2012)
Can totally relate... Just keeps getting worst...
There has to be a way if getting better... But I think that's all up to our bodies....
My friend with Fibro (she lives 5 mins from here). When fibro set in she was at work & started hurting really bad. The next morning she couldn't lift her arms or anything. It's been over 20 yrs since. At first it was really bad but she somehow managed to get it in control. Not sure if she even knows how she did it...
sorry lilac22
havent been on in a week or two to respond.my pcp filled out some paperwork from health and human services about my condition until i get my disability approved
Not much fun and made me worse than I've been in a while - I think it's a combination of fibro and in my lower back the fibro is hitting a nerve 
so walking/sitting/sleeping all tough but gradually getting better. I was delivering a workshop for a client for 3 days - the participants were fab thank goodness so lots of positivity around which help[ed me rally myself - thought I was going to have to call the hotel staff to get me out of bed at one point in the morning though as I was stranded and couldn't move without feeling like I was being electrocuted!! Vile.......
