I was diagnosed with Fibromyalgia almost 2 years ago. Prior to that I spent thousands of dollars for 6 years trying to figure out what was wrong with me. During that time I had constant pain and exhaustion, but there were periods of relief with all the other symptoms. Fast forward to present day...I'm in so much pain I have to use a cane to walk in the evenings, can't sleep, memory/cognative problems are causing daily life to be a great challenge. That's without a flare. During a flare I am nearly completely crippled and can't concentrate long enough to make it to the kitchen for a drink. I get half way there and go blank.
Whoever says Fibromyalgia isn't progressive is full of hooey. Either that or I am misdiagnosed.
I have been taking 30mg Cymbalta for 2 years. Lots of relief in the beginning...not so much now. Just started Celebrex 3 weeks ago, no change. I am getting screened for MS in 3 weeks - if negative I think I should see a fibro doc or a pain mgmt center. I can't keep my corporate job like this...38 yrs old. I bet with the right pain congrol I could put the cane down...I guess you are a long time member of this forum. What's your story? I like to hear other views...thanks for the reply!
Good point. I don't mean to incinuate that I will meet my demise because of Fibromyalgia. I certainly need better pain control and will look into that angle. I do however feel like every time I have a flare I'm left weaker than before. I bet one day they'll have to catagorize fibro into several classes. Those that get better, those who stay the same, and those that get worse. Or maybe I'll get better one day...that's the magic of fibro. Nobody can predict anything!
Definitely talk to your doctor about adjusting your medicines. Also, it might help if you can find a good physical therapist or massage therapist to work with. It can make a real difference in the pain levels, at least for me.
I agree with everyone's take on fibro and progression....giggle.....NO I am not a politician. Seriously though for me I have always said that the people who tell you fibro is not progressive don't always know what they are talking about. And I am not speaking of anyone on this board, I am referring to mainly the medical profession. I think fibro can and does progress for some people. And I am one of those people, that is not to say that I am down in bed all the time or can't do anything or all the things you would imagine with a progressive disease. What I mean is the pain, fatigue and all the other annoying things that go along with fibro have increased in intensity for me. I still do everything I can to fight the fibromonster and I win some and lose some.
So yes, my opinion it can be progressive.
The Following User Says Thank You to Glojer For This Useful Post: beasley005 (04-04-2012)
I think fibro is progressive. That doesn't mean it will end in death, to me. To me, evolving and progressive are pretty much the same thing. Your symptoms get worse. I've been diagnosed for 8 yrs, but looking back I had juvenile fibro. I can solidly trace back to 16 yrs of age. I just thought everyone lived with pain & were always tired. I've had every blood test, including Lyme's, and it always comes back with an elevated non-specific ANA but no other RA or Lupus markers. So fibro it is. My symptoms have definately gotten worse. Half the time I walk with a cane or, if I forget it (brain fog), I use my hubby as a cane. There are days I can type and us my mouse, and others I cannot. Temperature also effects me. The hotter it is, the worse my symptoms. So long story short, yep it's evolving or progressive!
The following user gives a hug of support to dakaboston: monalisa24 (09-12-2011)
I was hit with chronic fatigue when I was 18, 31 now. I spent yrs searching for answers & seen many Drs which as you know is frustrating... My fibro hit in 09 I believe... Or maybe it snuck up slowly. But in 09 the actual pain set in. Used to my body feeling heavy, sore & tired... I guess I was so used to not feeling well I didn't notice how much worst it got for awhile. Headaches 5 days a week I was used to. When my Rhum gave me the fiber diagnosis I didn't believe it till my first real bad flare. Seems like it just gets worst. Course it's like a rollercoaster also where it gets better then really bad again.
Anyhow, yes so far in my experience it is progressive... Maybe it'll stop progressing eventually? I also wonder if the Chronic fatigue is the same thing but a more mild form...
I do believe people are diagnosed by family Drs when it is low vitamin d, Lyme, ect. Most Drs don't seem to actually want to bother helping. Just want you in & out of the office.
I also believe fibro is progressive. I had RSD as a kid/young adult and now I'm having serious fibro/CPS. The doc said that I've had it for years but with having a family, being busy, etc I just was overlooking the symptoms. It hit me VERY hard post hysterectomy. I had surg in the summer and stopped working in Dec. I applied for a medical retirement and disability.
I really do believe my symptoms are less severe than they were 8-10 years ago. I don't know if it's due to me learning better tricks to manage it, or just due to the grace of God, but I am better. Most nights I can sleep without being awakened by pain, while 9 years ago I was only able to sleep for about 5 hours before my back hurt so much I'd have to move around to ease it.
I know for some of you it just keeps getting worse, and I know that my symptoms could come back worse again. Still, everyone reading this should remember, the people who get better, at least enough to go on with, aren't usually hanging around the board, so improvement is possible. People who develop full-blown fibro rarely recover 100%, but improvement is possible.
Hi Jane, that's a great observation....that the people who get better enough to go on are not usually hanging around the boards. I think we do have a tendency to check the boards more often when we are not feeling good enough to be up and out or involved. Like right now for me.....giggle.
Learning to control it Definetly helps! Learning to live life differently, meds, sleep. Exercise... Time of year also...
The other day pain was getting bad. Normally I'd lay there miserable grinding my teeth (maybe grinding, dunno... Just know I hurt so bad I feel it in my teeth). Anyhow, I made myself get up & exercise. It helped I never would have don't that before. Yes it seems like the fibro gets worst but learning new tricks help...