I have been dx w/Fibro, OCD, PTSD, Bipolar, IBS, sleep apnea, hypothyroidism, athsma, migraines, nine surgeries before a hysterectomy from endometriosis, (right ovary remains) I have my own full time cleaning business, mother in law has terminal leukemia, estranged from family aside from a toxic mother. I become exhausted after each stressor, over and over. Mentally and physically. I am missing work. I take celexa, neuleptil, thyroxin, haldol, oxycontin, tylenol 4, acidophulis, mostly pot works the best. My GP is a tool. I am going to a pain specialist in Jan, i want to be very prepared. My pain is intense, especially upper back, neck shoulders and Headaches. My mood is easily influenced. How can I understand what the barometric pressure vs damp vs heat offers me and what i should be prepared for as the seasons change? Its like the brain fog is so bad and the PTSD does funny things to my brain and i dont see what is actually happening and how i can be prepared or prevent illness. Jada
The following 2 users give hugs of support to: Jada2 Glojer (10-13-2011), kirstee (10-15-2011)
Jada that is a lot to have going on and can seem so overwhelming. Many people on the boards with fibro have multiple health issues, it seems one leads into another. From the title of your thread, sounds like you have the attitude that can overcome some of these problems. There is no one answer to your questions. Trying to be prepared for the changing seasons and barometer is almost impossible unless you want to put the time in to make charts, keep records of weather and journals of how you felt during each cycle etc. And even with all that fibro is so inconsistant it may not help. I know I sound gloom and doom, but I'm not. My best advice is to keep a good attitude, relax and let as much stress float away as possible and take the rest of it one day at a time. Come here on the boards and unload some of that stress here, we listen we don't judge. We are here to support you and offer suggestions over the rough spots. Find something that totally takes your mind off the problems at hand, reading a book or taking a long hot bubble bath or getting a massage, or just fantasizing about being out on a lake floating away in the breeze. Some times just clearing your mind helps you focus on the problem at hand. I know there will be others with some great suggestions, so you hang in there.
The following user gives a hug of support to Glojer: Jada2 (10-13-2011)
The Following User Says Thank You to Glojer For This Useful Post: Jada2 (10-13-2011)
Thank You Glojer for being such a caring person. I don't have a very strong support system right now. I had a really stress relieving cry as I read your reply. I think mostly I needed to know I am not alone.
I came home from the GP today to talk about what I think is IBS and he sent me home with tests for colon cancer. He shakes his head at me and says there is nothing we can do for Fibro and it is all psycosomatic and I'm doing this to myself. I understand what he is getting at but isn't there anything I can do to alleviate my symptoms and have a chance at keeping my cleaning business? What kind of Doctors should I be looking for? I feel like as I age, as the stressors build, my health gets worse as far as pain and exhaustion. I do have the Pain doc in January but would other specialists help?
PS...my husband just got us a massage table and we tried it last night. It was so easy for his sore hands to massage me really well and I feel the benefits today....I went to work today!!
glad glojer touched your heart. she has a way of doing that. have you seen a rheumatologist about fibro? that's pretty much where we all start the journey. afraid i would tell your gp to eat dirt and fire him. glad you got the tests tho for cancer. best to rule that out so you can have some peace of mind. don't freak about it. i have had several tests over the years for cancer. awaiting results now of another one.
support is critical to sanity. that's why all us nuts are here! giggle.
hang on, just fell off my chair . . . you have a hubby who knows how to massage? i knew such miracles existed, giggle. you lucky girl!!!!!
you may have to downsize your clients for a while till you find your balance. my pain doc has fibro and she works 6 days a week and refuses to take any drugs for fibro. is there any way you can get in to the pain doc before jan.?
grab a rope, make a swing and hang on. breath deeply and slowly. i do use imagination therapy to help me get thru the rough times. you could pretend you are cinderella? giggle. hey, whatever help you get thru the day!
The following user gives a hug of support to bluelakelady: monalisa24 (10-14-2011)
Jada, so glad you had a good cry. Crying to relieve stress is a good thing. Do you know how jealous you make those of us with hubby's who couldn't massage their own big toe......giggle! Enjoy those wonderful massages, they can be so nice. Like Blue said, I would be telling my doc to eat dirt, or actually worse I'm afraid. Fibro is not a psycosomatic illness. NO ONE.....repeat that....NO ONE does this to themselves. If it was all in our heads, we wouldn't have such a disease. Docs who think that are way out of touch with current medical knowledge. There are way too many people suffering with fibro for it to be a psychiatric illness. For years the docs treated my aunt with sleeping pills and anti depressants, saying it was her nerves that made her sick. When she was in her 60's she found a doc who told her she was allergic to everything outdoors and had severe asthma. Took her off all the 'nerve' medicine and made her feel so much better. What a shame she had to suffer for so many years because of bad doctors. Don't believe that nonsense about fibro and you causing it. Sorry, I do get a little upset about that....giggle....my pcp tried that patients with fibro need antiD's thing on me. My finger flew up and started pointing at her and my mouth opened and I heard this stern voice saying, " let's get one thing straight. I am not depressed and I don't need an anti depressant." She said OK and that was the last I heard of that. We finished talking about my health care and our plan for me and have been fine every since. Ok off my soap box now.
I am glad you got to go back to work. It may sound silly, but sometimes having a purpose, something to do and get your mind off your frustration is helpful. I don't see a pain doc, but many on the boards do and that is probably a good place to start. If you could get an earlier appt. that would be good. If you can't getting in to see a good rheumatologist is a good idea. Another thing to do, I think, is to be sure your thyroid is a max for you. A good endocrinologist if you don't already see one is very important. I take Armour thyroid for my hypothyroid and it is so much better for me than synthroid. Armour is the natural. And I get copies of my bloodwork and keep track of my numbers. I like my TSH around one or under one. Anytime it gets up close to 2.0 I start feeling not as well. It is a combination of things that puts you at maximum 'feel good'. Oh, I just realized you listed Bi Polar as one of your health problems, please don't let the docs tell you that is why you have fibro. I know many people that are Bi Polar and don't have fibro and live normal lives.
Sorry Jada, I might have rambled a bit. Hope you are feeling better.
Location: Northern Califorina United States of America
Re: What Came First, The Chicken or the Egg?
Wow, I dont know were to start. My first advice would be too never watch any Dr. Tv Shows. They all brain wash you and your self wellness! Think about this for a moment. Twenty to Thirty years ago. When life was so simple. 90% of Americans were as healthy as a baby. Now 8 out of 10 have Chronic disorders. My point is if YOU think you are ill, done, your ill. If you use all the God given mind power that is yours and only yours. Self healing is moments away. Positive Positive positive, thoughts only. Ok!! Life is a wonderful gift. Smile and keep smiling no matter what. All my positive energy is with you now. Please stay away from the Doctors that are causing you all pain and suffering.
The Following User Says Thank You to Hugejapackage For This Useful Post: Jada2 (10-15-2011)
What excellent advice you have been given. I was loving the responses about positive thinking (you are what you say), and not listening to the doctor who states this condition is psychological. That is what some doctors are being trained to understand. This condition is not in your mind - it is in your body. You are on your course to find out what works best for you. Do not hesitate to let go of a doctor that is not co-partnering with you on this journey. Listen to your inner voice because it will tell you a lot if you take the time to tune in. Keep your mind free of negative thoughts and move forward. We are holding you up during this difficult time.
Jada, your post made my weep....
The following user gives a hug of support to kirstee: Jada2 (10-15-2011)
The Following User Says Thank You to kirstee For This Useful Post: Jada2 (10-15-2011)
Oh Gojer, you make me laugh, i love your humor...i am passionate about humor! Bluelakelady....you give really good advice...i love how you guys communicate around here. It is soo refreshing. I feel relaxed when i come here and excited to see who said what. You guys don't even know me and treat me with more understanding and respect than the people I call friends. From the bottom of my heart, you are good people.
I will ask for a reumy, and endo and see about seeing the pain guy sooner. I will tell you, for all the crap I go through, my husband(well common law) of 22 years is amazing. Sometimes I feel like I don't deserve him, he treats me like a princess. We don't have money, supportive family or children but I know what we have is unlike anything I have ever seen in other people. Are you gonna puke yet or what? I won the love lottery and coming from a really broken home: I understand what I have is rare. He has seen me through many dark years. We have been able to separate my symptoms from each diagnosis and try to identify almost on a daily basis, how we need to approach each day. All I need to do now is get rid of the negative stressors...sounds easy doesnt it?
I have to say one thing about the massage though....It did take me 22 years for him to do it...lol
puke? nope. applaud, yes. giggle. love is a very rare and special gift. not all of us are fortunate to find it so you go ahead and be the love winner that you are girl! 22 years huh? hey, better late than never! it sounds like you both have a partnership balance about your health, critical to sanity. giggle.
i am glad you feel comfy here. we like to keep things warm and gentle and loving. like an oasis in a desert we come here and help each other get thru the hard times in life and health. glojer and i are getting to be the oldies here. giggle. hey glojer, we're oldies!!! but goodies, giggle.
a stranger is a friend you have not said hello to yet in life. hello friend. there are no strangers here, just friends who we all come to love in a way we never thought possible. we are all sisters and brothers of the heart and the heart knows no boundaries.
please don't expect your friends to be super supportive. keep the ones who do the best they can to adapt with you and dump the rest. believe me it frees up so much energy for healing that was wasted on stress. such a pointless emotion.
blessings to all for a lovely day of deep breaths, long happy sighs, and love.
The following user gives a hug of support to bluelakelady: Jada2 (10-16-2011)
Jada 22years is great, it proves you are both committed to working at a relationship. It is hard work sometimes, but some men are keepers. I have one of them, it will be 41yrs. for us in Jan. Even though he can't give a massage! You are right Blue has some great advice and one of my favorites is her advice on friends who don't support you. Or put another way, drain your energy. Over the years, I learned that the hard way, wish I had Blues advice a few times in my past.
So glad you found this site so we can share in your unique talents and gifts and you can share in ours.
The following user gives a hug of support to Glojer: Jada2 (10-16-2011)
BLL and Glojer make Jada feel all warm and safe. These are feelings she wanted from blood relatives and is learning family is who you let on your bus. They get a front seat and we are going to the amusement park, Jada is in complete control of her bus and surroundings. We are going to ride the roller coasters together!! All aboard!!