Hello everyone. First off I just want to say that it's so wonderful that there's a place like this where we can all get support and feel understood. I got diagnosed with FM about 3 years ago, but I never wanted to accept that diagnosis, I was always looking for another cause of my pain, or another test that could be done to prove it was something else. Well, recently I finally came to terms with my condition. I'm done mourning over the loss of who i used to be, I just want to make progress and do whatever I can to make this better. I'm seeing my gp today about getting a referral to pain management. He already told me he'd give me a referral once I found a doctor that I wanted to see.
I still get pretty down about things.. I know you guys understand how the pain just wears you down until you feel like you're half of a person. I'm lucky to have a compassionate and understanding husband. I'm only 24, and I'm in excruciating pain most of the time. I have two girls, ages 3 and 4. I also take care of my disabled father who had a herniated disc and is now on oxygen for COPD. He can barely leave him room, so I care for him and run his errands and such. I also parent my 16 year old brother, which is quite difficult at times as he likes to get into trouble. I do all the cooking, and cleaning, etc. And on top of everything, my father is really hard on me and always acts like I never do enough.. It's really difficult when loved ones just don't understand.. even if they try to.
Honestly, does it get any easier to deal with being in chronic pain?
Thanks so much for reading.
The following 3 users give hugs of support to: mandi_hart330 kirstee (11-18-2011), lifonahil (11-17-2011), monalisa24 (11-18-2011)
That's great you have a supportive husband! I'm still working on mine... However, you have your hands full! I have 4 kids but luckily 3 are older so help with the youngest (12,9,8 & 2). You have 2 little ones to keep you busy as it is! Then you have to be on top of a rebellious teen... Ugh, then taking care if your dads needs... Flat out taking care of everyone! I hope you are taking care of yourself? I kno it's easy to put yourself on the back burner, but it catches up...
Well, you have excepted this & mourned the loss of yourself. Those are 2 huge steps! I know those are tough hurdles!
I wish I could give you advice on a supportive family, but docent even get my hubby to do that.
Have you talked to him about your probs? Read him information? He needs to stop wallowing in his own self pity & think about what his daughter is going through before giving her a hard time! You deserve his respect. Not sure of you are one to stand up against him... If you aren't you should.
I don't think dealing with chronic pain gets easier... But we learn to adapt...
I used to want my husband to understand, but found out he never will... Then I just wanted his moral support. Not gonna happen. Now I'm just happy if he doesn't say something that hurts my feelings. If you don't have anything nice to say, don't say it... I wish adults would learn that... We teach that to our kids right?
The main thing is learning to control it... We have to change our lives so much & also ourselves. It's unfortunate most of us are ashamed to even tell people we have Fibro because people are so uneducated about it.
yes it does get easier. since you just decided to accept your body with fibro you need time to find your balance and ways to adapt to the new you. i have been at the game for 17 years i think and it does get easier. mostly it's about adapting.
sorry about your dad. it's not easy to parent care.
welcome to the boards! giggle, i remembered!
Easier?...not for me.....7 yrs now......off all meds now for 3 yrs, same pain on or off them........ But we learn to adapt... what else can we do...we must be happy in what we can do each moment and be ok with vegging on really bad ones.....limit stress is a big one for me..im raising 3 teenagers 2 are stepchildren....I lost a 16yr marriage due to this Illness, but luckily found a wonderful man 3 yrs ago, married this Nov was our 1 yr Anniv....
try and live life, find the little things that make you happy!...
dont always say NO i cant,,even if its 5 mins of something that you know dang well you'll pay for,,...JUST DO IT.......i ride on the back of our motor cycle in the summer,,,it just about kills me,,,but i enjoy the moment, the memory, time spend with my Husband...its worth the suffering!..I lived in bed almost for 4.5 yrs.....missed out on my life... I refuse to allow FIBRO to have control!!!!!
Hi Mandi! So glad you found this fountain of blessings! If anyone deserves a big hug, it is ((((((you)))))). You are on your way to found out what helps you. It takes awhile, but you can do it. Somehow, always find time for you every day, even if it's a short span of time. If you do not do this you will grow angry and resentful (been there, done that you know).