Uhhggg.
I HATE going to the ER...because I feel like they don't take things like this seriously...they find the easiest and quickest thing to tell you and send you home.
I'd rather wait til tomorrow to talk to my doctor who I am comfortable with and who will take me seriously. If tomorrow she wants me to go to the hospital, then I will...but I just don't trust ERs.
Maybe it is wrong of me...but my past experiences with going to the ER have not been real great...I feel like they sit around waiting for something terrible to happen like a car accident victim or something and anyone else who comes in just isn't important.
The following user gives a hug of support to Linds13: monalisa24 (01-03-2012)
I kind of feel the same way about the ER. If you're bleeding profusely or having a possible heart attack, they're great. But if you have something that could be complicated and DOESN'T seem to be an immediate threat, they often can't do much.
Ask a doctor to treat you with physical therapy for Myofacial Pain Syndrome. It is kind of like Fibromialgia and as you may know already they sometimes occur simultaneously in a patient. However they are not the same thing. I have experienced what your describing for 3 years the only relief I have gotten is physical therapy for Myofacial pain in the cervical region. The best I can tell you and keep this short is...Myofacial pain causes referred pain, like headaches, toothaches, and neck/back pain. This pain can often be caused by trigger points that you may have developed in your neck due to your Fibro tender points. If your doctor says you have trigger points From Fibromialgia or anyone else for that matter they have been miseducated. Fibromialgia causes soreness in tender points. Myofacial pain causes referred pain that radiates from trigger points, in severe cases like mine, there can be thousands of trigger points. Not just 11 to 18 tender points. Physical Therapy will get rid of the trigger points in your neck and relax the muscles that are causing your headache. Good luck to you....it was a long battle and still is to get rid of those migraines...I am still holding off on the Botox. Facial injections are extremely painful.
The Following User Says Thank You to artistgrl For This Useful Post: Linds13 (01-03-2012)
Well, I just got home from the doctor.
I have extremely high blood pressure (which can cause extreme headaches and nosebleeds). She put me on a blood pressure medication and gave me another medication to take when the headaches become extreme...she said hopefully a week or two into taking this medicine my headaches will be completely gone. That is ideal anyways. She also ordered a bunch of different blood labs to see if they show anything else.
If they don't go away or get worse, then she wants me to get a CT done because my symtoms are also similar to that of brain tumors.
The only reason she didn't go ahead and do the CT is because my insurance won't pay for it unless there is proof that you have "tried other medical therapies first," which I think is completely ridiculous, but there isnt much I can do about it.
So, we will see how this goes...
The following user gives a hug of support to Linds13: monalisa24 (01-03-2012)
That's why i ask you to go to the ER...but yes i agree with you on that the ER is usually a big waste of time an money... was just worried with the bleeding and such....we as fibro suffers just feel everything is Fibro an we need to just live with it, but then if something really is happening to us we brush it off.....:/....Im sure its not a brain tumor but yes im sure she'll ok a Scan just to be safe so dont stress over that. my daughter had tests an they came up saying she most likely had a brain tumor. went through all the scary tests 2 x over...at the end it came back alll clear!..but boy did we get allll worked up over it!!!..hang in there feel better ,,please keep us updated ...
The Following User Says Thank You to monalisa24 For This Useful Post: Linds13 (01-03-2012)
I have to agree that as Fibro sufferers we do tend to just blame everything on the Fibro. I know I definitely do. These headaches have been going on for weeks and until the nosebleeds started I was just chalking it up to the Fibro...
As Fibro sufferers we kinda get screwed, because I know that I am very hesitant to go to the doctor about any kinda of hurting anymore, because I feel like a lot of times when you tell a doctor "Oh, I have Fibromyalgia." They just automatically assume that any pain you have IS because of the Fibro...so I think that sometimes they don't look as hard for things as they should in Fibro sufferers. I am very lucky that I have a very open and thorough doctor that trusts my feelings and believes me when I tell her, "I just really don't think this is Fibro related..."
The following user gives a hug of support to Linds13: monalisa24 (01-03-2012)
When do you get a follow up appt ?...how are you feeling so far on the BP med? my hubby started BP med i think,,2 yrs now ago,,it took about a month for him to start feeling better an not the weird drowsy feeling....
The Following User Says Thank You to monalisa24 For This Useful Post: Linds13 (01-03-2012)
Ah, that makes sense. High blood pressure could definitely cause that, and I am SO GLAD it was identified right off.
It might take trial and error for you to find the right drug and dose to control your blood pressure, but do keep trying until you find it. Also, you may need to eliminate caffeine and consider limiting salt. A home blood pressure monitor might be helpful at some point. And check all your other medications to see if any of them can affect blood pressure.
The Following User Says Thank You to janewhite1 For This Useful Post: Linds13 (01-03-2012)
When do you get a follow up appt ?...how are you feeling so far on the BP med? my hubby started BP med i think,,2 yrs now ago,,it took about a month for him to start feeling better an not the weird drowsy feeling....
I have a follow up in 2 weeks, Jan 17th, unless it gets worse.
I haven't take any of the BP meds yet. She said to take them at night before I go to bed (I'm assuming that is due to the drowsy feeling that you are talking about). If you don't mind me asking, what medication is your husband on? She prescribed me Inderal. It is a beta-blocker.
Ah, that makes sense. High blood pressure could definitely cause that, and I am SO GLAD it was identified right off.
It might take trial and error for you to find the right drug and dose to control your blood pressure, but do keep trying until you find it. Also, you may need to eliminate caffeine and consider limiting salt. A home blood pressure monitor might be helpful at some point. And check all your other medications to see if any of them can affect blood pressure.
I'm definitely glad that she caught it right off. I just hope that this really is what is causing my problems and not something more serious...time will tell.
Also, I already stay away from caffeine (because it causes me to get HORRIBLE kidney infections), and I am not super fond of salty things...so that shouldn't be an issue for me to get around. I am definitely going to get a home BP monitor just to have around if I need it...because in the past I have had major issues with passing out, ESPECIALLY if I get too hot...now I am thinking that was probably part of the high blood pressure problem.
Any other info you can share would be greatly appreciated...I know NOTHING about HBP or how to deal with it...
Also, I am only 22 years old...and I am very thin (always have been). Is this a more common issue than I am realizing...or is it kind of weird that I am already having HBP issues...?
I hope your Dr really looks into everything for you!...and it might not be a bad Idea if you could get a 2nd opinion but from a Dr outside of the care center your Dr is at, they tend to not like to step on each others feet if ya get what im saying....they don't like it, but i think id get another Dr view if you can if possible...
Hang in there Hun..ive been thinkin about you alot....ttys...prayers your way....like kirstee said...
the Dr said it takes alittle time,,try an stay calm,,,do you know how to do visualization?,,,it helps when im in the point of no return severe pain ....i tell everyone to leave me alone for about a hr..yes im pretty sure i read where you have a very young child to care for,,,but if you can draw a bath, an i went all out , the wave music with some lite piano music in there, a scented candle, a bath pillow,spritz body spay,,, sea
sponge,,,the works,,
Id try and feel, think like your at the beach,( my favorite place to be),,,,it helps with pain and lowers your blood presser and helps you sleep later....
Hugs ....MonaLisa..ox
Last edited by monalisa24; 01-04-2012 at 04:09 PM.
Reason: wording
