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Old 12-27-2011, 10:59 PM   #1
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Thumbs down Severe headaches with fibro?

Hi. I was diagnosed with fibro when I was 16. I am now 22 and have been managing it (although not very easily) since then.

Within the past 3 weeks I have started to experience SEVERE headaches. These headaches are always localized to the area above my right eye. My vision becomes blurry in the right eye. I become extremely nauseous and often times vomit during these headaches. It has been lasting anywhere from 12 hours to 3 or 4 days. And this has been happening once sometimes twice a week. I also have been experiencing almost an electric shock sensation in my face and even the inside of my mouth. It is not painful, just very annoying and lasts only a second or so, but recurs repeatedly several times in a row.

Is this anything fibro associated from anyone else's experience? Or is this something different?

 
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Old 12-28-2011, 07:02 AM   #2
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Re: Severe headaches with fibro?

Quote:
Originally Posted by Linds13 View Post
Hi. I was diagnosed with fibro when I was 16. I am now 22 and have been managing it (although not very easily) since then.

Within the past 3 weeks I have started to experience SEVERE headaches. These headaches are always localized to the area above my right eye. My vision becomes blurry in the right eye. I become extremely nauseous and often times vomit during these headaches. It has been lasting anywhere from 12 hours to 3 or 4 days. And this has been happening once sometimes twice a week. I also have been experiencing almost an electric shock sensation in my face and even the inside of my mouth. It is not painful, just very annoying and lasts only a second or so, but recurs repeatedly several times in a row.

Is this anything fibro associated from anyone else's experience? Or is this something different?
To me it sounds like migraines. I've suffered from them for 30+ years and I get cluster migraines as you describe - that are above/behind my right eye. My eye weeps as well. I get very nauseous. I take imitrex. However, the new headaches I've experienced since my fibro dx are broad - above my entire forehead and temples and a neuro said they were migraines as well? But I have severe jaw pain with my fibro.

 
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Old 12-28-2011, 07:30 AM   #3
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Re: Severe headaches with fibro?

Ive never had migraines in my life so i don't know much about them.
So there are medications to control this? Because this is definitely not just your average headache pain. This is disabling pain. All i can do is go lay in bed and hope and pray that it eases up. Ive got a 2 year oldwhk doesn't understand "Mommy.doesn't feel good and needs to lie down." So it is definitely making life a lot harder.

Thank you so much for your response!!!

 
Old 12-28-2011, 08:30 AM   #4
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Re: Severe headaches with fibro?

Hi, I also developed fibro as a teen. (I'm 31 now).

Fibro can produce bad headaches, especially if it affects the neck muscles, but I agree with kikkim, it sounds like these headaches are different. Migraines, possibly.

There are specific medicines that work well for migraines. It's something to look into.

 
Old 12-28-2011, 08:36 AM   #5
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Re: Severe headaches with fibro?

Thank you both. That is what i needed to know. I knew that fibro could cause headaches because i have headaches pretty much on a daily basis, but they are nothing like this new pain I'm expiriencing. I will most definitely be making a trip to the doctor.

 
Old 12-28-2011, 01:26 PM   #6
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Re: Severe headaches with fibro?

I have the same probs. I had headaches since before being diagnosed, usually 5 days a week. I was so used to it I dealt with it & never thought much about it.
Once diagnosed I learned to rest more & that relieved the headaches. However, when I overdo it. I flare up & get the migrain like headaches. It starts off mild & gets worst. Sometimes if I rest it stops progressing but not always. Most of my pain centers from my lower Back, upper back then through my shoulders & neck. That pain also gets worst. Then as if that's not enough the nausea which I usually have gets worst. Usually I am so sick its an all day thing to run to the bathroom. Cant keep anything down. I usually stop vomiting by morning but one of these days I know ill go to the hospital for dehydration. My Dr prescribed anti nausea pills & they do nothing for me.
I thought the vomiting was because of the mixture between nausea & the migraine like headache. But, these days I'm flaring up, nausea really bad & vomiting without the headache... I think the vomiting is my body's way of dealing with the pain.
FM is such a tricky thing....
I have a busy 2 yr old also & know its tough! Its hard to rest when your eyes are following them all day. Mine loves to jump all over me & hurts me often. Sometimes its just so frustraiting. Luckily I have 3 older kids, 12, 9 & 8. They cause me allot of stress, always argueing, yelling, ect. But they are a big help with the youngest & do daily chores. They make a lot of messes but I make them carry their own weight.
My 2 yr old has a couple favorite shows & a few movies. I am able to get him to laydown on the couch with me as long as one of his favorites are on Tv. I take advantage of that on my worst days...
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Migraines?

 
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Old 12-28-2011, 04:51 PM   #7
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Re: Severe headaches with fibro?

yes,,ive been gettin them since age 4...Ibuprofen and a dark room is the only thing that will help me,,,,,im sooo sorry!

 
Old 12-29-2011, 01:11 PM   #8
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Re: Severe headaches with fibro?

I suffer from horrible headaches too that must be due to Fibro-- I have had migraines and these headaches are different. I do get the sick to my stomach feeling and do occasionally throw up. I have been having them more frequently lately and am trying to figure out how to get them under control-- at this point all I can do is to go to bed and sleep for a little bit. that usually makes me feel better but its not always something I can do..

 
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Old 12-29-2011, 01:44 PM   #9
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Re: Severe headaches with fibro?

Thank you all for your responses. I don't wish this amount of pain on anyone, but it is comforting to know that I am not alone.
Sleep has unfortunately not helped my headaches, and usually it is during sleep that they hit me the hardest. I wake up in the middle of the night because the pain becomes so intense. Also, nothing I have taken thus far has even touched this pain. Advil, Tylenol, Excedrin, Motrin, Aleve...I've tried them all and they do nothing.
And I have no idea if this is a related symptom or just something random, but this morning I had a massive nosebleed. I have not had a nosebleed in years...so it was odd.

Last edited by Linds13; 12-29-2011 at 01:46 PM.

 
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Old 12-30-2011, 08:26 AM   #10
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Re: Severe headaches with fibro?

I would definitely get the headaches checked out soon then-- especially if you wake up with a bloody nose after having one. All these things might not be related but why take a risk? I hope you find an answer but more importantly I hope you find relief soon!

 
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Old 12-30-2011, 02:35 PM   #11
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Re: Severe headaches with fibro?

I have a doctors appointment scheduled for Tuesday morning, so i will definitely let you all know what she says.

As far as symptoms: nothing new. I barely slept at all last night due to repeatedly waking from the head pain. Sometimes i feel like laying down just makes the pain even worse.

 
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Old 12-30-2011, 04:52 PM   #12
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Re: Severe headaches with fibro?

Hi Linds! In addition to the suggestions that were posted, here is another consideration. Some of the symptoms you related caused me to think about Trigeminal Neuralgia. The trigeminal nerve runs along the face, running behind the eye (I think), along the lip, and along the chin. When this nerve is aggravated, it can cause some nasty painful symptoms. Some doctors prescribe carbamozepine or gabapentin (anti-seizure drugs), baclofen (muscle relaxant), or tricyclic antidepressants such as amitriptyline or notriptyline. When I was having trouble with this condition, the doctor I saw was a pain specialist at UCLA hospital in L.A. He injected (don't freak out now) botox into various locations of the side of my face where this nerve hangs out. He did this several times during the course of a year, with the result being no more neuralgia. I really had come to the point where he could inject that stuff anywhere so long as I could count on relief. He may have also injected some cortizone along that nerve; I simply cannot remember for sure. If you have no success with your current doctor, you may want to ask for a recommendation to a pain clinic.

Hope you find happier days.

Kirstee

 
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Old 12-30-2011, 05:04 PM   #13
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Re: Severe headaches with fibro?

Thank you! I've been doing a lot of research and I believe that may have been one thing I stumbled upon because I remember reading about the botox injections and that particular nerve.
Can you give me a run down of all your symptoms? I'm interested to compare them to mine if you don't mind.
Thank you for your response and support!

 
Old 12-30-2011, 05:33 PM   #14
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Re: Severe headaches with fibro?

I agree, rather safe than sorry... Tramadol & Perc will lighten the headaches for me but not releive them. Tylenol and those kinds have never helped with my headaches, even before FM started... So I've only taken them a few times in my life.
Your nosebleed with the headache concerns me... Have you had an MRI done?
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~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
Old 12-30-2011, 05:43 PM   #15
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Re: Severe headaches with fibro?

I haven't had anything done medically. I have an appointment for Tuesday and I'm sure she will order an MRI and probably some other labs. We will see. The nosebleed really concerned me as well.

 
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