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Old 03-26-2012, 08:34 AM   #1
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haleyyface HB Userhaleyyface HB User
Exclamation 19 years old just diagnosed with fibro

I was diagnosed with fibromyalgia about 3 weeks ago. Also just had a thyroid blood test and have an underactive thyroid. I am a little concerned about the diagnosis. My symptoms: (been going on for about 2-3 years now) very fatigued, unusualy tired, and VERY achy on and off everyday, also have joint pain in knees, ankles, hands. My biggest concern is that I do not have recognizable "tender points" like fibro claims to be (OR if I do what are the points??). Could I have been misdiagnosed?? I have noticed I am a little bit young to be having this. I just started Savella which has some yucky side effects.. Do not want to take it if I might not even have fibro. Maybe I am just in denial?

I know something is wrong, but what if it is not this?

Other Information:
-Started levothyroxine and gabapentin(for shooting pains in my spine) 2 weeks ago.
-5'2 136lbs. pretty active work out 3 times a week
-'Okay' diet for my age
-Have some anxiety issues, panic attacks, super caffeine sensative

Need some input to be content

 
Old 03-26-2012, 10:10 AM   #2
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thefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB Userthefarm HB User
Re: 19 years old just diagnosed with fibro

Hello & welcome to the board!
What kind of Dr did you see? If its a primary you need to ask for a referal to see a Rhumetologist...
I think your symptoms are from low thyroid. It wouldn't hurt to see a Endocrynologist since they specialize in it.
The symptoms you are experiencing is likely low Thyroid. I'm hypothyroid also & take Armour.
Did your Dr run many tests? It's a really long process to rule everything out then look t your symptoms & tender points.
I hate that you may have been misdiagnosed then put on these meds... If you can go without them then you should... But you'd need to be weined off with your doctors help... I tried med free but laid on the couch not moving cause the pain was so bad.
I went 11 yrs trying to figure out what was going on. I didn't have the pain though that I do now. My body felt heavy and slightly sore & I am always tired. But pain set in & when I was told I had fibro it was wonderful to put a name to it & have a dr actually listen to me. But I didn't think I had the tender points,he said I had 11 at the time. I was in denial at first then had my first actual flare up. I listened then... Over the last 2 yrs the pain just keeps getting worst. All those years fatigued I could still run around all day long. Now I can't. The fatigue & pain holds me back. I over do it & really pay... I over did it exercising. Been about 2 weeks & still haven't recovered...
Anyhow, you could be in the beginning phase of fibro or it could be your thyroid which is easily treated. But this is for a Rumetologist & Endocrynologist to decide... I just hope you will get in to see them. There is no need to suffer if you don't have to... I really hope it's your thyroid & not fibro...

Hope it helps
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 03-26-2012, 10:19 AM   #3
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Re: 19 years old just diagnosed with fibro

Thanks for the reply. I am in a lot of pain honestly for my age, especially when I over work myself. It was a hometown clinic. I am in college, working seasonal jobs = No insurance. Which definately stinks I cannot afford to see a specialist

My doctor told me that I had the beginning symptoms of fibro, and that the Savella would make me feel much better. ?? Idk I guess I will just have to tough out the side effects and see if it helps

 
Old 03-26-2012, 02:10 PM   #4
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Re: 19 years old just diagnosed with fibro

It could see why it could be the beginning side effects... I had fibro symptoms for years before the pain set in... Chronic Fatigue which I beleive turned into fibro...
Have you applied for insurance through the state? Not sure if you could get it but would be worth a shot...
I went users with no insurance & it sucked...
I can understand your frustraition... I was 18 when it felt like I hit a brick wall... I was the happiest I'd ever been, very skinny, active & healthy... Then I felt like I hit a wall & never been the same. I also have derealization. It hit at the same time. I always feel drugged never goes away. But it's tough because if you say you are tired, hurt ect people like to say "your young, wish I was your age"... They don't understand that yes you are young but feel like you're 80... Or atleast that's how I feel... I'm 32 now & feel like ive missed out on almost 1/2 my life...
Anyhow, please apply for state healthcare. You aren't out anything trying & it would be wonderful if you could get the proper care you need...
Hang in there, it really does get easier
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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concerned, fibromyalgia, savella, thyroid, young age



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