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Old 05-08-2012, 06:59 PM   #1
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Need some help

So, as I told you guys before I got engaged. Now I'm trying to plan a wedding and I have no idea how to make it work. August 2013 I'm getting married with what looks like a 120 person guest list. My fibro isn't under control and I don't really do well with medication. I do what I can at home and I'm on a wait list to see a rhuemy and a pain specialist who's focus is fibro, but I don't know if I will get in to see them in time. What do I do for the wedding day? I don't know if I'll be well enough to walk down the isle, stand there for the ceremony, get pictures done (can't afford to get a photographer for 2 days), have a reception and then the wedding night. What if I'm in a flare and can hardly get out of bed let alone wear a wedding dress and sit there for hours to get ready plus the rest of the day?
I'm starting to lose the enthusiasm I have for the wedding and am starting to wish to elope, even though it's not what I want.
Help?
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Old 05-09-2012, 05:12 AM   #2
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Re: Need some help

Well, how far away is the wedding? Can you take time before that to just sit and relax and pamper your body? Maybe schedule a massage the day or two before the wedding to relax your muscles. Maybe a hot tub, something soothing for the week or two prior. Be good to yourself and be sure to get plenty of rest as well. This should be exciting, and worrying about not feeling good tenses you up even more. I hope you find some relief and can enjoy this wonderful moment.

 
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Old 05-09-2012, 06:04 AM   #3
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Re: Need some help

I think as the wedding draws closer and you get more and more excited the more you will do whats needed to be done and worry less about how you feel. If you stress and worry alot on how you feel or will feel on your wedding day the more you are going to hate it. Be positive and think positive. If everyone that is going to the wedding knows what you are going through then they should be supportive and be there to help. How long is the wait list?

 
Old 05-09-2012, 06:10 AM   #4
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Re: Need some help

Thank you for replying! I'm going to be relaxing before and doing my best not to stress, even though I'm a worrier so that will be hard :P. My wedding is August 2013, so I have 15 months. The wait list, the shortest possibly (but least probable) is 6/7 months for the rhuemy and a year for the specialist. I applied for the rhuemy a month or two ago and the specialist in december. I know I'm most likely freaking out about nothing, but it still scares me. I have a hard time committing to going to the grocery store (which is 5 blocks away) for half an hour let alone book an expensive wedding a year and a bit from now not knowing how I'm going to be doing then. Yesterday was a bad day, and I'm hoping that today I'll do better trying to stay positive...
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Jenna
22
Fibromyalgia
Heart Rhythm Issues
Anxiety
Depression
Possible CFS
Possible IBS

 
Old 05-09-2012, 06:29 AM   #5
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Re: Need some help

Hang in there. You are on the right track. By the time the wedding rolls around you will have seen the rheumy and hopefully gotten you on a way to better health and healing. Stress is not good for fibros. Not that this is news, but it really wrecks havoc. Maybe buy a simple yoga CD and start trying that. I think learning relaxation techniques at an early age is the best you can do for yourself. It will get better.

 
Old 05-09-2012, 09:13 AM   #6
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Re: Need some help

Hey there!
You have a year to get stuff organized. The closer it gets the more you have done & won't be so overwhelming. Get as many people as you can involved to help. Try not to overwhelm yourself. The week before the wedding rest as much as possible. This will help you feel better & enjoy everything going on. Unfortuetly it's easier to say you'll rest rather than actually doing it. But do your best
When my husband proposed it was about 2 weeks before we conceived our son. We kept putting off planning the wedding cause of other stuff always going on. Luckily i didnt get very big. People didnt even notice i was pregnant until around 7 months. At 9 months I looked maybe 6 months along. Around a month before He was due we decided we just needed to hurry up & just do it. So, we were married 4 days later! Lol It was a redneck wedding but I wanted something simple & fun. We were married in our feild. My husbands friend married us. We didn't have all our families there but oh well... Our kids walked down the isle blowing bubbles. A friend made our cake as a wedding gift. We had a pot luck & everyone had a good time
Anyhow, if we can get that done in 4 days imagine what you can accomplish in a year!
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~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
Old 05-09-2012, 01:20 PM   #7
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Re: Need some help

Hi!
Some ideas to think about......
Keep your wedding vows short - the part where you will be standing. Your minister will gladly work with you on this.
You know what are your "best" part of each day is for pain - try to work with that.
Nothing says that the reception has to immediately follow the ceremony. Pace your day by having the wedding earlier and the reception in the evening. This way you can rest between both big events. If your guests are close enough to be invited, they will be willing to be there for you at anytime.
(If your photographer is a good person, and knows your circumstances, maybe he/she will accommodate your needs by working both of these times for the same price.)
Make sure at the reception there is always a chair with comfy padding ready for you - even if it has to marked For the Bride.
Don't do a receiving line.
Just some thoughts.........

 
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