Originally Posted by sylviasix
I have had 5 sessions. Of course I thought that for sure this would help. I read many good things about it but not necessarily for fibro and CFS. I finally received disability and used a good portion of my back pay to pay for this treatment. I was looking forward to the day where I could afford this treatment. Not only don't I feel better but many of my symptoms that I was no longer experiencing have returned. I am in tears over this! I was told to keep coming because the adverse effects would go away. I expressed how poorly I was feeling and they finally said that after this many sessions the adverse symptoms should be gone.
Wow, this describes my recent experience with a highly-recommended, well-established chiropractor. With every treatment, I felt worse, until I suddenly developed excruciating sciatica radiating from the lower spine (where he was focusing the vertabral adjustments), making my entire right buttock feel like I'd been struck very hard with a steel pipe, with pain shooting down my leg to my foot. I could hardly walk; I was hobbling around like an old man in search of a cane, when I had been walking just fine when I first started treatment. My BP also stayed abnormally high, despite my regular BP meds. I had never
had sciatica before in my life, but he kept telling me further treatment
would help. Further treatment for a new and painful affliction his current treatment had apparently caused??
(Which really reminds me of your experience.) No way
, in my opinion.
So I went to my MD, who felt major inflammation had been induced in my lower spine and gave me a cortisone shot. In a couple of days the pain was gone. Unfortunately, cortisone also seems to worsen my depression (which I think bottomed out yesterday, I was so down), but at least I could sleep without the piercing pain.
My point is that I sometimes wonder if perhaps a few practitioners (of any kind) want to prolong your treatment for their own benefit (if you get my drift), even when they see that you're worsening, not improving, under their therapy. I had a cognitive therapist try to have me sit with with her and her dying dog at her home
when I was struggling to pull out of deep grief over the death of a beloved cat I'd had for twenty years. As sensitive as she knew I was to the death of pets, that would have traumatized me and completely undone me emotionally. I stopped going to her immediately.
I too have taken biofeedback for my lifelong fibromyalgia
, and it did nothing to help me. If it is making your symptoms worse, I would question the notion that it was beneficial at all for you. I was told that it would have some immediately positive result if it worked. It did not.
But I did feel stressed by the feedback sessions. Any extra stress can provoke FM.
Just FYI, I have a brain wave device myself, and experimentally I have induced extra anxiety, tension and pain by using high beta waves. The few positive results I have had involved emphasizing SMR and low delta waves.
I believe that fibromyalgia is chronic (likely physical) damage to the whole nervous system, and biofeedback is a partial treatment at best, if at all. Can biofeedback cure diabetes, arthritis, Parkinson's? From my decades of suffering with FM, I agree that good, sensitive massage therapy is probably the best relief (but not cure) for FM symptoms, followed by comfortably hot epsom salt baths. Also, minimal stress, healthy diet, and moderate exercise.
PS: Regarding "healthy diet", I have to limit acidy foods (e.g. tomatoes, lemons) and cow's milk products (goat's milk not as bad), both guaranteed to increase my bodily pain. Just a little bicarbonate of soda at night helps, too.