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Old 05-27-2012, 09:46 AM   #1
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Unhappy bad day with fibro

It has been ages since i have posted. and just needed to vent because of this xxxxx fibro. went to my granddaughter ballgame first and then later to my grandsons. It was so hot i thought that i would just melt into the bleachers. Since i have had this fibro i seem to sweat like you would not beleive. My hair was a wet as if i had just shampoo it and my shorts was wet like i had peeded my pants. It seems like i cant go anywere any more without some kind of problem. And then my son made a commet that well i suppose your fibro will kick in for the next week. It hurt my feelings and i wanted to cry. Noone understands that we dont want or ask for this stuff to happen. Guess i should just stay at home and not worry about embarrassing myself.

 
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Old 05-27-2012, 12:06 PM   #2
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Re: bad day with fibro

I'm sorry It's really tough... I never really sweat till recently... I was always lucky, would take allot. But the last couple years it doesn't take much to sweat. Then I've been taking Savella for a few months & now it's been like 10x worst. I don't have to do much, just be in 70 degree weather & pours off... Anyhow, I know how embarrassing & frustraiting it is...
What meds are you taking? One of those could be makin it worst...

Unfortuetly people may not intentionally try to hurt our feeling but easily can...
I wish I could say to not take comments personally but that's pretty much impossible...
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~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 05-27-2012, 01:54 PM   #3
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Re: bad day with fibro

Hi. Your reaction to your son reminds me so much of my reaction when friends tell me hwo well I look. This seems to happen when I am dying inside. I think " are they saying I am not really sick". In my good moments I know they are trying to be kind.
Your son may have been showing you how aware he is of you fibro and this could be his way of letting you know he understands.
Anyway, we all have these awful days and they suck. keep well

brend

 
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Old 05-27-2012, 05:59 PM   #4
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Re: bad day with fibro

I have always had a issue with sweating and it has gotten worse where I feel like it's menopause or peri-menopause (I'm 35). Sorry your son hurt your feelings. People who don't suffer from chronic just do not understand. A ex-friend of mine would always tell me to stop making excuses and using my health as an out. Wow I could not stand that at all. If only she could see me now that the pain is now visible, i.e. using knee brace, have to use a cane to walk, wear a neck brace when needed. Hang in there and tons of hugs of support to you.

 
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Old 06-17-2012, 08:12 AM   #5
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Re: bad day with fibro

I received that treatment from some friends when I first got my symptoms.
Then when they (and family members) saw that I couldn't do what I used to anymore, they believed me.
The sweating issue, really had some family members worried.
I don't just do it when I'm hot, but when I'm stressed too. And it seems to be at the least little bit of heat/stress too.
During the summer I just have to make sure I'm extra hydrated, or I'll dehydrate easily and hurt worse.
For work I'm thankful I can wear ballcaps, to keep from wiping my face all day long!
It's a hassle, but part of my problems that I can't change, so I just have to deal with it.
Two things have come from this though.
A large number of various colored ballcaps (plus having to color coordinate my outfits with them), and a number of "stay cool" shirts from Joseph A Bank, to keep me cooler during the summer. LOL

 
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Old 06-17-2012, 08:41 AM   #6
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Thumbs up Re: bad day with fibro

thanks gstin. i also have the problem of sweating when stressed. Ball caps are a great idea..a little easier for a guy then a waoman and also easier for a guy then a woman when your hair is soaking wet.. But glad that it has helped you..

 
Old 06-17-2012, 12:28 PM   #7
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Re: bad day with fibro

fibro worn, oh does that ballgame sweating etc. sound so familiar. I seem to sweat more in my old age, but especially when I am adjusting my thyroid meds and go hyper. It was nice to be warm and not have to wear a jacket all the time, but I didn't like the wet feeling. We know our children and we know how they express themselves and what they mean. Sometimes though when we are feeling bad and sweaty and hot from sitting at a game, we may misinterpret. Don't let it bother you and eat at you, ask him what he meant. At least that is what I do, I'm not afraid to wait until I can think about it and if I'm still bothered I just ask.....what did you mean when you said......were you being sarcastic or what? I don't start a big deal, I just like to know and let my feelings be known. In our family we don't like letting things build up, too much family fun time to have to let that happen. Sending good positive energy your way.

Glojer

 
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