Welcome to the board! Coming here is one of the best things you could do for yourself! The help & support here is often better than hat any dr could do for you. I would have been worst off if I didn't find this place when I did.
Like blue said, you need a new dr. Please see a Rhumetologist. If you are already then you need to see another one. It wouldn't hurt to see an Endocrynologist also...
Congrats on the weight loss! I wish I could do that... Less weight to pack around would make it soo much easier...
What meds are you taking? I hope you are on Savella, Lyrica or something like it. I've tried med free & just couldn't do it. I hurt to much to do anything... Unfortunetly even with those my pain has only gotten worst and worst. I take Tramadol every day now. Used to take it only when I was in a bad flare. But feel like I'm always in a flare these days. Tramadol is the least addictive I believe for prescription pain meds. I take IB Profren with it which helps it work better for some reason... Tress make pain worst so controlling that really helps... My husband is really against marijuana but even he has mentioned me getting a prescription for it. I may actually do that one of these days. I often drink a glass (or two) of wine in the evening which helps take the edge off. I know we aren't supposed to drink but it helps me... I can't take tramadol after 5pm or I'm wide awake all night. I also tke a muscle relaxer at night which helps me sleep through the night.
Do you have any idea how you lost the weight? I'm lucky if I can just keep from gaining more... I was 145 after I gave birth to my last child a few yrs ago... Within just a few months I was upto 170 & have maintained that... I'm only 5' 2" & this is a lot of weight for me. My healthy weight ha always been 120.
Blue, why did sjogrens cause you to carry weight? What did you do to lose it? I'm going to a new Fibro Specialist (yay!!!) on Monday & wanna be tested for sjogrens... I'm going to be going to a specialist at OSHU which is the best around! This dr only treats fibro so can't wait to see if she can help!
Sky, my Rhum gave me answers I needed and has put me on the meds I needed. But otherwise he doesn't listen & blaimed fibro for everything. There is nothing wrong with seeing more than one dr. I see one primary for my thyroid, another primary helps me with my fibro & tests I need done yearly & really listens to me, then there is my Rhum. There is nothing wrong with being picky about drs