It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Fibromyalgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-17-2012, 08:18 AM   #1
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Energy level

So my neuro drew blood again last week to. Check a few things. B12 and vitamin d came back pretty low. So I get the b12 shots weekly for 8 weeks and also startes taking 5000 iu of vitamin d a day. I have noticed that my energy level is alot worse since I started both those things on friday. Is it normal to go backwards when those 2 things are started?

Also has anyone been prescribed Vimpat? I am nervous bout starting it because of the side effects.

Hope everyone has been doing good lately.

 
Old 06-17-2012, 11:50 AM   #2
Senior Veteran
(female)
 
Glojer's Avatar
 
Join Date: Mar 2005
Location: St. Louis, Mo. USA
Posts: 3,692
Glojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB User
Re: Energy level

Mom477, I don't notice a whole lot of difference when I take the Vit D although I know it is good for overall health. But taking the B shots certainly brought improvement for me and right away. I did not seem to go backwards. Did you feel better and maybe did a little more that normal and that has caused this feeling of going backwards? I gave myself the B shots and still do every month. I don't notice that blast of extra energy like I use to, when I take the shot. But when I have my thyroid pretty much in line, I notice a more sustainable level of energy with the B shots.

Glojer

 
Sponsors Lightbulb
   
Old 06-17-2012, 11:58 AM   #3
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

It was right away I felt a drop in energy. It takes every part of me to get to go to the bathroom. My energy has never been this bad. I am ready for a nap just by making something easy to eat like a sandwich. I slept majority of yesterday. Coffee doesnt wake me up like it used to. So frustrating with having kids and I can't take care of them right now.

 
Old 06-17-2012, 12:09 PM   #4
Senior Veteran
(female)
 
Glojer's Avatar
 
Join Date: Mar 2005
Location: St. Louis, Mo. USA
Posts: 3,692
Glojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB User
Re: Energy level

The only time I feel that tired and fatigued and like you say, want to lay down. It is when I am hypothyroid. Everyone has a different level of what is hypo for them. If you haven't already maybe you need to see a good endocrinologist that will work with you to find the right level for you. I just went through a bout of that awful tiredness and am now trying to adjust thyroid meds to a level that will help. Also maybe one of the meds you are taking is causing your tired feelings. You might need to check that out. I feel for you, because I have been there.

 
Old 06-17-2012, 12:14 PM   #5
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

As far as the docs say my thyroid is fine but maybe i should see a specialist to tell me since my primary said my levels were fine with b12 and vit d but my neuro said otherwise. Im taking my reg meds and they've never affected me before like this.

I do see my primary tomorrow so will be bringing it up. Also my memory has sucked big time. I just feel myself spiraling down and i cant stop it.

Last edited by mom477; 06-17-2012 at 12:16 PM.

 
Old 06-17-2012, 12:55 PM   #6
Inactive
(female)
 
Rhaquel's Avatar
 
Join Date: Apr 2012
Location: Austin, TX
Posts: 59
Rhaquel HB UserRhaquel HB UserRhaquel HB UserRhaquel HB User
Re: Energy level

Vit D and B should be raising your energy levels, so if all other things are the same, that would be unusual.

Vit. D and thyroid hormone bind to similar receptors called steroid hormone receptors. A different gene in the vit. D receptor was shown to predispose people to autoimmune thyroid disease. I have read that Vit D is actually a hormone, so no surprise that it binds to those receptors.

I am on therapeutic doses of D for the second time in 2-3 years. My dose is
10,000 units a day. I am nearly at a perfect level according to the labs range, but Wednesday at the endocrinology visit, she said stay on it. Hypothyroid patients have different needs for D, I think. Anyways, your dose is not too high. I would talk to a doc, maybe the form of vitamin you are on is a problem. My doc has put me on a brand that also has 500 mcg of vit K1 phytonadione, and 50 mcg vit K2 menaquinone-7. She emphasized to me wed. That she wants me on this one with the vit k in it.

Are you possibly chemically sensitive? I see you are hesitant about side effects, so I ask. I gave myself B-12 and B-6 injections. The docotr ordered preservative free since I have MCS. This was delivered from college pharmacy in the Denver area. I never had a problem with it.

 
Old 06-17-2012, 01:01 PM   #7
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

Yes I am chemically sensitive. I thought Id be feeling a difference for the positive already

 
Old 06-17-2012, 01:25 PM   #8
Inactive
(female)
 
Rhaquel's Avatar
 
Join Date: Apr 2012
Location: Austin, TX
Posts: 59
Rhaquel HB UserRhaquel HB UserRhaquel HB UserRhaquel HB User
Re: Energy level

I would try preservative free. That is excessive fatigue ur describing.

 
The Following User Says Thank You to Rhaquel For This Useful Post:
mom477 (06-17-2012)
Old 06-17-2012, 01:32 PM   #9
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

Is there vitamin d without the extras?

 
Old 06-17-2012, 02:19 PM   #10
Inactive
(female)
 
Rhaquel's Avatar
 
Join Date: Apr 2012
Location: Austin, TX
Posts: 59
Rhaquel HB UserRhaquel HB UserRhaquel HB UserRhaquel HB User
Re: Energy level

There are different forms of D, but I'm no expert, and don't have a good enough memory to recall best form to take. Mine is Vit D3 cholicalciferol.

(I don't have any special knowledge to advise you, but the doc prescribing it for me is a former ER doc, board certified internist, who changed to open a nutrition + medicine practice to target diseases such as heart disease, diabetes, obesity, cancer, auto immune conditions, neurodegenerative diseases, depression, arthritis and allergies, thyroid, etc)

I ususally have trouble with drugs on the Porphyria Unsafe List. I don't see vimpat or its generic on either the "safe" or "unsafe list". (Don't know if you've had any exposure to theories about MCS and the porphyrias.).

 
Old 06-17-2012, 02:38 PM   #11
Inactive
(female)
 
Rhaquel's Avatar
 
Join Date: Apr 2012
Location: Austin, TX
Posts: 59
Rhaquel HB UserRhaquel HB UserRhaquel HB UserRhaquel HB User
Re: Energy level

Sometimes when I get to feeling really bad I'll go to a health food store and buy a couple of drink paks of something with trace minerals ( that's a brand name, too). If I get an electolite drink in me,and/ or a drink with antioxidants in it, and there are two very popular brands for that, sometimes it will help me out of a slump. When I'm having bad muscle pain that feels like a reaction to an exposure to a bad med or chemical, I'll indulge in some gatorade. Sugar can help a porphyria attack, and then get lot's of vit. C into my body then, too. I think that's what they do intravenously for porphyria patients in the hospital --glucose and C.

 
Old 06-17-2012, 05:40 PM   #12
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

Rhaquel you were right bout the additives in the vit d. I actually didnt take any and as today has worn on I have gotten energy back. So I will look for ones without the additives

 
The Following User Says Thank You to mom477 For This Useful Post:
Rhaquel (06-17-2012)
Old 06-17-2012, 07:40 PM   #13
Facilitator
(female)
 
bluelakelady's Avatar
 
Join Date: Sep 2004
Location: blue lakes, northern california
Posts: 5,461
bluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB Userbluelakelady HB User
Re: Energy level

perhaps try a search for vegan vitamins? amazon is the cheapest. i find a huge change in my energy and overall feeling when i use vegan vit's. also easier on my tummy.
diet is the best way to get your vitamins but if you're anything like me ya just can't eat that much food in one day! giggle.
peace,
blue
ps. i know glojer loves her vit B shots. beginning to think it's worth considering. i would have to stop the oral ones. my B's are very high, yet i sleep 19 hours a day. giggle. go figure.

 
Old 06-17-2012, 07:55 PM   #14
Veteran
(female)
 
Join Date: Jan 2010
Location: Colorado
Posts: 382
mom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB Usermom477 HB User
Re: Energy level

I forget the numbers but my b12 levels alot lower and vitamin d levels are low but not too low. Knowing about the b12 levels being low explains how Ive been feeling. I will look up the vegan vitamins

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
What is your Vitamin D level? Misty800 Fibromyalgia 9 04-01-2012 10:08 AM
No energy to do anything! iamamachine Fibromyalgia 4 02-10-2011 05:14 PM
You know those 'bursts of energy?' BelleoftheSouth Fibromyalgia 20 10-14-2009 09:18 AM
food energy & stretching for Fibromyalgia fatigue neveragain444 Fibromyalgia 21 04-08-2009 06:56 AM
Irwin Naturals Triple-Boost Caffeine-Free Energy ~ anyone ever try this? neveragain444 Fibromyalgia 1 03-28-2009 07:44 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin




TOP THANKED CONTRIBUTORS



bluelakelady (366), WoodsWalker (132), thefarm (111), Glojer (103), tooolgrl (94), biogirl71 (88), janewhite1 (85), kirstee (60), monalisa24 (55), tmrots (41)

Site Wide Totals

teteri66 (1167), MSJayhawk (1000), Apollo123 (899), Titchou (836), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 05:05 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!