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Old 06-27-2012, 08:39 AM   #1
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Smile Any Suggestions Appreciated!!!

I don't know if this is the right board to be on for me, but here it goes.
I'm a 47 year old male, with no past health problems, still active in sports, very slim, 5'7, 135 lbs. Started with sharp chest pains, last October, went to ER(1st time). Did EKG, blood work, no heart-attack, but heart racing, and bp was high. Given something to relax, symtoms better. PCP requested, Ecto-stress test, couple weeks later. Looked good, other than some minimal leakage back. Went around for next 5 months fearing a possible heart-attack(anxiety) had it's hold. December, had fluttering on left side of chest for 24 hours, had cat-scan(contrast) dye, showed no clots, looked good.
In March, different PCP, DX me with coastal cartilage,a tear between the ribs, causing the pain. Always feel like being strectched. Sharp chest pains, stopped, having every 7-10 days, since started taking Magnesium, in April.
Never did take celexa, probably should have, since I just sit on the sofa at nights, watching TV. I'm now active again, and not worrying, just frustrated,little angry, because since March, been having twitcthes, 2-4 times hour, every day, and pain top and bottom of left arm, sometimes right, in ankles, headaches, and feel flu-ish 1x week. Back to Doctor in June, checked for Lyme(bitten twice), Lupus(sister has it, and Fibro), and Thyroid.
Just got results, all negative. Recommends going to Neuro now.
Currently just take multi-vitamin, fish oil, magnesium, and melatonin, but no pain meds, advil, or anything else.
Wife is very frustrated, and doesn't wanting me to go to any more Doctors, so I stopped telling her how I'm feeling.If nothing else this experiance, has given me a understanding, or compassion, for people that are in pain, because of things like fibro, and Lupus. I know this usually effects women, not men, I just would really appreciate some words of wisdom, about what is going on with my body. Thanks so much!!!

 
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Old 06-27-2012, 03:19 PM   #2
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Re: Any Suggestions Appreciated!!!

hi stick,
welcome to the boards. we will find out if you belong here or not. giggle. there is no test for fibromyalgia so i have to ask, how were you tested for it?
it's hard when your whole life suddenly changes and there is no difinitive why. first advise, breath dude, breath. second, do your best to protect your wife from this reality. her frustrations may be a manifestation of fear for you. i know it makes no sense, it never does. if you have been the strength in the family this is a huge change for her too. use that compassion you are learning dear man. she needs it as much as you do.
in time we hope to find a balance, a new balance in life and marriage.
age plays into it as well. i'm older than you so i can say that, giggle.
for your peace of mind keep searching till you find something you can live with as an answer to the way you feel. the so called best first step is to see a rheumatologist. be picky. if you feel unheard, find another.
never forget this is your health and your life. without peace of mind life is way too much work, giggle. go find your peace.
peace,
bluelakelady

 
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Old 06-28-2012, 02:28 PM   #3
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Re: Any Suggestions Appreciated!!!

Hi BlueLakeLady,
Thanks for your response! I guess I just need some direction on where to go next, to get straight. I know something been wrong with my body for months now, despite tests being normal. I haven't did a Fibro Test, I have heard it's like 18 points or so, the Doctors nurse, I last went to, said it sounded a lot like it, and she has male patients with Fibro, because I thought it only effected women.
I'll look into the Rheumatologist. I have three teen-agers, and before all this started I was as active as them, and that's where I would like to get back to. Thanks again for your response.
God Bless,
Stickboy

 
Old 06-28-2012, 05:28 PM   #4
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Re: Any Suggestions Appreciated!!!

hi stickboy,
many think it only affects women. wrong. so it had simply been brought up as a possibility. a rheumy will test you for a bunch of stuff, hopefully give you a good feeling over for tender and trigger points. those are spots that drop you to your knees with the lightest touch. you will fill out a ton of paper, be asked many questions.
don't downplay how you feel and don't over play it either. be short and to the point. doctors have limited memories and a tendency to pick out one thing you say and not hear the rest. if i remember there is a symptoms list at the top of the front page for us at the fibro board. worth printing out and circle or highlight the ones you experience. if not the fibromyalgia foundation also has one.
personally i think there are many men out there dealing in silence with this disorder of the body. i feel for them.
love teenagers! they are like baby birds, learning to fly, preparing to leave the nest. fatigue is an issue for you. do you sleep deeply? simple suggestion would be some non prescription sleep aide, like benadryl. it was very helpful for me in the beginning. waking up tired was a new experience. after 17 years i am still waiting to get used to that aspect of fibro.
please feel free to post whenever you want. till you know what you have, you have us to dump on. let's protect that family of yours from seeing dad afraid. it will take time for family to get on the loving side of this. you too. one thing i learned is best for those i love. i don't talk about it much if ever to them. after all these years i find my health boring to talk about. not true when it was new. i think the confusion and sense of losing your way of life makes us talk a lot in the beginning. we're scared! we hurt and are not prepared for life with pain. it takes time to learn to do it with style and grace. giggle.
have a lovely evening.
peace,
blue

 
Old 06-29-2012, 03:46 AM   #5
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Re: Any Suggestions Appreciated!!!

I'm not allowed to post a link, but I want to tell you that because so many men with fibro do not meet the tender points test, the American College of Rheumatologists have removed that part from dx criteria. If you search "american college rheumatology fibromyalgia tender points men" you can verify that.

IF you search for a doc to rule out the rheumatological stuff that share some of the symptoms, let me warn you that all doctors do not believe in fibromyalgia. My last rheumatologist wrote that she didn't believe in it on the record of that visit. This was after she wrote a note for me on a prescription pad that I DO have fibromyalgia. I suggest you do internet searches for treating doctors. It's a real mental let down to have a lousy appointment ( and wasted money & time). You can also see if there is a local support group person who keeps a referral list, or a "bad doc list". You are welcome to post threads on forums, asking for referrals in your city. My new habit is to search any potential dr online using the name, city, and the word "review". I prefer opinions written on a site where I can see that a real person wrote the review.( on one you can see every review a person evr wrote, and figure out if someone is paid to pad results.)

It's important that you still stay active enough. Intense exertion and fast paced workouts eventually may go by the wayside for the vast majority, but you have to get some exercise. Too much takingit easy is counterproductive, for those who can manage to keep moving.

When you get to a doc, you and he/she may decide that a medicine to help get you more deep sleep would be a good course of action. It made a tremendous difference for me.
You can look up stuff about fasciculation on line. That's the medical term for muscle twitches.( See the thread from6/20/12) I think magnesium is a possible solution. You may want to read Mark London's( MIT)article on fibromyalgia and magnesium. He has fibro. Some people swear by one form of it and other's by another. Search any forum for recommendations. Lots of talk about vitamin d also. I'm on my ssecond round of therapeutic doses of D in three years( blood test, which most rheumatologists run automatically) I don't know if those deficiencies wait to start up until we are in this for many years, or if they are part of the problem. Vitamin D is said to be a hormone, and very critical.

There's another related condition called costochondritis. I maay be way of base to bring it up, my apologies, but it involves intense chest pain, and you mentioned that. I know nothing about it, except that people post here about it. See Woodswalker's entry on the thread:" Re: burning pain, and chest wall pain"

I believe that it is critical to our health to TRY to be positive. I fail at that quite often, but I think since stress makes this worse, and there's a tendency to adrenal fatigue, try not to worry about this too much. Wait until test results come in before you worry, and think about develoing coping skills like meditation, or self- hypnosis, or relaxation techniques, as part of your self treatment. If you do an internet search for "study mindful meditation brain matter" you can see it's science, not fiction. Peace, it's important. Best wishes, and be seeing you here, I hope.

Just saw somewhere else that the National Fibromyalgia Association lists FM doctors online.

Last edited by Rhaquel; 06-29-2012 at 05:36 AM. Reason: Info add on

 
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Old 06-29-2012, 10:07 AM   #6
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Re: Any Suggestions Appreciated!!!

Hello,
Unfortunetly most of us spend years trying to get answers. Going to one worthless doctor to another. But you are on the right path. My mistake was not going to specialists. I went from one family doctor to another & the problems we face, they aren't trained for.
I'm sorry, can't seem to function today so please forgive me if I ask questions & you've already mentioned...
Have you seen a cardiologist? It sounds like you've had many tests done on your heart. There are conditions out there that can cause chest issues. A Rhumetologist will be able to test you for those.
Being bit by a tick twice makes me wonder... Make sure you bring it up to all doctors you see. With Lyme it's my. Understanding that the test docs use aren't very accurate. I believe naturalists have more accurate tests but they are expensive & as far as I know, insurance won't cover them.
When I was diagnosed with fibro pain was still setting in & I didn't have any Tendar points that I knew of. I didn't beleive it at first, not until my first flare & things kept getting worst. Now I do have the Tendar spots. My 2 yr old manages to find them numerous times a day since I'm fun to climb & jump on... Ugh
Anyhow, like the others said, stay positive, don't stress, don't exert yourself.
You should write down any and all symptoms. What happens when you over do it. If you have an issue after you eat something, ect. Listen to your body.
Blue hit the nail on the head when she said to speak up about your symptoms but don't exaggerate because a dr won't take you do serious I you do. I've always had a habit of putting a smile on my face & downplaying everything. Maybe I would have been tooken serious years earlier if I opened up more. I've neve been good at showing weakness. Still plaster a smile on my face around family & friends.
One more thing, please bring your wife along with you to see doctors. Doctors will take you serious when you have someone there backing you up.
A few yrs ago I tried seeing a new doctor. When I left I was in tears by the time I got to my car. I jut knew it was a waste of time & the doc didn't seem to listen. Then about a month or so later, for some unknown reason, I decided to go back & see her. That time I brought my mom. There was a big difference on how the doctor acted that time. She really listened, took me serious & actually seemed sympathetic! It felt sooo good to have her take me serious & not treat me like a hypochondriac... That's how after 11 yrs, I finally got answers. It's easy to feel hopeless & alone but it won't always be like that. You will find the right doctor & you will get answers Hopefully it is something easily treatable or curable.
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Old 06-29-2012, 10:28 AM   #7
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Re: Any Suggestions Appreciated!!!

I forgot to say that someone just clued me in to the fact that for some people melatonin makes them very depressed including suicidal ideation. Some small studies show it helps depression, but there are many anecdotal stories of the exact opposite. I have to say, that since stopping it in the last week, the suicidal thoughts are sooo much reduced. I'm moving back to a more "normal" depression, and I do feel the melatonin was responsible for the escalation that ocurred.

 
Old 07-05-2012, 09:20 AM   #8
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Re: Any Suggestions Appreciated!!!

Hey thefarm,
Thanks for your response. You must be young, if you have a two-year old. I remember those days, and I do miss them. My kids are 20,18, and 15, and they used to all have a hard time keeping up with me, before I started feeling like crap most of the time. They think, most of my symptoms are in my head, so I don't say anything to them when I'm having a bad day with pain in the joints, arms, or chest.
No, I haven't seen a cardiologist. I wanted to, months ago, but my wife was against it, because I had already had some heart tests done. This has caused a rift in our relationship, so I am careful not to say but very little about it, and only when she asks, and I make it brief.
I noticed when I'm upset, or stressed the chest pain of feeling strecthed gets worse, that's why I think it could be the Costochondritis, which inflammation is the main problem. My Doctor has recommended seeing a Neurologist, which I will at some point, since the twitches are worse, and more often. I am starting to be more active, playing basketball, working in the garden, and yard, which sometimes I just have to work through the pains, no fun, though, as I'm sure you know. Thanks again for your post and treasure every day with your little one, as time really does fly by when you have children.
Take Care,
STICKBOY

 
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