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Old 06-28-2012, 04:33 AM   #1
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dupitrons contracture and pyronies associated with fibromyalgia

Hi.
I have dupitrons and have and had surgery for pyronies. The consultant dealing with the pyronies has said he sees a lot of patients with fibromyalgia and both the above illnesses and believes their is a direct connection. This was two years ago. Since then I have had MRI on my neck area and growths showed up on my cervical spine. these turned out to be harmless fibrous growths and just need to be monitored to check on growth. Will have to be removed at some stage. No two cases are the same so growth can be fast or slow, as in years.
I was with my doc yesterday and along with my list of ailments i was almost embarressed to say I have a pain in my big toe. On examination he said I have arthritis in my toes, but that most of the pain was caused by a growth on a bone on my foot. NOw that he pointed this out to me, i can touch the bone and pain shoots through my toe. It will require surgery.
Back to topic. I asked my doc is there any consultant who can connect the dots off all these fibrous growths and look for the underlying cause. I believe it is connected to fibromyalgia.
Have any of you experienced anything like this.
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Old 06-28-2012, 06:35 AM   #2
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Re: dupitrons contracture and pyronies associated with fibromyalgia

hi brend,
ouch! no i have not had anything remotely like that. will you have surgery to remove this one? glad you got an answer tho. sounds very uncomfortable. sorry to be of no help what so ever. giggle.
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Old 06-28-2012, 07:44 AM   #3
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Re: dupitrons contracture and pyronies associated with fibromyalgia

Hi blue,
I will not have surgery until I have no choice, but it is inevitable. I made the same decision regarding the dupitrons and have had it for over two years without surgery.
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Old 06-29-2012, 05:07 AM   #4
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Re: dupitrons contracture and pyronies associated with fibromyalgia

Brend, that's very interesting. If I use my hands a lot, my ring and middle finger really pull toward eachother, and will cross and pull toward the palm. Been suffering with that for at least 15 years. do you know if it backs off sometimes? Or is yours or always constant, or do you not know because you HAVE to use your hands and don't ge good breaks. Thanks for the post.

 
Old 06-29-2012, 12:45 PM   #5
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Re: dupitrons contracture and pyronies associated with fibromyalgia

My DH , and Stepson both have dupatryns. There is a new procedure that they can do that dissolves the fiborous tissue. There is a like between Dupatryns and other fiberous growths. DH gets them in his feet. They are testing the same procedure for the fiberous growths.
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Old 07-01-2012, 02:01 PM   #6
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Re: dupitrons contracture and pyronies associated with fibromyalgia

I spoke to the surgeon on Friday about the proposed surgery for dupitrons and I took the opportunity to suggest the link to fibromyalgia. He has a colleague specialising in Fibromyalgia who regularly refers dupitrons patients to him. He believes there is a direct link between Fibromyalgia, dupitrons, pyronies and many other non malignant growths on bone and joints.
Interesting. If I can get the time and money and energy I will try to get an appointment.
Interesting
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