Thanks for your response Jane
As per the things you have suggested...I always wash our clothing with hypoallergenic detergent. Always have worn cotton underwear. In the shower I use Ivory soap. I have sensitive skin to begin with so chemicals are definitely a no no. As for condoms....we don't use them. I have a minor latex allergy (externally) that is a million times worse when using condoms. I'm in a very long term monogamous relationship. Unfortunately I can't quit my BC. Without it the pain I get during that time of the month leaves me bed ridden for days. I wonder though if switching the pill I use could make a difference?
My symptoms flared up after a horrid UTI I had in May. I tend to get one UTI a year ever since my fibro diagnosis in 2006. My body is just insanely sensitive to bacteria. I was given Macrobid for the UTI. A couple weeks later I got a yeast infection from the antibiotics. Canesten cleared that up. A few days later though I had vaginal/vulva burning. This has been going on ever since.
Some days the burning is just mild. Some days it feels like I've been lit on fire. Sometimes it will completely disappear for a few days but always returns. My dr has checked me for all infections, they're all negative. I went to see her yesterday and she blew me off. Didn't even examine me which was alarming because I told her that I can clearly see the skin at the base of my vagina (externally) is red and irritated. I'm positive that is where the burning originates and then refers pain into other areas.
She is still insisting that my bladder is the problem and doesn't seem to care that VV can cause burning on urination and frequent urination even without infection. She seemed to be quite offended that I have taken the time to do my research. I don't fit the criteria for cystitis. VV fits me perfectly. The only thing I don't have is pain with sex or tampon use (thank the powers that be! haha!)
My doc has me taking Macrobid after sex and Diflucan once a week for the next 3 months. She also gave me triacomb ointment. On top of this I take 150mg of amitriptyline for the fibro as well as probiotic capsules and cranberry capsules.
I have read that the Macrobid, Diflucan and triacomb combination has helped some people with VV. What bothers me is that my doctor gave me this plan insisting that it's my bladder when it's quite obvious it's not. I'm trying my best to give this plan a try and also did some research for a great gyno in my area should I need to see one.
Any other comments are welcome!