It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Fibromyalgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-28-2012, 04:55 PM   #1
Senior Member
(female)
 
Join Date: May 2008
Location: Louisville, KY
Posts: 160
Lizardwoman85 HB User
Unhappy Need help, medications not working....

Hello everyone,

I was officially diagnosed with Fibromyalgia back in 2007, although I've had symptoms for many years before that.

So here is my biggest problem. Whenever I have a flare up it seems like that stage never goes away. It just gets chronically worse and worse with each flare. I am really losing my mind

I am on a huge mixture of medications and they just aren't helping at all anymore. The medications currently are Nortryptiline, Neurontin, Flexeril, Celebrex, and Indomethacin. I have tried changing my diet (which has helped some) as well as some of the easier yoga.

I am on Medicaid now, so I'm assuming it is going to be hard to get any further treatment. But I figure if I get a few plans I can see what I can get approved for?

Do you guys have advice on different treatment options for Fibro?

Thank you for your time!
Liz

 
The following user gives a hug of support to Lizardwoman85:
annie193 (08-29-2012)
Old 08-29-2012, 04:21 AM   #2
Junior Member
(female)
 
Join Date: Mar 2012
Location: Elizabethton,TN US
Posts: 13
annie193 HB User
Re: Need help, medications not working....

Don't give up. You need to find the RIGHT combination of medication for you. We are all different so we all medicate different. I have been on EVERYTHING! I am on a new drug that has made THE difference for me. Opana-Er, Neurontiin, Savella. I am on some other meds for other issues as well, but this is for my Fibro, and I also get the spine injected everything three or four months for the pain in my legs. I hope this helps a little. Rose

 
Sponsors Lightbulb
   
Old 08-29-2012, 03:51 PM   #3
Senior Veteran
(female)
 
Join Date: Oct 2007
Location: NJ, USA
Posts: 9,381
Blog Entries: 32
janewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB User
Re: Need help, medications not working....

It might be worth seeing if you can get some physical therapy, preferably with a PT who knows a bit about fibro.

As for medications, it really can take quite a bit of experimentation. And the severity of fibro can change over the years, sometimes it gets worse and sometimes it just gets better.

 
Old 08-30-2012, 01:06 PM   #4
Senior Member
(female)
 
Join Date: May 2008
Location: Louisville, KY
Posts: 160
Lizardwoman85 HB User
Re: Need help, medications not working....

Quote:
Originally Posted by janewhite1 View Post
It might be worth seeing if you can get some physical therapy, preferably with a PT who knows a bit about fibro.

As for medications, it really can take quite a bit of experimentation. And the severity of fibro can change over the years, sometimes it gets worse and sometimes it just gets better.
Okay, I can ask my doctor about any physical therapy. And ya the Rx switches have been all over the place. I hope we can get that figured out...preferably soon >_<

Thank you!

 
Old 08-30-2012, 01:11 PM   #5
Senior Member
(female)
 
Join Date: May 2008
Location: Louisville, KY
Posts: 160
Lizardwoman85 HB User
Re: Need help, medications not working....

Quote:
Originally Posted by annie193 View Post
Don't give up. You need to find the RIGHT combination of medication for you. We are all different so we all medicate different. I have been on EVERYTHING! I am on a new drug that has made THE difference for me. Opana-Er, Neurontiin, Savella. I am on some other meds for other issues as well, but this is for my Fibro, and I also get the spine injected everything three or four months for the pain in my legs. I hope this helps a little. Rose
I definitely know about the med changes. I've been on quite a few. Savella made me very, very sick. I was only able to stay on it for about a week before the side effects were just too much.

How painful are the shots for your legs?

Thank you

 
Old 08-31-2012, 05:01 AM   #6
Junior Member
(female)
 
Join Date: Mar 2012
Location: Elizabethton,TN US
Posts: 13
annie193 HB User
Re: Need help, medications not working....

They are more frightning than painful, and SO worth it! I have had 7 injections now and am not frightened anymore. Check into it! Rose

 
Closed Thread

Tags
fibro, fibromyalgia, pain, treatment



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin




TOP THANKED CONTRIBUTORS



bluelakelady (372), WoodsWalker (132), thefarm (111), Glojer (103), tooolgrl (94), biogirl71 (88), janewhite1 (85), kirstee (60), monalisa24 (55), tmrots (41)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (857), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 04:17 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!