doc says im Fibro-ish .. I'm terrifed its other things
Hi there. Long story short I've been sick for 8 years seeking an answer it originally started when I went to Mexico in 08 when I was 22. I was at Mayo Clinc Jax. Last december and they said I had CSS but my neuro says no. In Oct of last year I had a root canal and was fine for about 5 days after. I suddenly couldn't get out of bed after those 5 days. I was very shaky, dizzy, weak, body vibrating, tired and just felt terrible. Fast foward to today and I still am. My neruo said I'm Fibro-ish . I have been to every doc u can think of , had every test and nothing really.
I currently constantly feel like I'm vibrating, my muscles starting in the past two days are started to hurt and feel like they need to constantly be stretched. Sometimes it even feels "weird" to use my hands like they're not mine or they're hard to move. I never had pain before today but I have constant dizziness, constant (percieved) weakness, fatigue, blurry vision. My "pain" seems be in my legs esp under my butt and down the back of my thighs, they feel like they need to be stretched and I do stretch them and then they just feel weak and sore. I have constant all over muscle spasms/twitching esp in my legs. I'm not gonna lie I'm terrified its ALS and I can see that's a common fear here! I also have massive brain fog.ugh!
I had an EEG test a month or so ago and it came back normal but that was before pain started. Are these symptoms typical of Fibro? Can something like a root canal set it off like that? I also had a period of about 4 weeks where I felt pretty good, i was even running then I went bowling and forget it the next day I couldn't get out of bed again weak shaky tired. I rarely ever have pain and if I do it was usually only in my wrist. I thought you had to be sore at the trigger points to have a diagnosis.
My doctor tried to prescribe me Savella but after the bad reviews I did some research and went with SAM-e. I haven't noticed too much difference but I just started it this week
Last edited by MPVSGirl; 08-30-2012 at 04:39 PM.