I can totally relate...
I've had probs since 99 but managed ok until the end of 2009. Things have just gotten worst since. I've accepted CFS, fm, & my dissociative dissorder. I know there is something else going on but don't know what. The thing is, after almost 14 yes I've accepted that this is it. I know this is how it'll be. But my husband hasn't. He has gotten better but I can't Telly ou how many times I've heard "I can't wait till thy figure out what's wrong with you", "I can't wait till you are fixed", "you're boring", "you never wanna do anything", ect. I've had him make hurtful comments on my weight. It's been 3 yrs since he made me feel pretty. It's rare for him to say anything nice. He makes comments like I'm lazy. After diagnosis he said "if I were you I'd take pain meds & get moving. The funny thing is I used to run circles around him, always buy. He should know I'm not lazy. This summer I've popped pain meds & pushed myself. I do better this time of year. If I don't take my meds though the pain gets worst so then I'm vomiting. But even then, I've pushed myself & pushed myself, pain is always there, always hurt, but I do everything I can as long as I'm not vomiting or have the severe headache. That still isn't good enough for him though.
I haven't exercised in months before I have been taking care of the farm animals. I walk down there & back for exercise. But I can't do much more than that. I've been canning, freezing veggies, picking berries, ect. We have 4 kids & I do my best to keep the house clean & cook. Thankfully 3 are old enough to help. But I have been so overwhelmed & miserable because it's all catching up with me. Yet he's on my case because I haven't been keepin up on the small garded. No matter what he just can't say anything nice, just gripe. Then he complains because I'm getting grumpier as time goes by. Um hello, I hurt all te time, exhausted & push myself constantly then listen to him complain. The other day I was puking then went back to making applesauce & canning it. The only way he seems to take fibro serious is when I'm sick. So he told me I should do it tomorrow. But I had picked the apples 3 days earlier & spent each day trying to get to it. I'm stubborn & made the apple sauce.
Unfortunetly men really do want to fix us & can't... So they are frustraited & have a hard time excepting it. I don't think that's an excuse to make things harder for us... But that's just how their minds work...
Anyhow, sorry so long. Haven't checked in much lately & I can really understand what you are going through.
It's best to have them go to your dr appts but wish they were more effective...
I've been on Naproxin which is a prescription strength alieve. It didn't do anything for me so don't take it. But I have a cousin with fibro (1 of 3) & that's all she takes & does well on it.
I've always been against taking meds, even over the counter stuff. But I have had to learn to rely on them because they do help improve my life. I would be on the couch 24/7 in so much pain if it weren't for my meds. Morning are the worst, stiffness, pain & fatigue are the worst but around 1pm I start to move around & get stuff done. Then I over do it. But atleast I feel like I'm living alittle more
Welcome to the board! It's tough havig fibro & the beginning always seems to be the hardest