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Old 10-15-2012, 10:51 AM   #1
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new to fibro board

New To Board

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Hi all. Just joined the message board yesterday since I was at my wits end with how I was feeling. I spend hours reading posts about pain and symptoms and drugs used for fibro. I think I have been in denial but have had fibro for years. I am 54 yrs old and just approaching my 5 year "cure date" from breast cancer. I have been diabetic since 30 when became pregnant and have a beautiful 24 yrs old daughter. Held the diabetes at bay for years with diet but finally had to take meds about yrs ago. Lost 40 lbs in the past several years and lowered my medication..yay it is under good control!! I have been stuggling with anxiety and panic attacks since my mid 30's then the stomach problems started...then chostochondritis..then frozen shoulder...herniated disk..degenerative disk disease and carpal tunnel. I had early stage bc but had tohave surgery chemo and radiation. I was dx'd with fibor 2 yrs ago and was almost relieved I could put a name to all this mess of a body. I started to develop arthritis and my body felt like a ton of bricks and severe pain and never got over the chemo brain fog..it just got worse. Soon I felt like everything I had ever experienced in life came on like a freight train and found myself going to a rheumotologist who finally gave me the dx. I am extremely drug sensitive which I understand can be part of it. I tried cymbalta..head was spinning and was nauseous..so nixed that. Wont even try lyrica..cant take nsaids..aspirin..allergic to alot of anitbiotics and have a bag full of drugs I have tried and could not take. Now I think I am hvaing thyroid problems...when does this ever end? This is my worst time of year with all the weather changes..hubby calls me a living barometer since I am so sensitive to barometric changes..I go out of my head with exhaustion and sinus pressure. I currently take klonopin .5 mg in the am and 2 of them in thepm along with a muscle relaxer which gives me the ability to sleep at least 6 hours a night. All my docs want me off the klonopin since it is supposed to be used for short term and I have been on it for years after xanax stopped working. I just keep telling the docs that it makes me feel normal so why stop..I guess I just needed to vent and sorry this is so long but thank you all for being here. I just needed to know I am not crazy and this really is a disease!

 
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The following 2 users give hugs of support to: jessiesmom88
Glojer (10-16-2012), mom477 (10-15-2012)
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Old 10-15-2012, 07:07 PM   #2
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Re: new to fibro board

Hugs to you!!! Congrats on being cancer free. Take it easy and try not to overdo it. Everyone on thos board knows how you feel. Never fun and always seem to have other issues attached to fibro. I have my fair share and am just getting worse instead of better. Hopefully you can find a routine or vitamins or meds that can help. I have chemical sensitivity as well. Sucks huh. Hang in there!!!

 
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Old 10-16-2012, 06:08 AM   #3
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Re: new to fibro board

thanks mom477! Just nice to know their is somewhere I can go when I am feeling down for some support and understanding. I do alot of yoga on my Wii fit...it really helps me feel better but then I get a flare and just cant seem to get off the couch!! Frustrating!

 
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Old 10-16-2012, 08:22 AM   #4
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Re: new to fibro board

It sure is frustrating. Today all of my issues seem to be acting up all at once and I hate when that happens. I also have arthritis and neuropathy as well as fibro. Was gonna say other things but all went out of my head. Sigh

 
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Old 10-16-2012, 02:23 PM   #5
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Re: new to fibro board

Welcome to the boards, Jessiesmom88. Lots of wonderful caring people here. You mentioned thyroid and I am the big thyroid promoter on the boards. I am hypo thyroid (hashimotos disease) and my fibro would be out of control without proper treatment of my hypo thyroid. So if you think you have thyroid problems, find a good endocrinologist who can diagnose and help you. Most GP's, PCP's or Rheumatologists do not know how to treat your thyroid properly. They will tell you everything is fine and 'within range', but they don't know enough about it. Just putting my two cents worth in about thyroid and fibro. Everyone that knows me on here and is reading this, is nodding their heads, Glojer can get on the thyroid soapbox.....giggle.

Glad your here Jessie.
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Old 10-16-2012, 08:39 PM   #6
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Re: new to fibro board

Welcome to the boards. It truly is a good place.

Bravo on the 5 year mark. I totally understand the chemo brain, my mom had it quite bad after her chemo and radiation. Also she had neuropathy in her foot from it.

I can't imagine the combo of chemo and fibro fog together, just one fog is enough.
I hope you find some comfort as you try different meds and therapies for FM. It's a bumpy road to say the least. Find your comfort zone both physically and mentally within the fibro world you live in. Once you do things don't necessarily go away but your frame of mind battling it will be better, in return bringing you and your body to a better state.

 
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Old 10-17-2012, 06:42 AM   #7
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Re: new to fibro board

Welcome Jessiesmom88...There are so many great people on this board with a wealth of information and support. Sorry you are here, but really glad you found us! It takes time to find the right cocktail of meds or diet and excersize to finally relieve some of the Fibro pain and fog. It never all really goes away, but there are many ways to deal with it. It's your call. Always remember that! And Grojer is right about the Thyroid thing. My PP always checks mine through bloodwork but would never try to treat me for it. He always sends me to the specialists I need at the time. Good luck and God Speed.

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Old 10-17-2012, 11:00 AM   #8
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Re: new to fibro board

Welcome!
Congratulations & Beating Breast Cancer & taking such wonderful control of your diabetes! Yes Fibro is frustraiting... But if you can beat BC & control diabetes, you can control this It just takes time, patience & Exceptance... Unfortunetly we have our limits & you have to learn to not push them, which we all do... The great thing is that you are not alone in this & we all have eachother! No matter what, family & friends can't understand fibro, no matter how hard they try, unless they go through it also...
Cymbolta is an awful drug... I take Savella & it's my favorite. I've tried Cymbolta, Lyrica & Nurontin). Unfortunetly Savella makes me sweat... Ugh Usually I'm the kind of person who's always cold so atleast I'm not always freezing...
You'll figure out what works best for you It does sound that if you have Thyroid issues, treatment will help
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Old 10-17-2012, 03:05 PM   #9
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Re: new to fibro board

Thanks for all the support ..if feels good not to be alone in this. My friend has hashimotos and swears with all my complaints that I too must have it. I have only had the usual thyroid test but am coming up on a full scale physical with my primary care and at the end of this month going to my cardiologist since I cant get my cholesterol under control with diet and the drugs put me on the couch with worse aches and pains...he also ordered a thyroid test but only the basic one. I was told I should demand they do a T-3 and T-4 uptake thyroid panel as well. If both my docs are ordering a basic thyroid they must be thinking the same thing. I do agree though that a good endo doc would do the full panel. Guess I will be making some phone calls tomorrow!! Thanks everyone!!

 
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Old 10-17-2012, 10:03 PM   #10
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Re: new to fibro board

Hi Jess, have you looked in your local health store to see whether there are any herbal supplements that might actually help you with the Fibro? There are cures but that is not with western medicine. You have to get to eastern Ayurvedic ways of treatment. If you google it, you'll find information on this path of healing.

 
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