Re: hello everyone
call your county adult services and see what they have in the way of home help. there are good people out there who work for them doing in home care. that way you get a break and help.
also go online to the als website and see what is available in your area. never went there but perhaps they have a help line.
as for yourself. muddle thru as best you can. if she sleeps you sleep at the same time. remember, you said you would and hard as it is you must keep your word. the worst thing it to lose what support you have when you are dying. if you are able try to put yourself in her place and ask yourself what would you want?
i do hope you will seek outside help. for you both. a good shrink may be a wise choice. someone to listen and guide you thru this.
as a helper you have an obligation to take care of your health too. you are of no use if you are helpless with pain too. are you eating healty and getting exercise, drinking plenty of clean water, yada yada yada. you know the drill. giggle.
sending energy from friend redwood tree to hold you up when times are down. lean on her. she is strong.
when faced with something you cannot control peace lies in self education and adaptation to the situation.