I'm fairly new to the message boards. I'm at a complete loss atm, and don't know if my symptoms are more like Fibromyalgia or Multiple Sclerosis. I been out of work since June 2012 cause of pain that started in right arm and hand and numbness and tingling. Since then the pain has progressively moved to my neck,shoulders, and back. Now on a normal day my lower back always hurts and everything from riding in a car, too hot, too cold, standing in one spot, shopping, etc. makes me hurt more or the pain moves onto other areas of the body, and usually if it is really hot my feet feel like they are on fire. The new things that have been happening is I will be walking along and i will randomly get sharp pains in my ankles that will bring me to my knees, muscle spasms in my legs or sides, or stabbing pains in my entire leg. Sometimes the pain is so bad in my neck and back that i can barely move and feel very weak off balance, and shake a lot. I've been to physical therapy for 2 months because doc thought it was muscle related, but the therapy made the pain worse. I've had nerve study done cause they thought I had pinched nerve where I had numbness and tingling. And more recently I've seen a oseopathic doctor that manipulated my muscles and cracked my neck and back, and she told me that I have 10 of the pressure points that someone with fibromyalgia would have and set up an appointment with rheumotologist. The doctor also said that any one with Fibro usually hurts alot for 2 days then feels better after having their muscles manipulated and neck & back cracked, But the pain never went away. Since then muscle spasms in my legs have gotten worse and when I try to stretch I get massive muscle cramps in my legs that don't go away for a while and then tender for a while after. My fiance has MS and more recently he has told me that he wants me to have an MRI and spinal tap done cause he's noticing that I'm having a lot of the symptoms he has had. I was so sure for the longest time that this is most likely fibromyalgia, but like my fiance has noticed my symptoms have been very similar to his. On top of this I also have IBS, associated anxiety disorder (panic disorder), seasonal allergies and acid refllux. It use to be the IBS was the worse pain i've ever felt but what is going on with me now is by far worse. Also my family doc and pt said I could have multiple things going on. I just at a loss with all this I've looked over the internet to see what my symptoms are more like MS or Fibro.
Last edited by tineewolf; 11-21-2012 at 02:55 PM.
Reason: no replies
The following 2 users give hugs of support to: tineewolf catkaru (11-21-2012), sasrei7 (11-22-2012)
hi and welcome,
your doctor can order an mri or ct scan of your brain and that will tell you if you have ms or not. simple and easy. for now, relax, breath, think healing happy thoughts. until you see a doc again you cannot let fear lead your life. it just makes it all worse. save your worry for when you know what to worry about. i know it's hard. we all walk that road in the beginning till we find the balance that is unique to us as individuals.
i will send healing thoughts your way.
life does not wait for one to get back on their feet.
The Following User Says Thank You to bluelakelady For This Useful Post: tineewolf (11-24-2012)
Have you tried accupuncture? I hear it can help pains related to fibro. Have you had a full blood test to see if your missing any vitamins? Id say for sure get a MRI done, atleast that can answer your question about MS. Do you take anything for your anxiety or have you seen a psychiatrist regarding your panic disorder? Anxiety can greatly increase your pain. I understand how frustrating things can be I used to not be able to work because of my IBS and my anxiety, after taking CBT my anxiety had gotten alot better (had social anxiety disorder) now I still cant work cause of my IBS, cfs and fibro but the techniques I learned in CBT helps manage my anxiety.
The Following User Says Thank You to sasrei7 For This Useful Post: tineewolf (11-24-2012)
For the longest time I have been told nothing is wrong with me, but fortunately the doc I have now has been pretty good in wanting to find the problem, it's just been a long drawn process - bouncing from one specialist to another. I'm gonna ask the rheumatologist Dec. 5th for MRI. The odd thing is no my doc hasn't run blood work on me only sent me to physical therapy, osteopathic doctors, and neurologist to have nerve testing. It wasn't until I saw the osteopathic doctor that she recommended i see the rheumatologist. Sasrei17 I take 50mg of zoloft daily that has helped a lot with my panic attacks and IBS, they put me on it cause my panic attacks were interfering with work, i'de either call out of work cause of an attack, or my IBS would go into what I call hyper mode, or be afraid to go to work cause my anxieties may kick in, I was also seeing someone for my anxieties and she was awesome, she encouraged me that my thinking wasn't wrong, I just needed to find ways to keep my mind off my worries while I work, I call it over thinking or over worrying - it seems the brain never stopped. The funny thing is I was afraid my anxieties would keep me from working and now it is something physical. Since on the zoloft I don't really have IBS problems, occasionally I will have an onset, but don't disable me for the day like it use to, but when I do get a painful onset I will take my hyoscyamine.
I just know I am very anxious for my appointment with rheumatologist and also worried gonna tell me nothing is wrong or can't find any thing wrong with me. A couple days ago I personally decided to walk with a cane, because my left ankle is constantly having sharp pains that almost makes me fall, so rather than fall I keep the cane on hand.
I would also try to get an MRI of your neck to see if there is a problem there that can be causing your arm pain and tingling. That can be caused by many different spinal cord disorders as well. Good luck to you, and please come back and let us know how it goes for you!
Last edited by Whynowthis; 11-24-2012 at 09:05 AM.
The Following User Says Thank You to Whynowthis For This Useful Post: tineewolf (11-24-2012)
I just got back from rhuematologist appt. and honestly I'm not fully satisfied with it, all she did is poke me and ask me questions, and said I have the pressure points of fibromyalgia, ok that was determined a while ago. When I mentioned that my symptoms are very similar to my fiance's symptoms of MS and that he thinks I should have an MRI and spinal tap done - she looked at me and said oh no you don't want those test done, I was like but my symptoms are like his shouldn't I have have them done just to make sure and rule it out, she said no with your symptoms and pressure points it's fibromyalgia, then I told her other family and friends were concerned with lyme disease - she asked if I had been bitten by a tick and if i had any redness any where, and I told her i don't believe so, she said I don't think it's lyme disease. Other than diagnosing me with fibromyalgia she had some blood drawn, and xrays of my lower back, to see if i have a psoriasis form of arthritis where I've had psoriasis in the past, and an xray of my ankle to make sure nothing is wrong with it where I been getting sharp pains in it when I walk. I don't know if I'm in the wrong for feeling this way, but I feel more should have been done to rule out all other possibilities. I told my fiance` that I am going to request from my physician a second opinion.
My Problems also began June 2012. June 5 to be exact... pins and needles in left arm and hand, went to er and had ekg and head CT all normal. They said anxiety and sent me home, next day shoulder pain, pins and needles and chest pain and mid back pain... back to er CT of neck showing sever muscle spasms, chest x ray and ekg all norm. Sent home with ibuprophin 800 Mg and xanax. Went to my GP the next day, she adjusted me and said I had a rib out of place but the adjustment should work... the next day I was back with dizziness and pins and needles in my left foot along with tenderness on my mid spine... my hair or the air couldn't touch it! Feels like an open wound with salt being poured on it! Then I get a spine fray after loads and loads of bloodwork... no signs of abnormality at all... then off to PT for about a month... I was in misery with PT! One day he decided to give me an Ice massage... when he hit the spot on my spine I felt like my chest blew wide open! That was the end of that! Had the pins and needles in my arm for 8+ weeks non stop... the dizziness was really getting to me and then I started to have small episodes of drop foot on my left... back to my GP who adjusted me again (against my WILL) and then said "well I just don't know what's wrong with you" so she sent me to a neurologist I go in the morning for my mri results... I am begging God for him to say there was nothing and that he also does not know what is wrong with me... then I can go to a rheumatologist and figure out what this is... your symptoms sound a lot like mine... but my low back is much better off than my mid back and neck... I hope you find your answers... always push for them and get second opinions but after that just accept I am in severe pain and I know pain I had 3 kids naturally..lol but its not the pain that bugs me as much as the unknown... blessings
The following user gives a hug of support to Brookietrip: Whynowthis (12-05-2012)
Brookie and Tinee, I really hope you both find answers soon. To me, nothing's worse than the "not knowing"! YOU know SOMETHING is wrong, but when tests come out normal, or worse yet the doctors don't even order tests, it is soooo frustrating! I've been down that path myself. I finally was diagnosed with a terrible disease of the spinal cord called arachnoiditis. While many are upset to get this diagnosis, I was thankful to have a NAME to put to all the symptoms. I FINALLY KNEW what was causing so much pain. But it took years to get my diagnosis. I definitely understand where you are in your journey. I pray for quick answers, and swift treatment so you can recover and feel normal again! Gentle hugs!! And please keep me updated! I'd love to hear your progress!
Just got my mri results... in my thoracic spine I have 5 herniated disks... now they want to do the rest of my spine... I have pain management and a nerve damage test on Wednesday also have to see a spine specialist... I knew that it wasn't all in my head! HA! Nice to say that! Cant wait to see my GP who thought I was just being a hypochondriac so I can tell her to bite me! I say get an mri your pain and symptoms are so very similar to mine... I have never injured my back and an x ray shows nothing... its genetic or from years of repetitive motions... etc.
The following user gives a hug of support to Brookietrip: Anaya764 (12-24-2012)
The Following User Says Thank You to Brookietrip For This Useful Post: tam090 (12-12-2012)
Thank you Whynow and Brookie. I'm glad they finally found something from your MRI's Brookie I have an appointment with doc. Fri, and I'm gonna ask him for my knowing to have MRI's done on my neck and back. I've been so stressed out the past couple days and I think it is making my neck and back worse and my right leg is starting to be a bit painful. Everyone thinks that I'm not accepting I have Fibro - it's not that it's the fact I feel the right test weren't done to rule out other diseases or problems that have the same symptoms of Fibro. Osteo Perosis runs in my family, Lupus, and I have a cousin with MS - that I just recently found out, and she is currently crippled from it. So my fear is there is something else wrong and will never and I feel that the doctors are settling with Fibro or don't want to see the possibility it could be something else. I just don't want to be one of those oops patients that gets worse cause the right things weren't done for the problem.
Fibro is only supposed to be diagnosed when ALL other diagnoses are excluded. So without running the proper tests, how are they able to exclude any other diagnosis? I would get a second opinion and third if necessary. I wouldn't accept it either until ALL tests have been run and nothing else is found!!
I am in an extreme amount of pain. It all started with the shooting pain down my calf & muscle spasms in February, then in June extreme arm pain, elbow, wrist. I had blood work done and it showed positive ANA twice, as high as 1:1260, but I had a test done last month and it came back negative, going to retest again next month. Also it showed that I have hypothyroidism. Just about all the symptoms you listed are the same as mine, a long with extreme fatigue. Did I mention pain? 4 Norcos a day doesn't even touch it on most days, can't sleep. Even with the addition of memory foam topper, not only does every muscle in my body feel like concrete, so does my bed.. but the memory foam does help.
Rheumy touched me a few places, but bacically ruled out MS because I could get up and down from a chair with out assitance. Didn't even give a thought to Fibro even though I have mostly all the tender spots and a few more.
I just want my life back..
Are your muscle spasms just at night or all the time? Mine are all the time. I have had all the blood test you can think of. I even had hair folical test for minerals, heavy metals and such done. I am so desperate. I take multi vitimin plus all the other recommended ones. Mag, cal, potas, and such..
I have similar symptoms. I have just been diagnosed with Lyme and co-infections babesia and bartonella. I was misdiagnosed for years. I would ask around the boards for a Lyme-literate doctor and get a test from Igenex.
Regular M.D.s don't have the information for diagnosis and treatment of Lyme disease.
Check out the symptoms of Lyme. I think you will be surprised. Good luck.
I've been dx with fibro since August 2004 & the past 2 years or so my symptoms have changed from "fibro pain" to a deep tearing pain in my legs, lots of numbing, tingling & muscles spasms/twitches all over (MS symptoms). These different issued popped up after I started getting severe migraine headaches. I've done lots of blood work, EMGs. X-rays & MRIs and so far they have found a nerve thats being touched, 2 slightly bulging disc & early stages of degenerative disc disease. The neurologist wants to see me again in 6 months or sooner if the symptoms escalate. This neurologist actually took my symptoms seriously, which made me feel better & not like a hypochondriac. This is the third neurologist I've seen and he scheduled a 6 month follow up; the others said it's just fibro & sent me on my way.
After my first MRIs my rheumatologist said it was just fibro and refused to listen to my other concerns & the fact that I pretty much stay in the bed now because of the pain.
I said all of that to say I understand the not knowing what's wrong when you know something isn't right with your body! Keep pressing your Drs. Get more opinions until you get answers.
If my eyes don't get better I'll be going to see someone. I feel like something is pushing them back in my head, blurry & double vision. I'm having a hard time reading/writing this on my phone.
"...Forgetting what is behind and looking forward to what is ahead..." Phillippians 3:13
Sorry guys I been so delayed on responding to the post. My muscle spasms are erratic they don't have a rhyme or reason to them. I'm in constant pain any where from mild to chronic - now shakes - weak legs - and constant fatigue. I spoke to my family doc. bout the rheumotologist and he went over all her notes with me and pointed out that my symptoms are very similar to fibro, and that if my test come back negative that she gonna do a lyme disease test on me. I did emphasize to him that i want an MRI of my neck, back and head done - he said that is usually last resort - when nothing else can be found . My fiance was with me at the time and we both pointed out that my symptoms are very similar to his - and i even said i will keep asking for it til i get it. He reassured me that I have not been diagnosed with fibromyalgia yet, that the rhuemotologist is leaning towards it. He also stated that I am in for a long hall and diagnosing me with something will take some time. I also been seeing a social worker and she stated if I have any issues with all this she will have a talk with my doc as an advocate to revoice my feelings on the MRI.
My newest symptom is constant itching all over body - nothing there - no bumps, rashes, or bug bites. Tried lotion - skin still itches after the fact.