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Old 11-23-2012, 08:04 PM   #1
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bsimons14 HB User
Long Time Fibro Male Looking for Help

Hello Gang. This is my first post on Healthboards. I am looking to achieve some answers on some physical symptoms which I have had for years. My primary doctors keep saying I have Fibromyalgia and offer me like the worst drugs I have ever seen. Savella, Lyrica and Cymbalta. I've used drugs recreationally in the past and I've tried plenty of meds for depression and anxiety and I have never seen a drug as bad as Savella.

I have attempted the medication 6 times because the doctor keeps claiming I need to give it time but with no fail I immediatley start to overheat, have difficulty breathing, become extremely nervous and sometimes have changes in behavior with this. Sometimes it puts me into Winning mode I will say...other times I feel diabolical, and yet other times it will make me a sensitive love making machine.

So obviously this is a med that I shouldn't take. So I don't. There is one caveot though. I have not experienced a full natural erection since maybe I was 15. But even then completely unpredictable and never able to on queue. I am 32 right now. The weird thing is...the only medication that has helped me is Savella. Savella turns me into a Stallion that could just nail a girl up to a wall and make sweet passionate wonderful love.....otherwise...I can't even do it at all. My erections on Savella are normal. My sensation is good. I do sometimes mix it with Viagra because of the level I can get to but this is bad and so now it has been 2.5 years since I have had sex. I have not really been able to be sexually active at all in the past other than the use of Viagra.

Can anyone help? Does anyone know what the hell is in the Savella. Why is this the only med that helps me Sexually.

I am now unemployed because of the pains in my legs, pains in lower back, anxiety, difficulty reading, disorientation, headaches, stomach pulsations and erectile dysfunction. This has occured since I was 15 at minimum. My confidence level is at an all time low. I know I will get back up. I just need to figure out how to get this body on the same page with my mind. I need to be able to figure out how on God's Green Earth can a guy get an erection. I feel like waking up with an erection will help me tremendously.

Oh and in regards to the rest of the Fibro symptoms I am beginning to get some of these things in check with the following:
Accupuncture
Black Tea
Daily Exercise- Even though ya can't I know. But still go. Give it 15 minutes-20 minutes-walking treadmill, exercise bike whatever
Tons of Water
Vitamin D
Xanax every other day
used chiropractic care for sometimes
Planks for the lower back- Strenghten your abdomen muscles help the back. It's not much but I think everyone with this condition has the same weird back of neck lower back problems, headache, dizziness things. The planks help build the core. You can do these exercises if your 80
Do Something you love every day
Remember everyone has a condition
Remember there always for some reason are brighter days...even if it takes 10 days rest to get them they are out there
Write down and record thoughts and symptoms in journal-----kinda useless but on the real bad days I can look at those days where I physically felt just fine

Last edited by Administrator; 11-23-2012 at 10:23 PM.

 
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Old 11-23-2012, 08:09 PM   #2
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Re: Long Time Fibro Male Looking for Help

and if the writing is choppy forgive me. I have issues with sequences because of the xanax I took two days ago. I am in that withdrawal phase and I am mildly disoriented at the moment.

 
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Old 11-24-2012, 05:09 PM   #3
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Chicabellarox HB UserChicabellarox HB User
Re: Long Time Fibro Male Looking for Help

I don't know about Savella, but I wasn't able to take Lyrica or Cymbalta. The Lyrica made me have the side effects listed like blurry vision, dizziness, migraines. I could not function. The Cymbalta made my mood plummet terribly. I told my dr no way to continuing it. I didn't try Savella because it was in the same category as the other two.

I was able to keep active and exercise in my early 30's but as time passes, I feel this illness holding me down. I'm now 38.

I do the other things you do but haven't tried acupuncture. Will definitely try it. Are there any adverse effects at all?

I also took Xanax when I was working full time to help with the pain and sleep. I am currently pregnant, and needed to stop taking it. Do not stop cold turkey! I had the worst time ever with withdrawal! I had twitching muscles, increased pain, night terrors, and the absolute worst was the level of rebound anxiety and panic that was way more severe than any anxiety I have ever had. Since I was preg, all of my anxiety revolved around the baby and it was horrible. I had to go back on and wean off gradually.

So I am struggling to find a way to reduce my inflammation without taking ibuprofen or anti-inflammatories since they are prohibited in pregnancy. I am suffering terribly without the meds I need. I will try the acupuncture!

The only thing I could suggest about the sex thing is trying a counselor. It sounds like Savella affects your moods. Maybe there is a therapy that will help. I also looked into Biofeedback and Mindfulness which are taught by psychologists to help pain, but I got distracted from it. The biofeedback techniques did help me when I was working.

 
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