I am borderline low...32 and I believe 30 and over is normal however my D3 level was under 4 which is deficient. Just took a 3 month follow up blood test for D . Doc put me on 1,000 iu a day for the 3 months and I will go back to him on Wed. I will let you know if the D level came up. This is funny though....my cardiologist was the one who ordered the test not my primary or rheumy. He thought since I get such bad pains in my legs and have high cholesterol and all the other problems that some may just be from low D. Got the results back from the first test and they were sent to my primary as well. The primary sent me the results in the mail and said D level was fine. When I got to my cardiologist he said..NO..you are very low...get on the D NOW!! Funny how 2 dr's can contradict each other. Did lots of research and they say for my age (almost 55) I should be up around 70-80 and not 32!!! SO..hoping all that D works..oh and I am vitamin b-12 deficient as well..anyone else??
Hi jessies mom88, I have blood test every three months for cholesterol and high blood pressure problems, the reason I found out about vitamin d deficiency was I read on the internet that people with fibro should take vitamin d, e, and b=12 so she did a blood test on vit d def. and I had 14 and she said it should be 60, have to take 2,000 iu vitamin d vitamins.
Curious margie terry...did taking the 2,000 iu a day of D raise you levels? If so, where are the numbers now?
My brother in law who is into supplements said I could take up to 4,000 is a day but I think that is over kill! Also, are you on cholesterol meds (which one) and how does that affect your fibro pain?
I ordered them through puritans pride I did not get them yet, my drug store only had 1,000 units in stock, so I have been taking them just for the past couple days but I still feel tired all the time, have to take a nap everyday. My cholester pill I take is simvistatin it does not seem to bother my fibro,,
I have fibro, Vitamin B&D deficiency, i get monthly b12 shots, and Dr put me on 2000mg vit d daily. I have been taking both for over a year and i just had blood test that came back good.
My primary doc called yesterday ..gave me the results of my latest blood work..vitamin D still hasnt come up from the low 30's on 1,000 IU for 3 months ...I was taking closer to 1,4000..so he upped it to 2,000. I guess I need to find out what is keeping my body from keeping the D I take..its a fat soluble vitamin and lord knows I have enough extra fat to store it in I think my low B comes from the fact I have been on proton pump inhibitors for years...prilosec and when that stopped working..aciphex..now on generic prevacid. Fibro has really messed up my digestive systen from top to bottom! I should look into b-12 shots!
Ive been diagnosed with this definciancy also. Even after taking the vitamins for a while it wasnt doing anything. so being im on so many other meds, and truthfully I get sick of taking meds.. but have too I chose not to continue the vitamin d. I also know people without this illness and it seems here in this town which is small the drs. are recommending vitamin d to almost everyone I know of.
rosesnbloom
Hi All! I take 50,000 units every two weeks. My level was a 13 when first tested. In the begining I was taking the 50,000 every week. I assumed my levels were low because I had broken my kneecap that July and due to the brace did not spend any time outside. Could not walk and full leg brace would get very hot! My Mom used to go for B12 shots. I think I'll ask my Doc about them. Can't hurt.
Low pain All,
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Most people have vitamin D deficiency. Everyone I know that took the blood test (and shared the results with me) was low. But I was very low. I was hoping that would be the cause of my fibro, but unfortunately I don't think it is. Still, taking vitamin D so that you are in the good range is very important.
My vitamin D was at 8 at the beginning of December - lower than it was a year ago when I had it tested (was 18 then). I took supplements for a few months and then didn't ask for a refill. I guess I should have
After the latest results, I did some research and found that people with chronic pain often have extremely low Vit. D levels.
No. It doesn't cause fibromyalgia. Fibromyalgia is genetic. Trauma and stress can trigger it.
Hi margie terry, My dr recommended & i take liquid calcium 1200mg/vitamD4 2000units in one capsule & a superB complex with vit C. This according to him covers all I need & its easy just 2 pills! Also, i have never heard this before from any of my drs that fibro may be only genetic, what did your dr say exactly? Thanks
Last edited by gmak; 02-24-2013 at 01:57 PM.
Reason: wording
Me too,
I was diagnosed with extreme Vitamin D deficency about a yr or 2 ago I had to get a script for high doses for a month or so( sorry my memory is not too good) but now I just buy the supplements at the store and take them. Probably for me is that I don't spend much time outside anymore?
Yes, by the way. Fibromyalgia is genetic. It can be triggered by stress, grief, car accidents and so on.
Genetic in that sense, doesn't mean it will show up when you are young. There is a need for something to trigger it.
Just like grief and sorrow can make your hair white. (for some yes, and for some no).
You can ask any doctor today and see that it's genetic. It's similiar to an auto-immune disease but not exactly like it. (they say there is no inflammation in Fibromyalgia but in fact there is - ANA testing can prove it) and so on.
Right from the start they realize (researchers)that Fibromyalgia has to do with sleep.
Those who have fibromyalgia don't sleep well, and this 3 and 4 stage are too short (REM). That's why they prescribe Xyrem when nothing works.
People who don't sleep well can develop fibro-like syndrom.
Yes, by the way. Fibromyalgia is genetic. It can be triggered by stress, grief, car accidents and so on.
Genetic in that sense, doesn't mean it will show up when you are young. There is a need for something to trigger it.
Just like grief and sorrow can make your hair white. (for some yes, and for some no).
You can ask any doctor today and see that it's genetic. It's similiar to an auto-immune disease but not exactly like it. (they say there is no inflammation in Fibromyalgia but in fact there is - ANA testing can prove it) and so on.
Right from the start they realize (researchers)that Fibromyalgia has to do with sleep.
Those who have fibromyalgia don't sleep well, and this 3 and 4 stage are too short (REM). That's why they prescribe Xyrem when nothing works.
People who don't sleep well can develop fibro-like syndrom.
Oh ok, like dormant you mean? Genetic to me means genetic information written or coded on the DNA passed chromosomally that carries dominant or recessive or mutated genes or traits that are inherited. I need to study more, thanks!
The Following User Says Thank You to gmak For This Useful Post: survival sue (02-25-2013)
vitamin d deficiency 
I think my low B comes from the fact I have been on proton pump inhibitors for years...prilosec and when that stopped working..aciphex..now on generic prevacid. Fibro has really messed up my digestive systen from top to bottom! I should look into b-12 shots!
