I am new here as well. It has been a long road and things just seem to get worse before they get better
I believe that my biggest mistake was staying with the same primary doctor. After her first snide comment I should have walked away. But, after seeing several different doctors I didn't feel like making the change. But, I am now!
Everything, for me, started out with tingling and numbness. I had a nerve conduction study and an electromyogram on the left side of my body. nerves and muscles reacted normally. So, from the neurologist I got the "I can't find anything wrong with you. You won't take anxiety or pain meidcation. Then there is nothing I can do." My thought, tell me why I need to and we wil go from there.
I bet you and I both know in a normal body there are different aches and pains everyday. But, this is different. It does not go away completely with rest or heating pads. It is not a sore muscle after a nice long jog or a sore back from planting in the yard all day. It's different.....it hurts/aches/stabs/throbs really bad.